IPOPI International Patient Organisation for Primary Immunodeficiencies (IPOPI)

The International Patient Organisation for Primary Immunodeficiencies (IPOPI) is an international not for profit organisation dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide.

📢 The IPIC2025 Congress Report is out now!Explore the key highlights and insights from the congress in Prague, which bro...
02/09/2026

📢 The IPIC2025 Congress Report is out now!

Explore the key highlights and insights from the congress in Prague, which brought together the global PID community to discuss diagnosis and clinical care.

👉 Read the report: https://l1nq.com/t1fyacf

A big thank you to everyone who applied for the IPOPI José Drabwell Research Grant Programme 2026! 💙We are delighted by ...
01/09/2026

A big thank you to everyone who applied for the IPOPI José Drabwell Research Grant Programme 2026! 💙

We are delighted by the interest in supporting research that can make a difference for the PID community.

Stay tuned for more updates!

A fascinating look at the future of advanced therapies in Brazil 🇧🇷During a recent trip to Brazil, Martine Pergent, Pres...
28/08/2026

A fascinating look at the future of advanced therapies in Brazil 🇧🇷

During a recent trip to Brazil, Martine Pergent, President of IPOPI, had the opportunity to visit the brand-new CAR-T cell production unit at the Fernandes Figueira National Institute of Women’s, Children’s and Adolescents’ Health in Rio de Janeiro.

The Institute is a leading public hospital, teaching and research centre, collaborating with laboratories in the United States, Europe and China on several innovative projects, including CAR-T cell production. The new unit is expected to become operational by the end of the year as part of a two-year clinical trial involving cancer patients.

Its work reflects an important ambition: to expand access to advanced therapies through research, innovation and technology transfer.

A warm thank you to Juçaíra Giusti, from IPOPI’s NMO in Brazil, for making this fascinating visit possible, and to Zilton Vasconcelos, Research Coordinator at the Institute, and the entire team for their warm welcome, for presenting their projects and for taking the time to answer so many questions.

It was a valuable opportunity to see first-hand how research and collaboration can help bring innovative therapies closer to patients. 🧬

14/08/2026

Something is in motion.

And this is just the beginning.

Coming soon...

We’re delighted to welcome Croatia and Panama to the IPOPI family! 🌍Both are now officially National Member Organisation...
13/08/2026

We’re delighted to welcome Croatia and Panama to the IPOPI family! 🌍

Both are now officially National Member Organisations of IPOPI, strengthening our global community and helping us continue building connections, sharing knowledge, and advocating for people living with primary immunodeficiencies around the world.

Please join us in giving them a warm welcome! 💙🧡

Say hello in the comments and help us celebrate this exciting new chapter. 👋

🌍 What did 2025 look like for IPOPI?Take a look back at the activities and achievements that shaped our year and the col...
11/08/2026

🌍 What did 2025 look like for IPOPI?

Take a look back at the activities and achievements that shaped our year and the collective efforts that continue to drive our mission forward.

👉 Read the full report: https://lnkd.in/g3ZQd6y5

✨ Explore the outcomes of the IPOPI Latin American PID Patients' Meeting.Learn about the key insights, practical recomme...
04/08/2026

✨ Explore the outcomes of the IPOPI Latin American PID Patients' Meeting.

Learn about the key insights, practical recommendations, and collaborative actions developed during two days of discussions with patient advocates and healthcare professionals working to improve the lives of people living with primary immunodeficiencies across Latin America. 💙🤝

📖 Read the full report here:https://ipopi.org/wp-content/uploads/2026/08/Latin-American-meeting-report_Final.pdf

31/07/2026

🎥 How well does the IPOPI team really know IPOPI… and each other? 👀

We decided to put ourselves to the test with a fun team quiz — and let’s just say there were some confident answers, some surprises, and a lot of laughs along the way! 😄🧠

This video is a chance to meet the people behind IPOPI in a lighter, more playful way, while also learning a little more about our work and our community.

Watch the video, play along with us, and tell us: how many answers did you get right? 💙🧡

28/07/2026

⏳ Don’t forget to submit your application!

The IPOPI 2026 Jose Drabwell Research Grant Programme is offering three grants of €10,000 to support patient-centred research in primary immunodeficiencies and associated conditions.

Researchers, clinicians, nurses, healthcare professionals and patient organisations from around the world are encouraged to apply.
We are looking for projects that can generate new knowledge, improve care and quality of life, and make a meaningful difference for people living with immunodeficiencies.

📅 Application deadline: 31 August 2026
📢 Results announced: 1 October 2026

Don’t leave it until the last minute — submit your proposal today:
🔗 https://ipopi.org/ipopi-research-grant-programme-2026/

🌍 The first African Registry for Inborn Errors of Immunity (IEI)/Primary Immunodeficiencies (PIDs) is now launching!Deve...
21/07/2026

🌍 The first African Registry for Inborn Errors of Immunity (IEI)/Primary Immunodeficiencies (PIDs) is now launching!

Developed by the ASID Registry Team in collaboration with IPOPI and African patient organisations, this important initiative will help improve our understanding of IEI/PID across Africa and support better care for patients.

📢 If you are an African healthcare professional involved in the diagnosis or care of people with IEI/PID, we invite you to complete a short survey.

📝 Take the survey here in English: https://www.surveymonkey.com/r/ASIDregistry-EN
📝 Take the survey here in French: https://fr.surveymonkey.com/r/ASIDregistry-FR

Your input will help:
✅ Build the African IEI/PID Registry
✅ Identify current practices and needs
✅ Strengthen research and advocacy
✅ Improve care for people living with IEI/PID across the continent

Please share this survey with colleagues who care for IEI/PID patients, including paediatricians, immunologists, internists, haematologists, infectious disease specialists and pulmonologists.

For more info visit: https://asidregistry.com/

Together, we can help build a stronger future for the IEI/PID community in Africa.

Adres

Peter Gielenstraat 52
Maastricht
6218TW

Meldingen

Wees de eerste die het weet en laat ons u een e-mail sturen wanneer IPOPI nieuws en promoties plaatst. Uw e-mailadres wordt niet voor andere doeleinden gebruikt en u kunt zich op elk gewenst moment afmelden.

Contact De Organisatie

Stuur een bericht naar IPOPI:

Snelkoppelingen

Delen