FSHD Cure Initiative

FSHD Cure Initiative Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from FSHD Cure Initiative, Nonprofit Organization, PO Box 130163, Ann Arbor, MI.

A massive thank you to Amber Salzman for keeping the FSHD community's children and non-ambulatory patients in the conver...
07/11/2026

A massive thank you to Amber Salzman for keeping the FSHD community's children and non-ambulatory patients in the conversation during her recent appearance on NYSE LIVE.
Amber reminded everyone of the real, human stakes, and we appreciate that she used her voice for the childhood-onset population and all those who are non-ambulatory.
ALL AGES. ALL STAGES. A CURE FOR ALL.

FSHD Society Myfshd Friends of FSH Research
07/02/2026

FSHD Society Myfshd Friends of FSH Research

Today, the FDA will hear directly from teens and adults living with Early-Onset FSHD, as well as two parents of children...
07/01/2026

Today, the FDA will hear directly from teens and adults living with Early-Onset FSHD, as well as two parents of children with FSHD!

Cure FSHD For All Newsletter - Spring 2026
06/25/2026

Cure FSHD For All Newsletter - Spring 2026

Kate and Maggie introducing themselves and sharing their experiences living with FSHD.
05/23/2026

Kate and Maggie introducing themselves and sharing their experiences living with FSHD.

Maggie and Kate share what like to grow up with FSHD — from their d...

The next newsletter from Maggie and Kate will be coming soon. They'll share updates on our work and an interview with a...
05/23/2026

The next newsletter from Maggie and Kate will be coming soon. They'll share updates on our work and an interview with an adult in our FSHD community.

02/18/2026

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PO Box 130163
Ann Arbor, MI
48113

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