12/21/2015
MS activists’ impact during 2015 has been remarkable - sending more than 14,000 messages and attending more than 600 in-person meetings with members of Congress about priorities for people with MS in the federal budget. Many MS activists also urged Congress to delay a dangerous policy that would have restricted access to complex rehabilitation technology accessories. On Friday, Congress completed its work for the year and approved several of MS activists’ requests. Our voice has been heard loud and clear, resulting in:
$1 million increase for the MS Congressionally Directed Medical Research Program (CDMRP), for a total of $6 million;
$2 billion increase for the National Institutes of Health (NIH), for a total of $32.1 billion;
$1 million increase for the Lifespan Respite Care Program, for a total of $3.36 million;
$350 million increase for the Social Security Administration, for a total of $12.16 billion;
$120 million increase for the Food and Drug Administration, for a total of $2.72 billion; and
One-year delay of a policy that would have restricted access to power complex rehabilitation technology and related “accessories” like tilt-in-space features and head and trunk support systems; as well as calling for a study to better understand utilization and reimbursement of these products.
Thank you for your hard work, MS activists! These are victories to celebrate and a testament to the impact of MS activists nationwide. The Society whishes you a happy holiday season and looks forward to continuing to drive change with you in 2016!