Angelman Strong - Atlanta

04/15/2026

✨ Don’t miss these fundraising incentives!! ✨

03/26/2026

Your Angelman Strong participation,fundraising efforts and support make an impact!💙

03/13/2026

Your Angelman Strong fundraising efforts are making a real and meaningful impact. Because of this incredible community, important advancements in Angelman syndrome research are happening right now—bringing us closer to better treatments and, one day, a cure.

Every dollar raised, every mile walked, and every story shared helps fuel the scientists, clinicians, and families who are working tirelessly to change the future for individuals living with Angelman syndrome.

From groundbreaking research studies to expanding clinical trials and increasing awareness around the world, your dedication is helping turn hope into progress.

Thank you for standing strong with us and continuing to move this mission forward. Together, we are making a difference. 💙

ASF-Funded Research Published!
New findings show that increasing overall UBE3A levels may improve many Angelman-related learning and behavioral challenges. This discovery is an encouraging insight for future gene therapies.

The study also found that seizures appear to be linked to one specific version of the UBE3A protein, helping explain why epilepsy in Angelman syndrome can be especially difficult to treat.

“The UBE3A gene makes a protein that comes in two different versions – one short form of UBE3A and one longer form. In our study, we explored how each version of UBE3A contributes to certain Angelman syndrome symptoms using a mouse model. We found that most symptoms could be improved with either version of the UBE3A protein. However, seizures associated with Angelman syndrome depended on only one specific version (the shorter form of UBE3A). This information is expected to guide future therapeutic development strategies.”
— Joe Krzeski, first author
UNC Chapel Hill, North Carolina

“Our study highlights the importance of restoring the appropriate versions of the UBE3A protein to address the full spectrum of Angelman syndrome symptoms. This has important implications for gene-therapy approaches aimed at reinstating one or both versions of the UBE3A protein.”
— Ype Elgersma, principal investigator
Erasmus University MC, Rotterdam

This ASF-funded work helps move the field toward smarter, more targeted therapies for the Angelman community.

Discoveries like this happen because of fundraising and participating in events like Angelman Strong. Every donation fuels ASF Funded Research. Thank you for making this happen!

See the published work here: https://www.nature.com/articles/s41380-026-03468-9

02/10/2026

Don’t forget to register by Feb 15th to get a $5 discount. Use Discount Code - ASF

02/05/2026

🎉 Angelman Strong Atlanta, GA — Date & Location Update! 🎉

Registration is already open, and we have some important updates to share!

📣 New event date:
👉 Saturday, May 9, 2026

📍 Location:
The Avenue West Cobb
3625 Dallas Highway, Marietta, GA

We can’t wait for you to join us for a day full of connection, joy, and strength as we celebrate our amazing Angelman community! 💙💪✨

01/21/2026

Mark your calendars! Angelman Strong registration opens Feb 3rd! 💙💪🏻

Plan to join us in May for Angelman Strong! 🎉 Registration opens February 3. We can’t wait to come together as a community that shows up with strength, heart, and purpose.

Promo Code for $5 Discount: ASF

See details and list of 2026 locations: www.angelman.org/strong

Every step, every team, every story helps move the Angelman community forward.
Mark your calendar and get ready to go Angelman Strong 💪✨

01/08/2026

Registration is now OPEN for the ASF Family Conference! We hope you can join us in Colorado in July!!

Registration is officially OPEN for the 2026 ASF Family Conference! 🎉

From connection and learning to laughter and unforgettable moments together, the ASF Conference truly has something for everyone!

Register and join us for 3 unforgettable days in Colorado.

📌 Ga***rd Rockies Resort | Aurora, CO
📌 July 30 - August 1, 2026

Sessions will include topics like seizures, communication, behaviors, expert panels, research, and more! Full agenda to be announced at a later date.

Learn more and register today: https://asfconference.org/family-conference/

01/07/2026

Registration is officially OPEN for the 2026 ASF Family Conference! 🎉

From connection and learning to laughter and unforgettable moments together, the ASF Conference truly has something for everyone!

Register and join us for 3 unforgettable days in Colorado.

📌 Ga***rd Rockies Resort | Aurora, CO
📌 July 30 - August 1, 2026

Sessions will include topics like seizures, communication, behaviors, expert panels, research, and more! Full agenda to be announced at a later date.

Learn more and register today: https://asfconference.org/family-conference/

01/05/2026

Have you been to Vanderbilt, UNC Chapel Hill, or any other Angelman clinic? Never been to a clinic... that's ok too! The ASF would love the opportunity to hear from you about your thoughts on the ASF Clinical Network! Take the ASF Clinics survey today (shared below). The deadline is February 1, 2026.

Help us shape the future of ASF Clinics.
Whether you’ve visited a clinic or haven’t had the chance yet, your experience and perspectives matter.

Share what’s working, what’s missing, and what would make care more accessible for people living with Angelman syndrome.

📌 Takes