Crazy by Chiari

08/25/2026

💜 To honor Chiari awareness month this September CBC will be hosting a monthly peer support Group starting Sept 10th 2026!

💜 Crazy by Chiari Support Group
📅 Second Thursday of every month
⏰ 7:00 p.m – 9:00 p.m. Eastern Time
💻 Virtual via Zoom

Our peer-led meetings provide a welcoming space for individuals, families, and caregivers navigating Chiari Malformation and its commonly related conditions.

Come as you are. Share as much—or as little—as you’re comfortable with.

Together, we can:

• Share experiences with people who understand
• Talk openly about everyday challenges
• Celebrate progress, milestones, and victories
• Find encouragement during difficult seasons
• Connect with others throughout the Chiari community
• Remind one another that none of us has to navigate this alone

Whether you’re newly diagnosed, years into your journey, supporting someone you love, or simply looking for people who understand—you are welcome.

Looking for a support group? Visit the Support Group page on the Crazy by Chiari website to see the current Chiari support groups and meeting information available throughout the month.

Community is bigger than any one organization. Our goal is to make sure patients know where support can be found. 💜

Doing Good Things. 🧠💜
Crazy by Chiari
https://crazybychiari.com/support-group

08/22/2026

07/24/2026

Chiari Malformation Fact 39

Memory issues and “brain fog” are common symptoms reported by people with Chiari malformation. Difficulty concentrating, forgetting words, and slower thinking can be related to chronic pain, fatigue, disrupted CSF dynamics, and poor sleep—not just the malformation itself.

07/24/2026

Chiari malformation fact 39

The foramen magnum is where the brain transitions into the spinal cord. In Chiari malformation, crowding at this junction may contribute to symptoms by affecting nearby neural structures and CSF dynamics.

07/23/2026

Chiari Malformation Fact 40:

Chiari malformation—specifically Chiari Type II—is frequently associated with hydrocephalus because the downward displacement of the cerebellar tonsils and brainstem blocks the normal flow of cerebrospinal fluid (CSF) out of the fourth ventricle.

07/21/2026

Chiari Malformation Fact 41

While most classifications and treatments for each are highly debated the thing often times that most specialists agree on is the right treatment for the right patient.

Meaning individualized medicine which is the Gold Standard of Modern Healthcare.

07/20/2026

Chiari Malformation Fact 42

The position of the cerebellar tonsils alone does not determine whether someone will experience symptoms.

You can even have an abnormal flow study with no symptoms and a normal flow study and be very symptomatic. Each individuals case is different.

07/20/2026

Happy birthday to CBCs VP Paige!