Thrive & Hea.r

08/27/2024

☀️ We’re thrilled to invite you to join us for the 2nd Annual CurePSP Spring Community Weekend in sunny Los Angeles, CA, on May 1–2, ! We’ll kick off the weekend on May 1 with an Education Summit, where you can hear from amazing speakers and gather helpful resources. Then, on May 2, lace up your sneakers for the CurePSP Run for Hope 5K & 1 Mile Walk! It’s a wonderful opportunity to learn, connect with others and come together as a community to support those impacted by PSP, CBD and MSA. We can't wait to see you there!

08/26/2024

A landmark moment in the fight against PSP. CurePSP has launched the Biomarker Accelerator Program, a historic initiative designed to end the era of misdiagnosis and stalled drug trials. This critical investment will bring us closer to earlier diagnoses, effective treatments and the tangible answers our community has been waiting for.

06/25/2024

The Tauopathy Challenge Workshop, established by the Rainwater Charitable Foundation Charitable Foundation, honors groundbreaking scientific achievements in the field of neurodegenerative diseases, particularly those associated with tau protein accumulation in the brain. This prestigious award recognizes researchers who are making significant strides in understanding and addressing the complexities of tauopathies.

01/19/2023

There's so much more to your journey than a diagnosis. Your stories of resilience, joy and discovery are a guiding light for our entire community.
We're launching "Living Stories" to celebrate the passions, achievements, relationships and moments that have shaped who you are — whether you're living with PSP, CBD or MSA, caring for someone with these conditions or supporting our community.

01/18/2023

Sometimes the smallest adjustments make the biggest difference. Whether it's a new routine, an adaptive tool, or a simple shift in perspective—these creative solutions can help navigate the daily realities of PSP, CBD and MSA.

We'd love to hear from you: What small change or creative idea has made life more manageable on your journey? Your insight might be exactly what someone else in our community needs to hear.

01/17/2023

Living with PSP, CBD or MSA has challenges that ripple through every aspect of life. From medical expenses and home modifications to lost income and caregiving time, the financial realities are often overwhelming.

CurePSP has launched a Financial Impact Survey to better understand these challenges. By sharing your experience, you’ll help shed light on both the visible and hidden costs of these conditions.

04/30/2022

Encuentra fuerza, comprensión y comunidad en nuestro Grupo de Apoyo mensual en español para Cuidadores de Personas con PSP, CBD y AMS. Se ofrece el segundo miércoles de cada mes de 5:00 p. m. a 6:30 p. m., hora del este. Juntos, compartimos, aprendemos y nos apoyamos mutuamente. ¡Únete!

04/20/2022

I am frighten by this news but hopeful as well I have been ‘freezing more and more and my voice has definitely changed over the last year and I only have one eye I was so sad to know that it was not reacting as quickly as it should be thanks for listening to me xoxo NKC

04/19/2022