18/05/2026
Rare Diseases International is very pleased to have co-hosted the side-event āAdvancing Health Equity for Bleeding Disordersā at the 79th World Health Assembly alongside the World Federation of Hemophilia / FĆ©dĆ©ration mondiale de lāhĆ©mophilie, the Ministry of Health of the Republic of Armenia, and the Swiss Haemophilia Society, with co-sponsorship from the Ministry of Health & Population - Egypt.
š The event comes at a pivotal moment for the global bleeding disorders community, ahead of the anticipated adoption of the Member State-led WHA Resolution on āGlobal Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disordersā during WHA79.
š£ļø RDI was represented by Council Director, Nadiah Hanim Abdul Latif, who highlighted the importance of long-term advocacy, coalition-building, and reframing rare diseases and bleeding disorders not only as specialised medical conditions, but as issues of equity, universal health coverage, diagnostics, workforce capacity, and health system resilience. She also emphasised that meaningful progress has been driven through sustained collaboration between patient organisations, clinicians, researchers, governments, and multilateral actors over many decades.
The discussion reinforced the importance of embedding bleeding disorders within broader health systems and equity conversations, while recognising that the adoption of a WHA Resolution is not the finish line, but the beginning of the implementation journey toward equitable access to diagnosis, care, and treatment worldwide.
š” As Nadiah noted during the discussion: āProgress in global health is rarely built in moments, it is built through decades of persistence, partnership, and the quiet determination of communities who refused to let the most vulnerable remain unseen. This Resolution aims to provide the direction, language, visibility, and momentum needed to advance more equitable care for people living with haemophilia and other bleeding disorders worldwide.ā
