SBHAN "Spina bifida and Hydrocephalus Association In Nigeria"

  • Home
  • Nigeria
  • Lagos
  • SBHAN "Spina bifida and Hydrocephalus Association In Nigeria"
Website

SBHAN "Spina bifida and Hydrocephalus Association In Nigeria" Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from SBHAN "Spina bifida and Hydrocephalus Association In Nigeria", Non-Governmental Organization (NGO), C/O FFF Office/15 Charity, New Oko Oba. Abule Egba, Lagos.

Spina Bifida and Hydrocephalus Association in Nigeria (SBHAN) is a national association established to promote the rights, inclusion, and well-being of persons living with Spina Bifida and Hydrocephalus (SBH) in Nigeria.

12/10/2026

It is very easy to look down on a child born with a neurological condition like Spina Bifida or Hydrocephalus.

Of course, everyone wants a healthy child and does not want to associate with disability. Iyabo Oguntiloye, mother to our super warrior, Oguntiloye Oluwafunto Boluwatife, however re-emphasises the need to accept such a child, treat them with dignity and respect and see them as a creation from above.





11/10/2026

On this International Day of the Girl Child, SBHAN "Spina bifida and Hydrocephalus Association In Nigeria" joins the global call to end child marriage and invest in the rights, protection and empowerment of every girl.

Girls living with Spina Bifida and Hydrocephalus (SBH), as well as girls with other disabilities, must not be left behind. They deserve equal opportunities, inclusive education, access to healthcare, protection from abuse and discrimination, and the chance to participate fully in society.

We call on governments, parents, caregivers, communities and other stakeholders to protect girls' rights, challenge harmful cultural practices and create an environment where every girl can thrive without fear, stigma or discrimination.

A girl is a child with rights, not a bride. Protect her childhood. Invest in her future. Empower her to become all she can be.
Together, let us build a society where every girl is safe, valued, included and empowered to fulfil her dreams.





11/10/2026

Caring for a child born with Spina Bifida and Hydrocephalus (SBH) is a journey that comes with so many difficulties.

It feels like there is no hope in sight, which can create many distressing moments. Our energetic Magdalene Chioma, mother to our phenomenal Chibuike, reminds us to seek faith in times like these because it can give us the needed strength and courage to keep going and pull through obstacles.

Let faith always be a guide for you on this journey.





10/10/2026

My journey living with Spina Bifida

Written by Daniel Kadiri

My name is Daniel Kadiri. I am 28 years old. I was born with Spina Bifida. My journey started after the doctor saw something at my back. It was explained to my parents and was advised that surgery must be done to close it.

It took a while for my parents to understand what it really was because they had never seen this type of thing before.

They were hoping everything was going to be over after the surgery was done, but they later realised that it was a life time condition when they joined Festus Fajemilo Foundation (FFF).

They started going for seminars and support group meetings and understood ways in which they can take care of me like the bowel washout and clean intermittent catheterisation (CIC).

I can now relate with the society at large because I have my self confidence back. Today, I have a national diploma in Business Administration and Management and I am an advocate for Spina bifida and Hydrocephalus in Nigeria.





09/10/2026

To Someone Who Has Given Up

Written by Aliya Yusuf (Oluwa Fimidaraire)

I know how heavy that frustration feels. I know what it’s like to work hard, hope big, and then watch a door slam shut because the world wasn’t built for you. It’s okay to grieve that disappointment—your feelings are valid.

But please don’t let that setback be the end of your story. Your dream of education is not “too much” to ask for. You deserve to learn, to grow, to chase the things that light you up. There will be other doors—they might look different, they might take longer to find, but they exist.

Look for support: reach out to organizations that help students with disabilities, talk to your family or trusted friends, connect with other people who have been where you are. You don’t have to carry this alone. And remember: your disability is not a flaw. The system that excludes you is.

Keep fighting, keep hoping, keep believing in yourself. The world needs your voice, your talents, and your perspective. Your education is worth the struggle, and you are worth the effort. Don’t give up—brighter days are ahead.





08/10/2026

From Survival to Thriving: The Story of a Hydrocephalus Warrior | Part 4

Written by Oguntiloye Oluwafunto Boluwatife

My story is not a story about having an easy life.
It is a story about continuing despite difficulty.
It is a story about faith.
It is a story about resilience.
It is a story about purpose.
And above all, it is a story about God's faithfulness.
After everything I have been through, I can look back and say:
God has been faithful.
There were moments i did not know what tomorrow would bring.
But tomorrow came.
There were moments i was afraid of.

But I kept going.
There were moments when the journey seemed too long.
But I kept moving.
And today, I am here not because the journey has been without challenges, but because the challenges did not have the final word.

So, on this Spina Bifida and Hydrocephalus Day, I don't want my story to simply make you emotional.
I want my story to make you think.
I want you to rethink disability.

I want you to rethink what is possible.
I want you to look at someone with hydrocephalus and see more than a shunt.
Look at someone with spina bifida and see more than a diagnosis.
Look at a person with a disability and see a human being with potential.

And if there is one thing I want you to remember from my story, let it be this:
I survived what was meant to break me.
I continued when it would have been easier to give up.
And now, I am choosing not merely to survive, but to thrive.
My name is Oluwafunto Oguntiloye.
I am a hydrocephalus warrior.
I am an advocate.
I am a journalist.
I am a voice.
I am a testimony.
And my life is a reminder that a diagnosis may describe a condition, but it does not define a destiny.
From survival to thriving, that is my story.

The End.





07/10/2026

From Survival to Thriving: The Story of a Hydrocephalus Warrior | Part 3

Written by Oguntiloye Oluwafunto Boluwatife

My journey has not been perfect.
I have experienced pain.
I have experienced uncertainty.
I have had to face medical challenges that many people may never understand.
But one thing I have learned is this:
Your hardest chapter does not necessarily become the title of your story.

A difficult beginning does not mean a hopeless ending. And surviving something difficult does not mean you cannot go on to build a meaningful life.

Today, I want to speak particularly to every child, young person and adult living with spina bifida or hydrocephalus.
To every parent who is worried about the future of their child.

To every person who has ever looked at their body and wondered, Will i ever be able to achieve my dreams?
I want you to know this:
Your diagnosis is part of your story, but it does not have to be the whole story.
You are more than your condition.
You are more than your medical history.
You are more than the number of surgeries you have undergone.
You are more than the scars on your body.
There is still life.
There is still a purpose.
There are still dreams.
There are still possibilities.
And there is still a future.

To parents, I say: don't let fear define the future of your child.
Give them love.
Give them education.
Give them opportunities.
Give them independence where possible.
Most importantly, let them know that their disability does not make them less valuable.

To healthcare professionals, thank you for standing in the gap for people like us.
Every surgery.
Every consultation.
Every diagnosis.
Every follow-up.
Every decision to keep searching for answers.

These things matter.
Sometimes, the patient may not have the words to express how much your care means.
But it matters.

To society, I have one request:
Don't just celebrate with us once a year.
Create a society where persons with disabilities can live with dignity every day.

Create accessible environments.
Create opportunities.
Listen to our voices.
Include us in conversations about our lives.
And don't assume that because someone has a disability, they have nothing to contribute.
Sometimes, the person society overlooks may be carrying a gift that the world desperately needs.





06/10/2026

From Survival to Thriving: The Story of a Hydrocephalus Warrior | Part 2

Written by Oguntiloye Oluwafunto Boluwatife

My story will not be complete without acknowledging God first as my number one factor, and also for blessing me with amazing parents and siblings, and also for positioning destiny helpers at every point in my life.

That is why I call my story From Survival to Thriving because survival was only the beginning. For many people, when they hear the word hydrocephalus, they immediately think about the medical condition.

They think about the shunt.
They think about the surgeries.
They think about the hospital.
But there is a person behind that diagnosis.

There is a dream behind that diagnosis.
There is a voice behind that diagnosis.
There is a future behind that diagnosis.

And that is one of the greatest lessons my life has taught me. Please don't reduce a person to their diagnosis. I am not just hydrocephalus.

I am Funto.
I have dreams.
I have talents.
I have a voice
I have something to contribute to society.
And I have a story worth hearing.

My journey has also taught me that disability does not mean inability.
Yes, there may be things that are difficult.
Yes, there may be limitations.
Yes, there may be days when the body does not cooperate with the dreams in our hearts but a disability should never automatically become a sentence that says, you cannot.

Sometimes, what a person needs is not pity.
Sometimes, they need opportunities.
Sometimes, they don't need someone to speak for them.
They need someone to listen to them.
Sometimes, they don't need society to lower its expectations of them.
They need society to remove the barriers standing in their way.

This is why I chose to use my voice.
Through journalism, disability advocacy and conversations about hydrocephalus and disability, I want people to understand that persons with disabilities are not objects of sympathy.We are human beings with dreams, abilities, responsibilities, talents and purpose.

And I want the world to see beyond the wheelchair.
Beyond the walking aid.
Beyond the scar.
Beyond the shunt.
Beyond the diagnosis.
See the person.
See the potential.
See the possibility.
..To be continued





05/10/2026

From Survival to Thriving: The Story of a Hydrocephalus Warrior

Written by Oguntiloye Oluwafunto Boluwatife

My name is Oluwafunto Oguntiloye, and I am a person living with hydrocephalus. But today, I am not standing before you simply as someone with a medical diagnosis.

I am standing here as a survivor, an advocate, a journalist, a voice for persons with disabilities, and a living testimony of the faithfulness of God.

My story began shortly after I was born. It was after my naming ceremony that they noticed my head was bigger than usual and I was diagnosed with hydrocephalus, and at just about two months old, I underwent my first VP shunt surgery.

At an age when I was too young to understand what was happening, my life had already taken a different path.
Over the years, the journey has included hospital visits, procedures, pain, uncertainty, recovery and surgeries.

I have gone through six different surgeries in my lifetime, including surgeries relating to my VP shunt, tissue-release surgery and surgery for appendicitis.

There were moments when I asked questions. There were moments of fear.
There were moments when the pain was difficult to explain.

There were moments when I wondered what the future would look like.
And there have been seasons when I simply had to hold on to my faith and believe that somehow, I would come through.

But here I am.
Still standing.
Still dreaming.
Still working.
Still speaking.
Still advocating.
Still believing.
And still becoming.
..To be continued





02/10/2026

Discrimination is one of the most sad and painful life experiences of a person living with Spina Bifida and Hydrocephalus (SBH).

It can break one's spirit. It can make one give up and not see anything positive about living life as they should. Our phenomenal youth representative, Opeyemi, however reminds us that when we accept our disability, we are able to overcome discrimination and fight for what's right.

Let's use this month of SBH awareness to preach acceptance, love and empathy.

Remember, our ability is stronger than our disability. 💪





Address

C/O FFF Office/15 Charity, New Oko Oba. Abule Egba
Lagos
234

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Website

Alerts

Be the first to know and let us send you an email when SBHAN "Spina bifida and Hydrocephalus Association In Nigeria" posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category