The Muscular Dystrophy Campaign Nigeria

06/10/2026

Mental Health and Living with Muscular Dystrophy: Q & A 2 with Dr Ogechi Sylvia Eze .sylvia

04/10/2026

TMDCN Community Conversations

Mental Health and Living with Muscular Dystrophy: Pt1 Q & A with Dr Ogechi Sylvia Eze .sylvia

03/10/2026

TMDCN Community Conversations

Mental Health and Living with Muscular Dystrophy: The Experience

23/09/2026

We successful launched TMDCN Community Conversations on Saturday 19.09.2026.

TMDCN Community Conversations is an online programme that brings together people living with muscular dystrophy and other neuromuscular conditions, families and carers, healthcare professionals, advocates and other members of the community.

Through open and meaningful discussions, the programme combines lived experiences and expert insights to explore the realities of living with muscular dystrophy, provide reliable information, answer questions, and create opportunities for connection and support.

In short: Real Stories. Expert Insights. Meaningful Conversations.

One thing people wanted was for the programme to be on Tiktok. And we listened.

Subscribe to our Tiktok channel using the link below

7 Followers, 6 Following, 2 Likes - Watch awesome short videos created by TMDCN

19/09/2026

Less than an hour to go

Please join us by 12noon today as we discuss muscular dystrophy and the mental health impacts.
https://www.instagram.com/reel/Dc2oTyyqZ90/?stkn=czF6MDdqYzl0cXdy

31/08/2026

TMDCN Community Conversations | Launch Series

What does it really mean to live with muscular dystrophy — beyond the physical challenges?

Join us as we explore Mental Health & Living with Muscular Dystrophy, featuring perspectives from lived experience and medical expertise.

This is an interactive conversation where you can listen, share your thoughts and ask questions directly to our speakers.
📅 19 September 2026
⏰ 12:00 WAT | 13:00 BST
🔗 Register: https://us02web.zoom.us/meeting/register/BrgK0R6VTM-TFxGb_5u5cQ

Come with your questions. Let’s have the conversation together.

RareDisease DisabilityAwareness

05/08/2026

Today, TMDCN celebrates 7 years of impact.

It has been seven years of standing with individuals and families living with muscular dystrophy, raising awareness, providing support, and giving hope.

As TMDCN's Community Engagement Coordinator and Virtual Administrator, it has been a true privilege to serve throughout this journey.

Over the years, we have taken awareness campaigns to several states across Nigeria, educating healthcare workers, nursing mothers, teachers, market women, and communities about muscular dystrophy - its early signs, available care, and the importance of compassion and inclusion.

Our commitment has remained unwavering. We have provided mobility equipment, supported small business start-ups, created awareness, reduced stigma, and built a community where no one has to face this journey alone.

The impact is evident. More families are informed. More healthcare professionals can recognise the signs earlier. More individuals and families are receiving the support they need.

This year, we reached a significant milestone as TMDCN joined the TREAT-NMD Global Registry Network. This achievement strengthens opportunities for research collaboration, improves healthcare planning, supports future clinical trials, and contributes to the development of better treatments for people living with neuromuscular diseases.

None of this would have been possible without the vision, dedication, and leadership of our Founder/CEO, alongside the incredible TMDCN team whose passion continues to drive our mission forward.

To every donor, volunteer, partner, supporter, and well-wisher - thank you. Your generosity, encouragement, and belief in our mission have made these seven years possible.

Here's to seven years of service, hope, and impact - and to many more years of transforming lives.

Cheers to us! 🥂

@7

10/07/2026

The Muscular Dystrophy Awareness Campaign at Ubakala Health Centre.

On Wednesday, 8th July, 2026, my colleague and i had the opportunity of visiting Ubakala Health Centre, Umuahia South Local Government, Abia state for a Muscular Dystrophy Awareness Campaign.

It went really well. We were able to sit with dedicated health care workers, nursing students and nursing mothers to talk about what muscular dystrophy is, and also signs of muscular dystrophy.

The engagement was heartfelt. The questions were many. The willingness to learn gave us so much hope..

A big thank you to the matron and staff of Ubakala Health Centre for the warm welcome and for creating space for this important conversation.

Together, we continue to spread awareness, offer support and stand with families.

Dystrophy Awareness Campaign.

Health Centre state

30/06/2026

19/04/2026

As part of our ongoing awareness campaign in North Central Nigeria, we are pleased to share key highlights from interview with Benue TV Talk Health programme held on 7th April 2026, which focused on:

“Muscular Dystrophy as a Rare Disease: Early Signs and the Importance of Early Diagnosis and Treatment.”

Summary
- Understanding Muscular Dystrophy
Muscular dystrophy is a group of genetic conditions that cause progressive muscle weakness, often beginning in early childhood. It significantly impacts mobility, independence, and overall quality of life.

- Early Signs to Watch For

The discussion emphasized the importance of early recognition, with key symptoms including:
• Delayed walking in children
• Frequent falls
• Difficulty climbing stairs
• Noticeable muscle weakness

Early identification is critical to ensuring timely intervention and support.

- Why Early Diagnosis Matters

Early diagnosis plays a vital role in:
• Improving symptom management
• Enabling access to appropriate care and therapies
• Enhancing the quality of life for individuals living with the condition

- Treatment and Support

While there is currently no cure, effective management strategies include:

• Physiotherapy
• Ongoing medical care
• Occupational support
• Strong family and community support systems

- Call to Action

The programme highlighted the urgent need for:
• Increased public awareness
• Early screening and diagnosis
• Strengthened healthcare systems
• Collaboration among stakeholders to better support affected individuals and families

- Final Message

Through awareness, early action, and collective support, we can improve outcomes and bring hope to individuals and families living with muscular dystrophy.

Watch the full video here https://tinyurl.com/r8k42dsb

Special thanks to Dr Ikechukwu Ezeike - TMDCN North Central Coordinator, Nwafor Gabriel - TMDCN Public Health Advocate and Blessing Ojeh - TMDCN Disability Inclusion Advocate, and for their collaborative support