Kiss My ALS Foundation

06/03/2026

05/19/2026

ALS and MS may have more in common than researchers once thought. A new study found a surprisingly strong geographic association between the two diseases, raising questions about whether environmental factors could play a role in disease risk: https://bit.ly/4tGn3kp

The findings do not show that ALS and MS share a cause, but they may help scientists narrow the search for environmental exposures, genetics, or other factors influencing disease development.

The study also highlights how disease prevalence varies across regions of the U.S., with patterns that cannot be explained by latitude alone. Areas at similar latitudes showed very different rates, suggesting additional factors may be involved.

What researchers uncovered could shape future studies on ALS causes, environmental risk factors, neurological diseases, and disease prevalence patterns.

05/19/2026

The “S” in ALS stands for Sclerosis.

It describes what happens when nerve cells begin to harden and scar over time.

In ALS, those nerve cells are responsible for sending signals from the brain to the muscles. As they break down, those signals get weaker, and movement becomes harder.

It’s a small word that explains a big part of what people living with ALS experience every day.

05/19/2026

The “L” in ALS stands for Lateral.

This word simply refers to a part of the spinal cord where important nerve pathways run. These pathways are what carry messages from your brain to your muscles, telling your body how to move.

In ALS, those pathways are affected over time. As the connection between the brain and muscles becomes disrupted, movement can start to feel harder or less controlled.

It’s a small word that helps explain how ALS impacts the body.

05/19/2026

The “A” in ALS stands for Amyotrophic.

When muscles no longer receive the signals they need from the brain. Without that connection, muscles begin to weaken and shrink over time, a process known as “atrophy”.

In ALS, this happens because the motor neurons that control movement are gradually lost. As those neurons break down, the communication between the brain and muscle is disrupted, and the body begins to respond differently.

It is a clinical term, but it points to something deeply human: the gradual loss of muscle function that shapes how someone moves through their daily life.

05/19/2026

ALS affects everyone differently, and disease progression can vary widely from person to person. Learning about common stages of ALS may help patients and caregivers better understand changes in mobility, communication, breathing, daily routines, and support needs over time. Having a clearer picture of progression can also help families prepare for future care decisions and conversations with a healthcare team: https://bit.ly/4aGd7jp

This resource explores the stages of ALS progression along with common symptoms, care considerations, and ways support needs may evolve throughout the disease journey.

05/15/2026

She is not alone

Caring for someone with ALS can mean grieving changes that happen slowly over time while your loved one is still right beside you: https://bit.ly/47t5xrZ

Many caregivers experience anticipatory grief. Those emotions are often layered and difficult to explain to people outside the ALS community.

This reflection speaks honestly about the emotional complexity of caregiving and the quiet heartbreak that can exist alongside love, connection, dedication, and presence throughout the ALS journey.

05/15/2026

ALS treatment research is continuing to evolve as an experimental oral therapy recently received FDA fast track designation: https://bit.ly/4969PWx

Read more about how researchers are approaching nerve cell communication in ALS, and why this update is gaining attention in ongoing ALS clinical trials and experimental treatment development. Researchers are continuing to explore new pathways that could shape future ALS treatment options, adding to broader conversations around research, symptom progression, and emerging therapies.

02/20/2026

ALS does not care if you are poor or rich or famous. May we find a cure someday. Rest easy Eric.