02/04/2026
Courtney Macy’s Journey: The Years We Kept Searching for What Would Work 💜
In our first post, we shared how Macy was diagnosed with Nephrotic Syndrome and started treatment with steroids, which is usually the first medicine doctors give to children with this condition. Many children respond well to it, but sadly, Macy’s body didn’t.
That was when we realized our journey wouldn’t be simple.
The early years of Macy’s treatment were some of the hardest for our family. We found ourselves moving from one medicine to another, holding on to hope each time that maybe this one would finally work for her.
June 2019
Macy continued taking steroids while doctors ran more tests to better understand what was happening with her kidneys. The swelling in her body was becoming more noticeable, and it was difficult watching such a small child go through it.
July 2020
Doctors confirmed that Macy was steroid-resistant, which meant the usual treatment wasn’t working for her. Because of this, she had to take a stronger steroid called Methylprednisone, hoping her body would finally respond.
March 2021
When the stronger steroids still didn’t work, Macy started Cyclophosphamide pulse therapy for two months. This medicine helps suppress the immune system so it won’t continue attacking the kidneys. But it’s a very strong medication and can cause side effects like fatigue, nausea, hair thinning, and a higher risk of infections.
At that time, finding the medicine was also incredibly difficult. Sadly, some treatments are not always easy to access in the Philippines because of limited medical resources, which made this part of the journey even more stressful for us.
May 2021
Doctors then recommended Rituximab, a powerful medicine often used for autoimmune diseases and even certain cancers. Macy went through four cycles, hoping it would finally calm the immune system that was affecting her kidneys.
June 2021
When her kidneys still needed help, we began Peritoneal Dialysis. This treatment helps remove waste and extra fluid from the body when the kidneys cannot do their job properly. A special fluid is placed into the abdomen through a small tube to help filter the blood, and it soon became part of our everyday routine.
Looking back now, those years were filled with uncertainty, long hospital days, and many difficult decisions. But they were also years where we saw just how strong and brave Macy could be, even through things most children should never have to face.
Over time, Macy’s condition progressed, and her Nephrotic Syndrome eventually developed into Chronic Kidney Disease Stage 5, the most advanced stage of kidney disease. At this point, the long-term solution is a kidney transplant.
And through it all, we keep holding on to one thing — hope that one day, Macy will get the chance to live the childhood she truly deserves.
✨ Faith, Hope & Magic ✨