06/01/2026
Twenty-nine years ago, I developed my first HS lesion.
For 17 of those years, I lived without treatment. Not because I chose to. Because I was overlooked, dismissed, and left searching for answers.
I know what it feels like to sit in doctor’s offices and leave with more questions than solutions. I know the physical pain of HS. I know the emotional weight of carrying a disease that so many people have never heard of.
But I also know this.
I am still here.
Today, I am living proof that an HS diagnosis is not the end of your story. Through surgery, biologic treatment, advocacy, yoga, community, and a whole lot of faith, I found my way back to myself.
This HS Awareness Week, I am standing in my truth and sharing my story because someone else needs to know they are not alone.
HS is not rare. It is rarely discussed.
For every person still waiting for answers, every person hiding scars, every person who has ever felt unseen because of this disease, I see you.
And I will keep advocating until every HS warrior is seen, heard, and helped. 💜