Cure GRIN Foundation

10/16/2026

Great initiative for our Australian community! Our Scientific Director, Quinn Pauli, will be presenting at GRI 2 One Go's GRI Connect Afternoon on October 18th in Melbourne.

Speakers include:
• Quinn Pauli (Scientific Director, CureGRIN)
• Dr. Russell Chin (Neurvati Neurosciences & GRIN Therapeutics)
• Harry Francis-Forest (Positive Behaviour Support Practitioner)

Secure your spot here: https://gri2onegoaustralia.raiselysite.com/registernow

🎉 Not long to go until the GRI 2 One Go Family Connect Afternoon on the 18th October in Melbourne!

We're looking forward to bringing families together for an afternoon of connection, learning and community.

Now is the perfect time to register so we can finalise catering and event arrangements.

👉 Last chance to register here: https://gri2onegoaustralia.raiselysite.com/registernow

We can't wait to see familiar faces and welcome new families into our growing Australian GRI community 💚

10/16/2026

Happy ! 💙

Sometimes the best kind of play is the kind that lets you splash, explore, and just have fun! 💦 Watching Bianca enjoy her water table is sure to bring a smile to your face.

Thank you for sharing this sweet moment with us, Bianca. We hope your weekend is filled with curiosity, laughter, and plenty of opportunities to play! 💙

10/15/2026

We’re so excited to celebrate Trek for Amarli, an incredible community fundraiser bringing people together to support Amarli and others living with GRI Disorders!

A HUGE thank you to Amarli’s mom, Jade, the amazing Amarli Army, and every sponsor, local business, donor, and supporter who has helped make this event possible. The generosity of this incredible community has added up to over $6,000 in donations already and $5,000 worth of prizes! 🙌

WHERE DO THE FUNDS GO?
Every dollar raised supports the mission of the CureGRIN Foundation to improve the lives of individuals and families affected by GRI Disorders. Donations help fund and advance patient-centered research, prioritize research based on the needs of our community, connect families with resources and support, and accelerate progress toward treatments and cures.

Every ticket purchased, every donation made, and every step taken brings us closer to a brighter future for Amarli and everyone affected by GRI Disorders.

We’re cheering on Jade, Amarli, and the whole Amarli Army! 🩷💚

10/13/2026

A huge shoutout to Mariah Swanson for organizing a nationwide Panda Express give-back event on October 5 to support CureGRIN! 🎉

Thanks to Mariah and our incredible supporters, $231.07 was raised for CureGRIN! 🙌 Supporters participated from nine states: Minnesota, Illinois, Texas, Florida, Georgia, Arizona, Tennessee, Alabama, and Idaho!

A big thank you to Panda Express for helping make this fundraiser possible, and to Mariah for bringing people together to support our community!

Want to organize a fundraiser for CureGRIN? We’d love to help! Reach out, and let’s make a difference together.

10/12/2026

Free Virtual Support Courses for Caregivers & Families

Caring for a child with a neurological condition can bring unique challenges, and every caregiver deserves support, too. The Child Neurology Foundation is offering two free, virtual courses to help families navigate their journeys, find connection, and access meaningful support.

🌿 Caregiver’s Compass
A four-week course led by a licensed counselor, designed to support the mental health and well-being of parents and caregivers of children with neurologic conditions. Participants can also connect with an alumni community and join monthly follow-up gatherings after the course ends.

📅 October 19–November 11
⏰ Multiple session times available each week, including mornings, afternoons, and evenings
🔗 Sign up: https://bit.ly/3WgcskU

🕊️ Willow & Wind: Healing Together
A three-week grief support course for parents who have experienced the loss of a child. Led by a licensed counselor, this course offers a gentle, supportive space to connect with other bereaved parents who understand the journey of grief.

📅 Tuesdays, October 20, October 27, and November 3
⏰ 8:00 PM ET
🔗 Sign up: https://bit.ly/4y7P32j

Both courses are free and virtual, making support more accessible to families wherever they are. No one should have to navigate these journeys alone. 💙

10/09/2026

Keith and Quinn are in NYC today, wrapping up a series of meetings aimed at pushing forward clinical trials for GRI Disorders. They met yesterday with GRIN Therapeutics CEO Bruce Leuchter and his team about Radiprodil trials, and today with Ovid Therapeutics and Apertura Gene Therapies.

Keith says, “We talked about opportunities across all 11 disorders and a range of promising new interventions. There's still a lot of work to be done, but these meetings bring us closer to treatments and cures for thousands of people living with GRI Disorders."

10/09/2026

Happy ! 💙

It's always inspiring to see the time, patience, and determination that go into reaching new goals. Alex is hard at work during therapy, and every session is another opportunity to learn, grow, and build confidence.

Way to go, Alex! We're cheering you on and celebrating all the hard work behind each accomplishment. Thanks for letting us be part of your journey. 💙

10/07/2026

Don't forget to register to attend our October GRI Community Chat on Wednesday, October 21, 5p EST | 10p BST

At our monthly GRI Community Chat, you'll find a safe space to connect with people who understand what you're going through. Our virtual gatherings are relaxed spaces for community members to get to know each other and share resources.

• Join calls as often as you want
• Leave your camera off if it makes you feel more comfortable
• Hang back and just listen

You're not in this alone.

Whether this is a new diagnosis or you have been navigating this disorder for many years, you can find support and valuable information at our gatherings.

10/05/2026

🎟️ THE RAFFLE WINNER HAS BEEN CHOSEN! 🐾

We had a very special assistant help us draw the winner for our GRI Researcher 1:1 Raffle. Watch the video to see our official campaign pup, Rosalie Ruth, pick our lucky ticket!

A massive THANK YOU to every single person who shared a page, donated, and rallied during our Power of Us campaign week. Because of your dedication, and the incredible drive of our GRI families, we are moving closer every day to better treatments and a cure.

Thank you for showing up for our kids and our community! 💜

10/05/2026

Last call to register for our next 2026 GRI Get Together for families affected by GRI Disorders in Seattle, Washington. Deadline for registration is October 7. 💜💙🧡💛

Hosted by CureGRIN and GRIN2B Foundation, we're excited to bring GRI families together for a fun day of connection, community, and support at the Pacific Science Center.

Attendance is FREE for GRI Families!

📍 Location: Pacific Science Center — Seattle, Washington
📅 Date: October 10, 2026
⏰ Time: 12pm-1:45pm, then free access to the center
🎟️ Registration: https://bit.ly/4z6taBA

If you have any questions, please contact [email protected] or [email protected].

Thank you to our sponsor, GRIN Therapeutics.