IPOPI

31/05/2026

🌍 Empowering immunodeficiency research worldwide

The IPOPI 2026 Jose Drabwell Research Grant Programme is now open for applications!

Researchers, clinicians, nurses, healthcare professionals and patient organisations worldwide are invited to submit patient-centred, knowledge-generating research proposals in the field of primary immunodeficiencies and associated conditions.

IPOPI aims to fund 3 projects with grants of €10,000 each, supporting research that can help advance care, improve quality of life and drive innovation for people living with immunodeficiencies.

📅 Application deadline: 31 August 2026
📢 Results announced: 1 October 2026

Ready to make a difference in PID research?

Apply now: https://ipopi.org/ipopi-research-grant-programme-2026/

28/05/2026

🎥 In this IPOPI mini documentary, we take a closer look at the world of primary and secondary immunodeficiencies.

Through personal stories and global expert perspectives, the documentary explores the similarities, differences and diagnostic challenges of PIDs and SIDs — including the added complexity of diagnosing primary immunodeficiencies after cancer treatment.

Hear from experts in Spain and Wales, patients in Bolivia and Spain, and gain insights from India on the challenges of diagnosing immunodeficiency patients in low- and middle-income countries.

A global conversation on diagnosis, lived experience and the need for greater awareness.

Watch the mini documentary and learn more:

In this IPOPI mini documentary, we look closer at the world of prim...

26/05/2026

At IPOPI’s PID Forum in the European Parliament, MEP Tomislav Sokol highlighted the importance of adapting European health and social systems to support people living with Primary Immunodeficiencies as they grow older.

21/05/2026

IPOPI is deeply saddened to learn of the passing of Paweł Górniak, President of the Poland Association for Patients with Primary Immunodeficiencies “Immunoprotect”.

Paweł was a dedicated advocate for people living with primary immunodeficiencies and a valued member of the PID community in Poland and beyond. Through his work with Immunoprotect, he contributed to raising awareness, strengthening patient support, and giving a voice to individuals and families affected by PIDs.

His passing is a great loss to his family, friends, colleagues, and to all those who had the privilege of knowing him or working alongside him. His commitment, kindness, and contribution to the PID community will be remembered with deep respect and gratitude.

On behalf of IPOPI, we extend our heartfelt condolences to Paweł’s family, to Immunoprotect, and to the Polish PID community during this very difficult time.

May his legacy continue to inspire the important work carried forward in support of patients and families.

20/05/2026

🇧🇪 IPOPI was present at the Pharmaceutical Law Forum, held in Brussels.

The event brought together key influencers shaping European pharmaceutical law, with important discussions on legal and regulatory developments across practice areas critical for organisational success.

With insights from the European Commission, competition authorities, the EMA, and leading pharmaceutical stakeholders, the meeting offered a valuable opportunity to follow developments affecting the future of healthcare, access, innovation and patient communities. 🇪🇺🤝

For IPOPI, engaging in these conversations is essential to ensure that the voice and needs of people living with primary immunodeficiencies remain part of the broader European health policy dialogue.

20/05/2026

Join us for the upcoming IPOPI Hard Talks session, focused on the diagnosis of autoimmune pulmonary alveolar proteinosis.

The IPOPI Hard Talks series is designed for clinicians, nurses, and patient group leaders interested in PID diagnosis and clinical management. Featuring interactive discussions and lively debate between expert speakers, PID Hard Talks addresses challenging topics and helps increase expertise on crucial clinical care issues.

The session will be moderated by Martine Pergent, IPOPI President, and Dr Nizar Mahlaoui, Chair of IPOPI MAP.

Registration is required to attend: https://ipopi.org/hard-talks-apap-2026/

14/05/2026

Your voice matters! 🌍 If you rely on plasma-derived medicines (or are a caregiver or provider), take this global survey to help improve awareness, education, and advocacy.

📝 Take the survey & share: https://www.surveymonkey.com/r/IPAWpatientsurvey

12/05/2026

✨Our NMO Webchat community came together for an inspiring and forward-looking discussion on the future of World PI Week, with 25 participants from 23 countries joining the exchange.

🙏 Thank you to all NMOs who joined!

07/05/2026

IPOPI pays tribute to Professor Claude Griscelli, a pioneering figure in paediatric immunology and the PID/IEI community.

His work, vision and commitment have left a lasting legacy for clinicians, researchers, patients and families across Europe and beyond.

We extend our sincere condolences to his family, colleagues, students and all those whose lives and work were touched by him.

Read our tribute: https://ipopi.org/in-memoriam-claude-griscelli-2/

07/05/2026

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