Evie's Hope

Evie's Hope This page is focused on our daughter Evie who has Dravet Syndrome and a Brain Injury.

We hope to help bring awareness for how these things effect our lives and others who experience the same issues.

Spending father and daughter time together today. I have one more 12hr stay then we are one step closer to getting this ...
09/27/2026

Spending father and daughter time together today. I have one more 12hr stay then we are one step closer to getting this baby girl home.

We went to go see evie today, I did more training, then 24hr stay for me , then we get to find nurse and get her home. ...
09/26/2026

We went to go see evie today, I did more training, then 24hr stay for me , then we get to find nurse and get her home. Been a long year without her at home jan 26th

Daddy Loves you EVIE
09/07/2026

Daddy Loves you EVIE

Snoozy girl :) new ventilator coming soon after a scary recall 😬 she will be in the hospital until the companies get it ...
08/18/2026

Snoozy girl :) new ventilator coming soon after a scary recall 😬 she will be in the hospital until the companies get it together..

Wheelchair ramp is up! (being finished tmw) Happened to land on 2 year mark of Evie being taken off of sedation and intu...
08/17/2026

Wheelchair ramp is up! (being finished tmw)
Happened to land on 2 year mark of Evie being taken off of sedation and intubation removed.
Around midnight she still wasnt herself and i could see it in the nurses eyes that something was wrong, so i hardly slept that night at the hospital. Didn't tell Frank or any family until the next day.. then on the 19th we got the MRI results showing the damage. So instead of being sad today ill be happy/excited that Evie has a ramp to be able to be more mobile and get outside more once she is finally home! ❤️

Got to see our sweetheart today with franky and Kaytlin Richie. I cried for a minute she looks so peaceful holding her l...
08/06/2026

Got to see our sweetheart today with franky and Kaytlin Richie. I cried for a minute she looks so peaceful holding her little ms Rachel. Great day.

This was last week. We got to go see evie. Franky got to tag along this time. He misses his sissy, hopefully she will be...
08/04/2026

This was last week. We got to go see evie. Franky got to tag along this time. He misses his sissy, hopefully she will be home soon. We think she been tired lately cause she been getting one of her seizure meds early in morning and not late like its suppose to be . Other then that its going good. Also have handycap ramp getting installed soon

Up here with this cutie, she is knocked out. She did not get to sleep till 3am, poor baby.
07/27/2026

Up here with this cutie, she is knocked out. She did not get to sleep till 3am, poor baby.

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Chicago, IL
60638

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