CureforKendall

CureforKendall We are working to find a cure for Leigh Syndrome, a debilitating and often fatal mitochondrial disease.

Our daughter Kendall is 5 years old and diagnosed with Leigh's Syndrome, caused by a de novo pathogenic mitochondrial genome variant mt.3688G>A.

10/02/2025

Join "Team Kendall" this Saturday in person or virtually for the UMDF Energy for Life Walk, to raise awareness and funds for life-saving treatments, and ultimately a cure! No donation is too small and your support is so appreciated!

I am a believer in reflexology and thought I’d share. I massage Kendall’s feet every day before putting on her AFO’s, bu...
01/12/2025

I am a believer in reflexology and thought I’d share. I massage Kendall’s feet every day before putting on her AFO’s, but recently have added particular attention to the regions of stomach and intestines. It’s making her more regular, comfortable, ridding her body of toxins! Yay!

Wonderful community support of Lincoln at his preschool New River Christian Academy near Lake Wiley for mitochondrial aw...
09/22/2024

Wonderful community support of Lincoln at his preschool New River Christian Academy near Lake Wiley for mitochondrial awareness week! 💚

I try to savor each day! But today, I couldn't have been prouder of Kendall's determination as she helped me create and ...
08/23/2023

I try to savor each day! But today, I couldn't have been prouder of Kendall's determination as she helped me create and post her new school schedule. This was a great learning activity that combined so many of the skills we are working on! 1) Kendall practiced writing numbers by showing the times that she must log into MS Teams. 2) We made our clocks show the time on the schedule. 3) Kendall got up and side stepped to a chair a few feet away to take the photos of each time on the clock. 4) She sidestepped back to her deck and cropped the photos and arranged them with the identical size on a Pages document. 5) She printed the clocks 6) She cut them out 7) She had to match the clock with the correct time on the hanger. 8)She practiced more handwriting by writing each subject in a different color marker of her choosing! Then she placed them in the hanger and up on the wall it went! We took lots of breaks throughout the day, and unfortunately one break was decided by her body, but it was a great feeling of accomplishment at the end. I am so in awe of this child.

Address

Charlotte, NC

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+17047200595

Website

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