International Alliance for Pediatric Stroke

08/20/2026

Many in our community may be heading to school with an IEP or 504 in place, but are you aware of all the types of accommodations that can be put in place under these plans? Prior to your next team meeting, brush up on what supports you can request for your child by pursuing this list:

Before your meeting, review this list of IEP and 504 accommodations. Empower your child with the right educational supports and strategies.

08/19/2026

"When 'i' is replaced with 'we', even 'illness' becomes 'wellness'."

08/18/2026

Learn more about our 2026 Pediatric Stroke Research Grant in today's newsletter:

https://mailchi.mp/d6242653422d/thank-you-for-your-support-in-6429195?e=9758977fdf

08/17/2026

Want to make sure you receive information about pediatric stroke research and resources? Sign up for our newsletter! While we cannot control social media algorithms to ensure you see our announcements on Facebook and Instagram, we can help you see them by delivering them directly to your inbox.

📬 Sign up for our mailing list here 📬
https://mailchi.mp/72997e8e480f/newsletter-signup

08/14/2026

We've shared many times about the positive results from the I-ACQUIRE study, a standardized, intensive rehabilitation program that has shown to improve arm and hand function in infants and toddlers after perinatal stroke. Now, the VTC Neuromotor Research Clinic is sharing the therapy framework used in this study by offering two courses for therapists.

Courses are available in September and November. Learn more and share with your child's therapy teams: https://fralinbiomed.info/acquire

08/13/2026

Did you know that we are currently accepting applications for our 2026 Pediatric Stroke Research Grant? This will support early-career investigators in the United States conducting innovative research that advances the understanding, prevention, diagnosis, treatment, or long‑term outcomes of stroke in infants, children, and adolescents.

This competitive grant provides up to $25,000 to investigators dedicated to improving the lives of young stroke survivors and their families.

Learn more here and please share with your medical community: https://iapediatricstroke.org/2026-grant-application/

08/13/2026

If your pediatric stroke survivor is experiencing challenging behaviors, know you are not alone: behavioral challenges may be present in those with neurological conditions and there are strategies to navigate them. The Child Neurology Foundation has put together a number of resources to help parents address this area:

https://www.childneurologyfoundation.org/behavior-management/?fbclid=IwY2xjawTqBjNwZG9mAWV4dG4DYWVtAjEwAGJyaWQRMVI5b1Zkb1ZRMXRlSm02R21zcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEe67DMU3gXDfno1t5TOHIif-_qPH6Yf4ZKVHctEMbLCIYkl_oML2wXL4hd0aY_aem_QBNyEVqjTz-IN5USnSYRkw

We explore the existing chasm between healthcare providers' ability to offer behavior management support guidance and families’ desires to have access to the best treatment…

08/11/2026

For those in our community who are returning to school and preparing for upcoming IEP meetings, here are some helpful back-to-school reminders from Cerebral Palsy Research Network - CPRN:

https://cpresource.org/topic/school-education/8-helpful-back-school-tips-students-ieps?fbclid=IwY2xjawToHXtwZG9mAWV4dG4DYWVtAjExAHNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR6gZXhkHOI9c3CXe0f-2xIC1cmyjEfg9HEPwGSEE_OK-NSNm9N-nJYzkQ1HdA_aem_EVaOZtQUoSOPaqTBrB8dOg

A new school year means new teachers, a new grade, new friends, new goals and maybe even a new school. Our friends at Learning Disabilities Online have put together these helpful tips to help you and your child or teen transition back to school a little easier.

08/10/2026

"Sometimes you have to let go of the picture of what you thought life would be like & learn to find joy in the story you're living."

08/07/2026

Sports and physical activity are an excellent way to regain strength following a stroke. Read how favorite activities like baseball and skiing motivated 13 year-old Conor during his stroke recovery:
https://www.eastidahonews.com/2025/09/fast-action-mental-and-physical-fortitude-got-poky-freshman-barfuss-back-on-the-field-following-pediatric-stroke/?fbclid=IwY2xjawTi8ahwZG9mAWV4dG4DYWVtAjExAHNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR5l9jjQAX5ZexvW1YNpT7gwSh8-bCL5ZJJpyK1QWl1Ak69QciAFR6sRTk9o6g_aem_1oR2iy_P6d5-GuKKJ_dUiQ

POCATELLO — Conor Barfuss was sitting poolside at a hotel in St. George, Utah, last June when everything turned on its ear for the 13-year-old and his family. It all started, according to his mother Marianne Barfuss, with Conor complaining of a headache. Concerned the heat of a summer afternoon wa...