Camiyah’s Voice

Camiyah’s Voice Camiyah’s Voice was created by a NICU nurse and mom to bridge the gap between families and healthcare teams.

Our mission is to empower parents, support communication, and give medically fragile babies a voice!

💜 September is NICU Awareness Month 💜A month to honor the tiniest fighters, celebrate NICU graduates, support the famili...
09/01/2026

💜 September is NICU Awareness Month 💜

A month to honor the tiniest fighters, celebrate NICU graduates, support the families still in the journey, and recognize the incredible teams who care for them.

The NICU will always be a part of Camiyah’s story and the reason behind Camiyah’s Voice. 💜

Here’s to celebrating every tiny victory, because in the NICU, tiny victories are BIG victories.

08/06/2026

✨ It’s finally here…

For the past year, I’ve been pouring my heart into something that was born from one of the hardest seasons of my life.

When my daughter, Camiyah, spent 91 days in the NICU, I learned just how important hope, connection, and feeling seen can be. Reading to her became one of the ways I healed and stayed connected to her. That journey inspired me to create Camiyah’s Voice, a space where families can find encouragement, resources, and reminders that they are never alone.

Today, I’m so excited to officially share our new website. 💜

Here you’ll find:
🤍 Our story
📖 Your Voice Is My Bridge
🎁 Ways to support NICU families
🌸 Upcoming events
✨ And a glimpse into everything that’s still to come.

This is only the beginning. My dream is to continue growing Camiyah’s Voice into a place that brings comfort, community, and hope to families navigating life’s most challenging moments.

Thank you to everyone who has supported, encouraged, shared, and believed in this vision. Every message, every prayer, and every kind word has meant more than you know.

🌐 Visit us at www.camiyahsvoice.com

If our mission speaks to you, I’d love for you to share this post and help us reach more families who may need it.

With love,

Tierra 💜

06/30/2026

Let’s connect and us do the work for you‼️

05/07/2026

I don’t think NICU nurses will ever truly understand what they are to us…

because to them, it’s their job…

but to us?
they were everything in that moment.

They were there when we couldn’t be.
They caught things we didn’t even know to look for.
They stayed calm when everything felt like it was falling apart.

And somehow… they made one of the scariest times in our lives feel a little less heavy.

I will forever be grateful for the nurses who showed up for my baby…
because without them… I don’t even want to think about it.

If a NICU nurse touched your journey…
say something about them in the comments

🩵💜
05/07/2026

🩵💜

03/07/2026

One moment in the NICU that always stayed with me was watching an ROP exam for the first time.

As a nurse new to the unit, I remember feeling shocked by how intense it looked. The lights. The instruments. The way such a tiny baby had to be held still so the doctor could see the retina. I understood why it was necessary, but seeing it happen was different.

Fast forward to becoming a NICU mom.

Now I wasn’t just the nurse in the room.
I was the parent. And one of the things I found myself thinking about was my husband seeing this for the first time.

I knew what was happening medically.
But he was seeing his baby go through something that looked overwhelming.

Sometimes NICU moments feel different depending on where you’re standing in the room.

As a nurse, you understand the purpose.
As a parent, you feel the weight of it.

ROP exams are done to protect a baby’s vision and future. But that doesn’t make the moment easy.

If you’ve ever sat through one of those exams, you know exactly what I mean.

03/05/2026

• ROP = abnormal blood vessel growth in the retina
• It mainly affects premature babies
• Many cases resolve on their own
• Some require treatment (laser or injections)
• Follow-up exams are critical even after discharge

ROP doesn’t automatically disappear when your baby leaves the NICU.

The retina is still developing, especially in babies born very early.

Most cases improve naturally as babies grow.
But monitoring matters.

Early detection = better outcomes.

This is why follow-ups are scheduled so closely. Not to scare you. But to protect vision long-term.

Vision is part of development.
And development doesn’t stop at discharge.

Tip of the day 🤎
03/03/2026

Tip of the day 🤎

03/02/2026

One thing about NICU discharge that surprised me?

The way life after the NICU still revolves around appointments, specialists, and waiting rooms.

You think once the monitors are gone, the hard part is over. But sometimes it just shifts.

For many families, ROP follow-ups become part of that new rhythm — another room where you hold your breath… again.

Holding your breath.
Waiting for a number.
Praying for “stable.”

If you’re in that season right now, you’re not alone.

Healing doesn’t stop at discharge.
It just changes rooms.

🤍

Great care starts with great leadership!
02/25/2026

Great care starts with great leadership!

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Buffalo, NY

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