IPOPI

16/10/2026

16/10/2026

Day 3 at the IPOPI Global Patients Meeting 💙

We started the day with PIDs and SIDs, how they connect and what the warning signs look like, with NMOs from Germany, Argentina and the USA sharing how they're bringing SIDs into their work. Then came the Annual General Meeting, followed by a deep dive into advanced therapies, from transplant to biotherapies, plus the realities of the patient journey, from transition to adult care to living with PID in the golden years.

We wrapped up with gene therapy: a patient's story, the latest science and a big question to close on. How do we improve access?

Thank you to every speaker, moderator, sponsor and member of the community who made it happen. 🧬

16/10/2026

Day 2 at the Global Patient's Meeting in Maastricht 💙

Access to new medicines, plasma, mental health, diagnosis and genetic testing. A day of learning, sharing and moving PID care forward, together.

Thank you to everyone who took part. On to Day 3! 🙌

10/10/2026

🎙️ Immunity Pulse is back!

IPOPI’s podcast returns with a special two-part conversation, moderated by Leire Solis and featuring Matthew Hotchko, Prof Peter Jaworski and Whitney Ayoub.

Three voices, one conversation — exploring the topic from different perspectives and bringing together experience, expertise and the patient community.

🎧 Part 1 is out now: https://open.spotify.com/episode/38o781MQ1LiwrdQtsj06Si?si=6679f873f9aa44df

And the conversation continues soon…
📅 Part 2 will be released on 19 October.

Listen now and stay tuned for the second part! 💙🧡

Immunity Pulse · Episode

10/10/2026

💛 Thank you for being part of International Plasma Awareness Week 2026.

This week was about awareness, gratitude and, above all, people — donors, patients, families, healthcare professionals and everyone helping to make plasma more visible.

Every conversation, every share and every donation helps move us towards a future where more people understand the importance of plasma and more patients can access the treatments they need.
Our hope is simple: that awareness keeps growing, that more people choose to donate, and that together we continue building a stronger future for patients around the world.

To everyone who supported, shared, learned and donated: thank you. 💛

One donation. One shared journey. And many reasons to keep going.

09/10/2026

✨ The wait is over. The new IPOPI is here. 💙🧡

A new look. A new visual identity. But the same commitment to the immunodeficiency community that has always been at the heart of IPOPI.

Our new identity reflects who we are today: global, connected and united — patients, families, clinicians, advocates and organisations working together towards a brighter future.

And at the centre of it all, our mission remains the same:
United for Immunodeficiency Patients.

This is more than a new logo.
It’s the next chapter of IPOPI.

💙 Same mission.
🧡 Stronger together.
✨ Brighter future.

Welcome to the new IPOPI.


3 min

09/10/2026

🎶💛 More than just a song, it’s a message of hope, strength, and solidarity. 💙

For International Plasma Awareness Week (IPAW) 2026, Sara Merckx ft. IPOPI brings you "Don’t Give Up on Me", a song dedicated to raising awareness of the importance of plasma donation and the people whose lives depend on plasma-derived medicines.

Because behind every donation, there’s a life, a story, and a reason to never give up. 💛

🎧 Turn up the volume, feel the message, and help us spread the word!

▶️ Listen now on Spotify:
https://open.spotify.com/intl-pt/album/40IRpwjdV6KE8Y2Lc86nfH