Levi's Hope

Levi has an extremely rare, life-limiting muscle disease for which there is no cure. We aim to share this message of Hope. His sweet smile can light up any room.

Levi's Hope is to someday find a cure, but ultimately his hope is secured in Jesus Christ. Levi's Hope was initially formed to assist Levi Gagner as he and his family navigated a life-changing diagnosis. It is has since grown to be a way to inspire HOPE and help support other families going through similar situations. Levi's Story:
Levi was born on November 4, 2013. He was diagnosed with an extrem

ely rare form of congenital muscular dystrophy called LCMD on November 26, 2014. LCMD is a life-limiting, muscle-wasting disease. It affects not only the muscles, but the heart and lungs as well. This disease will not affect his cognitive and speech development. Levi cannot sit up unassisted, cannot crawl, and has very little to no head control. He requires physical assistance in every area of his life. None of this, however, affects this beautiful boy's attitude about life. There is no current treatment or cure for LCMD. Our number one goal is to love our son for who he is. Our hope for Levi is to find treatments and a cure, but ultimately we know that Levi's hope is secure in Jesus Christ. We welcome you on this journey with us.

02/26/2026

We’re giving away a wheelchair accessible van!

Our mission is to provide hope to families facing life-altering diagnoses, and this year we have the incredible opportunity to bless one family in a life-changing way.

The selected family will receive:
✅ A wheelchair accessible van
✅ Assistance to help offset potential tax impact
✅ An all-expenses-paid trip to Cavalier, North Dakota for a special presentation at our 10th annual Levi’s Hope 5k on July 18th.

If your family is impacted by Congenital Muscular Dystrophy (CMD) — or if you know a family who is — we invite you to apply (or nominate a family) using the link below.

🔗 Apply or learn more here: www.levishope.com

Rare disease communities are small.
Please share this post so we can reach the family who needs this most.

Vans are expensive!! If you’d like to support Levi’s Hope financially so we can give away more vans - you can do that at levishope.com as well.

11/06/2025

Happy Birthday Levi! We are 2 days late in sharing (his birthday was on the 4th) 😬
12 years old and still bringing joy to every room!

07/26/2025

Levi’s Hope 5k Prime Time Nine was a massive success! Thank you to all who came out, as well as all of our sponsors & volunteers. What a lovely morning it was to run the beautiful streets of Cavalier!

07/25/2025

🚨 LAST MINUTE 5K ALERT! 🚨
Join us THIS SATURDAY in Cavalier for the Levi’s Hope 5K — a flat, fun, and family-friendly run/walk 💙 Great cause - Great Swag - Registration on site!

07/21/2025

Yeah Micah! Reppin’ the swag for this year’s 5k! Do you like it? You can get your own swanky swag this weekend! We went bold with PINK (dudes look cool in pink too) and got some wicked cool finishers medals for all participating! Join us this Saturday at 8:30 AM on Main Street in Cavalier for the Ninth annual Levi’s Hope 5k run/walk! Details on our events page.

06/15/2025

Levi was able to deliver his extra Switch 2 to Cassius today! What a sweet young man! We encourage you to check out Cassius caring bridge page to learn more about him and how to pray for this young man. (Link in the comments)

These two became instant Nintendo buds :)

06/09/2025

Thank you to everyone for the amazing nominations for the Nintendo Switch 2! We wish we could give one to ALL of the nominees!! The stories we heard are so compelling and close to our hearts. We appreciate the opportunity to be able to pray over every single nominee and their stories. We have reached out to the winner directly and plan to send a little something to those that did not win the switch as we still want to send a little joy :)

06/06/2025

SURPRISE TWIST! Levi Got TWO Switches… So We’re GIVING ONE AWAY! 🎮🎉

You guys. We’re blown away. Because of your incredible love, support, and generosity — not only did Levi get the Nintendo Switch 2 he was hoping for… he got TWO!

Now it’s our turn to pass that joy forward. 💙

We’re looking to gift the second Switch 2 to another awesome Nintendo fanatic out there — someone who could use a little spark of hope, fun, and Mario magic in their life.

👉 Here’s how to nominate someone:
Send us a message here on Levi’s Hope with:
1️⃣ The name of the person you’re nominating
2️⃣ A few sentences about why they’d love (and deserve!) a brand-new Nintendo Switch 2
3️⃣ Anything else you want us to know!

Let’s keep the kindness rolling and make someone else’s day — or year — just like you did for Levi. We’ll announce the chosen recipient on Sunday night!

Thank you for being the most amazing, joy-spreading community. We love you guys.

05/29/2025

***UPDATE*** WE GOT ONE! Levi was ECSTATIC to find out that he has a Switch 2 coming his way via a local family that reached out less than 12 hours after the original post! Thank you to our incredible community for your overwhelming support - it means the world to Levi and our family!

GAME ON!

🎮✨ Help Us Level Up Levi’s Joy! ✨🎮

Meet Levi — our brave, brilliant, and joy-filled 11-year-old who lives with a rare, life-limiting muscle disease called congenital muscular dystrophy. While his muscles don’t work like most, his mind is sharp, his heart is full, and his love for gaming is NEXT LEVEL.

Because of his physical limitations, Levi plays his Nintendo Switch with his feet — and yes, it’s as amazing as it sounds. He’s a total Mario maniac and can’t wait to dive into the new Mario Kart World on the upcoming Switch 2, launching next week!

💥 Here’s where you come in:
We’d love your help finding a Switch 2 for Levi!

He does NOT want to take anyone else’s preorder or steal the joy of fellow fans, but if you happen to see one in the wild — maybe at a local store or somewhere unexpected — please:
✅ Buy it if you’re able
✅ Message us here at Levi’s Hope
✅ We’ll pay you back immediately 🙏

We’re planning to camp out locally in hopes of snagging one, but we believe in the power of this community — a human network reaching farther than we can on our own. If we end up with more than one? Amazing. We’ll donate the extra to another awesome kid who needs a little joy boost.

Thank you for cheering Levi on — and for being part of our village. Let’s do this together. 💙💪

05/16/2025

10 years.

It dawned on us this last week that we have been traveling down to Mayo at least two times a year for over 10 years now. 🤯

Thank you for your part in our journey thus far. A diagnosis like Levi’s oftentimes leads to an extremely lonely existence. We are so grateful for those of you who follow along, for those who ask about how he’s doing, for those who speak directly to him when we’re out and about, for those who keep him (and us) in your prayers, and for those of you who have climbed right down into the trenches with us. You have all made this journey a little easier.

We had a great week of appointments - Levi’s health seems to be relatively stable and for that we praise Jesus! There are many more adventures to be had.

Onward!

11/21/2024

Flexibility.

A vital trait when living life with this dude. We had plans for a little family getaway before Levi’s 6 month checkups at Mayo. Unfortunately, life had different plans and we are ending the week with video visits with his doctors instead because Levi is currently fighting an illness. 🙃

Without this well loved machine Levi would be hospitalized right now. We are so grateful for modern medicine and doctors who provide us with the best equipment possible for caring for Levi at home!

11/05/2024

Happy birthday to this sassy young fella! 11 years old today!

Address

Cavalier, ND
58220

Website

http://www.levishope.com/

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