Foundation For Bleeding Disorder And Rare Diseases Nepal

Foundation For Bleeding Disorder And Rare Diseases Nepal Foundation for Bleeding Disorder and Rare Diseases Nepal (FBDRDN) is a nonprofit organization.

Raise Her Voice from Nepal 🇳🇵Nepal is the land of the Himalayas, and these mountains have long inspired climbers to drea...
26/08/2026

Raise Her Voice from Nepal 🇳🇵

Nepal is the land of the Himalayas, and these mountains have long inspired climbers to dream bigger and reach higher.

This September 2026, 🏔 Manaslu मनास्लु (8,163 m) will welcome Maia Meier, who is taking a powerful global message to the summit as part of Project Elevate to raise awareness for women and girls living with bleeding disorders. 🩸

As Maia prepares her Summit Letter Series, we have a wonderful opportunity to add Nepal’s voice to this global movement.

The prompt is simple: fill in the blank.
👩 "Every woman and girl with a bleeding disorder deserves…” 👧

Maia will carry these messages to the summit of Manaslu, helping raise awareness and amplify the voices of women and girls with bleeding disorders from around the world.

🇳🇵 Let’s make sure Nepal’s voice is heard from the Himalayas.

We, FBDRDN, warmly invite both men and women to share their message by filling out the form below:

Submit your message here:
https://forms.gle/cqRK35HPUc8ZxRv6A

Let’s support Maia and Project Elevate Her by showing that every woman and girl with a bleeding disorder deserves to be heard, supported, respected, and empowered.

Thank you for raising your voice.

to

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How is hemophilia treated? 💉🩺🩸🩹🧬🧑‍⚕️Treatment for hemophilia today is very effective. With an adequate quantity of treat...
11/08/2026

How is hemophilia treated? 💉🩺🩸🩹🧬🧑‍⚕️

Treatment for hemophilia today is very effective. With an adequate quantity of treatment products and proper care, PWH can live perfectly healthy lives. Without treatment, most children with severe hemophilia will die young. An estimated 800,000 people worldwide are living with hemophilia and many do not receive adequate treatment. The World Federation of Hemophilia is striving to close this gap.

05/08/2026

Do You Know?
How is hemophilia diagnosed?? 💉🩸🩹🔬🩺

Do You Know?How is hemophilia diagnosed?? 💉🩸🩹🔬🩺Hemophilia is diagnosed by taking a blood sample and measuring the level ...
05/08/2026

Do You Know?
How is hemophilia diagnosed?? 💉🩸🩹🔬🩺

Hemophilia is diagnosed by taking a blood sample and measuring the level of factor activity in the blood. Hemophilia A is diagnosed by testing the level of factor VIII activity. Hemophilia B is diagnosed by measuring the level of factor IX activity.
These tests can be facilitated by the Hemophilia Treatment Centers and national labs, such as the National Public Health Laboratory - Teku, Teaching Hospital - Maharajgunj, and Civil Service Hospital - Minbhawan, Kathmandu, etc.

We are very delighted to share that Strengthening Hemophilia Care in Nepal, Achievements, Impact and Future Collaboratio...
01/08/2026

We are very delighted to share that Strengthening Hemophilia Care in Nepal, Achievements, Impact and Future Collaboration program was successfully conducted today. The objective of the program was continuous collaboration between stakeholders for better Care, Better Treatment and Better Future.

Where does bleeding occur most often?🩸🩹🩺
26/07/2026

Where does bleeding occur most often?
🩸🩹🩺

हिमोफिलियाका लक्षणहरू के-के हुन् ? 🩸🧬👫💉🩹
23/07/2026

हिमोफिलियाका लक्षणहरू के-के हुन् ? 🩸🧬👫💉🩹

What are the signs of hemophilia? 🩸🧬👫💉🩹
23/07/2026

What are the signs of hemophilia? 🩸🧬👫💉🩹

How severe is hemophilia? 🩸💉🩹🔬🩺
21/07/2026

How severe is hemophilia? 🩸💉🩹🔬🩺

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