Cystic Fibrosis Pakistan-Patient Support Services Trust

29/03/2026

May 2026: CF clinic in PIMS Islamabad, DHQ Teaching Hospital Sargodha and Lahore Children’s Hospital - Inn Shaa Allah

Looking forward to travel to Pakistan and conducting CF clinics in Punjab:

04/05/2026: Children’s Hospital, PIMS, Islamabad

06/05/2026: DHQ Teaching Hospital, Sargodha

08/05/2026: The Children’s Hospital, Lahore

I am grateful to all the local multi-disciplinary team members for their enthusiasm, cooperation, and participation in the above clinics. With their efforts we are now able to offer free genetic testing for CFTR mutations at PIMS last, Islamabad. We are hoping to start sweat testing at PIMS soon also. Free genetic testing is already available at Indus Hospital Karachi, where sweat testing will be available soon also, Inn Shaa Allah.

Trikafta is currently being given free to the eligible patients in Indus Karachi, Indus Lahore and Lahore Children’s Hospital. This is likely to be extended to PIMS Islamabad, Inn Shaa Allah

We will continue to expand the CF services in other parts of Pakistan. Faisalabad and Sargodha in Punjab are already under consideration. Any medical colleagues willing to cooperate and set up CF services in their locality, please liaise with myself.

Lots of duaas for all the CF families for shifa e kamila.

Dr Ali Akbar
Consultant Paediatrician
Paediatric Respiratory Medicine and Cystic Fibrosis
Birmingham, UK

19/03/2026

Multi-Disciplinary Cystic Fibrosis Clinic at Indus Hospital Karachi

Consultant: Dr Muhammad Fareeduddin

When: Every Friday morning

Time: 08:00 - 13:00

Clinic Nos: 31 and 37

20/02/2026

https://www.facebook.com/share/p/1LJymeyxrd/

New research from the University of California, Los Angeles (UCLA) has revealed a promising step toward a potential one-time gene therapy for cystic fibrosis.

Using a non-viral gene-editing approach, researchers successfully delivered a healthy copy of the CFTR gene into human airway cells using lipid nanoparticles - restoring up to 88–100% of normal CFTR function in early laboratory tests.

Importantly, this strategy is designed to work across many different CF mutations, offering hope for the approximately 10% of people with CF who do not benefit from current CFTR modulators.

While this research is still in the early stages, it represents an exciting proof of concept and a meaningful step toward more universal, long-lasting treatment options.

For families currently without effective therapies, this kind of progress matters. It shows a path forward.

Read the article: https://shorturl.at/gt19R

13/02/2026

Congratulations to Indus Hospital Health Network, and in particular to Dr Fareeduddin and his Cystic Fibrosis for this international recognition of CF services - well done. Alhamdu Lillah

IHHN’s Achievements at the 2026 Awards:

At the 2026 Asia-Pacific Stevie Awards, IHHN has been recognized in the following categories:

*Gold Stevie®️ Award – Innovation in Health & Wellness*
The Indus Hospital Cystic Fibrosis Program: A Breakthrough in Health & Wellness Innovation

*Silver Stevie®️ Award – Excellence in Social Impact Companies (Organizations with 100+ Employees)*
Healthcare Without Barriers: A Scalable Social Impact Model

This is an excellent achievement and recognition of the Indus Hospital's CF Team who have worked tirelessly to support families with Cystic Fibrosis

Dr Ali Akbar
Consultant Paediatrician (Paediatric Respiratory Medicine and Cystic)
Birmingham, UK
Pakistan Cystic Fibrosis Support Network

16/01/2026

CF Clinic 13/01/2026
Children’s Hospital, PIMS, Islamabad

I big thank you to the whole CF Team at PIMS for conducting the CF Clinic at PIMS last Tuesday. This was led by Dr Nadia Waheed (Consultant Paediatric Gastroenterologist at PIMS), Dr Kanwal Jahenzeb (Paediatric Pulmonologist at CMH Rawalpindi), Dr Zainab (Nutritionist at Shifa Hospital Islamabad), Dr Bisma (Physiotherapist at PIMS).and supported by Dr Maryam and Dr Tariq from PIMS.

Clinic was well attended by the CF families from many different parts of Northern Pakistan and all had given a positive and encouraging feedback.

I am grateful to the admin of PIMS for facilitating and providing the necessary venue.

We look forward to making this a regular occurrence and once such a facillty is established, Trikafta will ne available from PIMS, Inn Shaa Allah.

If anyone has any CF patients or would like to discuss any CF related issues, then please do not hesitate to leave a message with your contact number on this page and we will get back to you.

Lots of duaas for all CF families. Stay healthy, happy and blessed in 2026 nafld beyond. Aameen summa aameen

Dr Ali Akbar
Consultant Paediatric Respiratory Medicine and Cystic Fibrosis
Lead Pakistan Cystic Fibrosis Group
Birmingham UK.

31/12/2025

Happy New Year to All CF families

2025 brought hope to many CF families in Pakistan, as Trikafta was made available to eligible patients over 6 years - thanks to the Direct Relief charitand. This would not have been possible without the help and devotion of olleagues at Indus Hospitals (Karachi and Lahore) and Lahore Children’s Hospital. Many thanks to the volunteers who helped with organising the CF clinics across the country, supported genetic testing and collaborated with international CF organisations. We are determined to continue to work to improve CF services in Pakistan, secure Trikafta for children between ages 2-6 years, and make supply of CF medication easy and affordable.

Heartfelt condolences to families who lost their beloved ones in 2025 - Inna lillahi wa inna alaihi raje'oon. May Allah Ta'aala bless them with sabr e jameel and ne'mal badal. Aameen summa aameen

Wishing everyone a healthy, happy, peaceful and prosperous 2026, and beyond. Stay connected and blessed. Amen

Dr Ali Akbar
Birmingham, UK

24/12/2025

CF clinic at PIMS, Islamabad
13th January 2026:

Many thanks to the CF Team at PIMS for organising a CF clinic there. We hope this will become a more frequent and regular activity at PIMS and will benefit Children with CF from Islamabad, Rawalpindi and the Northern areas Inn Shaa Allah.

Dr Ali Akbar
Birmingham,.UK

08/12/2025

Cystic Fibrosis Clinic for Non-Trikafta Patients at Lahore Children’s Hospital- Saturday 20th December 2025.

Thank you to Prof Bano and the CF Team for organising this clinic. Clinic is open to the CF WhatsApp Group patients ONLY.

If anyone has been diagnosedwoth CF, they can contact us through this page.

Lots of duaas for all patand their families.

Dr Ali Akbar
Consultant Paediatrician (Paediatric Respiratory Medicine and Cystic Fibrosis)
Birmingham, UK

03/12/2025

4th CF Clinic at Lahore Children’s for children eligible for Trikafta - 5th and 6th December 2025

Many thanks to Prof Iqbal Bano and her Team for organising regular CF clinics at Lahore Children’s Hospital.

Lots of duaas for CF families. May Allah Ta'aala bless them speedy and full recovery. Aameen summa aameen.

Pleave a message on our page or Messenger for any queries.

Dr Ali Akbar
Birmingham, UK

25/11/2025

Sharing a story from one of our brave CFer in Pakistan

May Allah Ta'aala bless all CFers with a permanent cure. Amen.

Living with cystic fibrosis in Pakistan, I held onto hope that Trikafta would one day reach us. Against all odds, it did — and it completely changed my life.

23/11/2025

MWAP held a focused webinar titled *Living with Cystic Fibrosis in Pakistan: Challenges, Hope, and Resilience* on 21 November 2025. The session was organized by Dr. Wajiha Rizwan and moderated by Prof. Dr. Saima Batool. Prof. Iqbal Bano delivered an insightful overview of the genetic basis, diagnostic challenges and clinical features of Cystic Fibrosis in Pakistan. Participants were briefed on the importance of early suspicion, the role of sweat chloride and genetic testing, and the need for timely referral to specialized centers, especially as targeted therapies such as DNase and CFTR modulators including Trikafta are now available in Lahore and Karachi due to effort of Children's hospital Lahore pulmonology department, Dr. All Akbar, Malik sb n VC UCHS, Prof. Masood Sadiq sb.

The discussion also covered evidence based management, nutritional support, airway clearance techniques and appropriate use of nebulized antibiotics. Questions from residents and faculty focused on early signs, differentiation from asthma and recurrent pneumonia, availability and cost of new therapies and referral pathways. The webinar strengthened understanding of Cystic Fibrosis among trainees and clinicians, and highlighted growing national and international collaboration to expand services across Pakistan. MWAP acknowledges the valuable contribution of Prof. Iqbal Bano and the active participation of attendees.

@⁨Dr Iqbal Banu⁩ thank you for your valuable time. It was indeed among one of the most well attended webinars due to a legendary speaker like you.