ME, CFS & Fibromyalgia Alliance - Malta Vo/818

24/05/2026

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12/05/2026

💜 Jum ta’ Għarfien dwar il-Fibromyalgia u l-ME (Myalgic Encephalomyelitis)

✨ Flimkien b'vuċi waħda✨

Illum ningħaqdu ma’ miljuni ta’ nies madwar id-dinja biex nonoraw lil dawk kollha li jgħixu bil-Fibromyalgia u l-Myalgic Encephalomyelitis (ME) — żewġ kundizzjonijiet kumplessi, li jbiddlu l-ħajja u ħafna drabi jibqgħu inviżibbli għal min iħares minn barra.

Għal ħafna mill-membri tagħna, kull jum jibda b’battalja li ħadd ma jara:

- Uġigħ mifrux li jiċċaqlaq minn ġol-ġisem bla twissija
- Għeja kbira u profonda li l-ebda mistrieħ ma jtaffiha
- Ċpar mentali li jtellifhom il-konċentrazzjoni, il-memorja u l-fokus
- Sensittività żejda, sturdament, u irqad li qatt ma jġedded
- Post‑exertional malaise, fejn anke biċċa xogħol żgħira tista’ twassal għal ġranet ta’ kollass u eżawriment.

Dawn il-mardiet ma jieqfux lejl u nhar, xogħol, responsabbiltajiet tal-familja jew ix-xewqa sempliċi li tgħix ħajja normali.
U minkejja dan kollu, il-membri tagħna jibqgħu jqumu fuq saqajhom — għall-familji tagħhom, għall-komunità tagħhom, u għal xulxin.
Il-kuraġġ tagħkom huwa kwiet imma qawwi. Ir-reżiljenza tagħkom inviżibbli imma reali.

🎨 Tnedija ta’ Żewġ Posters Ġodda
Illum nehdejna żewġ posters ġodda, iddisinjati b’talent minn Helga Tonna bl-għajnuna kreattiva ta’ Rebecca Camilleri.
Ix-xogħol tagħhom jagħti vuċi lil dak li ħafna drabi jibqa’ moħbi — arti li tirrakkonta l-verità, id-dinjità u t-tama tagħna.

💜 Lil Membri u Familji Tagħna kuraġġ.

Kunu ħanina magħkom infuskom.
Tħallux il-marda tiddefinixxi l-valur tagħkom jew is-saħħa tal-ispirtu tagħkom.
Qed tiġġieldu battalji li ħafna qatt ma jifhmuhom — u xorta tibqgħu tqumu jum wara jum.

M’intomx waħedkom.
M’intomx minsijin.
Aħna komunità li tgħajjat- flimkien b'vuċi waħda.

✨ Il-Motto Tagħna:
Flimkien b'vuċi waħda.
Flimkien Inqajmu l-Għarfien, Nappoġġjawkom u Nemmnukom.
Artwork Helga M Tonna

12/05/2026

💜 Fibromyalgia & Myalgic Encephalomyelitis Awareness Day

✨ Together With One Voice ✨

Today, we join millions around the world to honour all those living with Fibromyalgia and Myalgic Encephalomyelitis (ME) — two complex, life‑altering, and often invisible conditions that reshape every part of daily life.

For many in our community, each day begins with a battle the world cannot see:

- Widespread pain that moves through the body like a storm
- Crushing fatigue that no amount of rest can fix
- Cognitive fog that steals clarity, memory, and focus
- Sensory overload, dizziness, headaches, and unrefreshing sleep
- Post‑exertional malaise, where even small tasks can trigger days of collapse

These illnesses do not pause for birthdays, work, family responsibilities, or the simple desire to live freely.
Yet despite the hardship, our members continue to show up — for their families, for their communities, and for each other.
Your courage is quiet but mighty. Your resilience is unseen but undeniable.

🎨 Launching Our New Awareness Posters
Today we proudly unveil two new posters, beautifully designed by Helga Tonna with the creative support of Rebecca Camilleri.
Their work gives visibility to the invisible — transforming our lived reality into art that speaks truth, dignity, and hope.

💜 To Our Members
Hold on.
Be gentle with yourselves.
Do not let this illness define the limits of your worth or the strength of your spirit.
You are fighting battles most people will never understand — and still, you rise.

You are not alone.
You are not forgotten.
You are part of a community that stands together with one voice.

✨ Our Motto:
Together With One Voice — We Raise Awareness, We Support, We Believe.

01/05/2026

MESupport.co.uk has gone blue for International M.E. Awareness Month. The is recognised as the official flower for Myalgic Encephalomyelitis. They are seen as a symbol of personal resilience, reminding us to hold onto hope & find strength during challenging times 💙

01/05/2026

For this year UK lobbying MPs for a service for the very severe. This action grew out of the failure of the DHSC to start commissioning a specialisted service for the very servere.

We are putting together a video which will include photos/short videos of the very severe. There is no dialogue. We can’t tell you exactly where we plan to show this at the moment but it will be outside, in a public place, as welll as online.

If you have an existing photographs or video that you think is suitable please get in touch, email [email protected].

This video will include short video shots (30 seconds or less) of the very severe, just faces, lying in bed with eye masks on, drips or feeding tubes - whatever the reality of life is for the very severe. Ideally in portrait mode. There is no dialogue and the images can be old ones and can include photographs.

We are asking for:
1. A very short video (or photo) of a person lying in bed or several short videos holding this shot
2. Please show the reality of someone who is very severely ill lying in bed, wearing eye masks etc or whatever they need
3. You can include video of the room and bed but we would like you to concentrate on faces so hold that shot still if possible
4. Don’t worry about getting a perfect shot as any video will be edited
5. Portrait mode if possible
6. We don’t need any dialogue
7. Photographs are welcome if video is too taxing
8. Deadline - 5th May.

Please get in touch with if you need any further details [email protected].

We are also planning an online campaign to lobby MPs to urge them to get Wes Streeting MP to listen to our call for a specialised service for the very severe.

If you do upload videos or photographs please read this disclaimer first:
By recording/uploading or sharing a video or photograph with us you are giving MEAction UK permission to use it in this and future campaigns indefinitely. will have the right to edit and cut your video as they deem necessary. You hereby release any and all claims against any person or organisation utilising this material for marketing, educational, promotional, and/or any other lawful purpose whatsoever. You acknowledge and give permission for MEAction UK to show your video or photo publicly.

01/05/2026

Good morning to
Today starts May Awareness month.
We would like you to share content which clearly shows what these two Illnesses can do to our bodies. .
Without you this awareness campaign cannot work.
The fact that it is also election month means that more people are using social media and therefore through your collaboration by sharing videos, images and experiences, other people may learn and perhaps begin to und6these two disabling illnesses.
You may find content on Pinterest, Instagram, Facebook or even you may create your own.
I am sharing some below to give it a start.

01/05/2026

03/12/2025

December 3rd marks the International Day of Persons with Disabilities, established by the United Nations in 1981 to raise awareness and increase understanding of disability issues and the commitment to ensuring dignity, rights, and well-being of people with disabilities.
On 3 December 2025, the United Nations will commemorate the International Day of Persons with Disabilities (IDPD) under the theme “Fostering disability-inclusive societies for advancing social progress.”
Both Fibromyalgia and Myalgic Encephalomyelitis are invisible disabilities and while we have moved forward in our recognition as disabled people there is still great need for awareness among people to better understand our daily struggles.

17/11/2025

Revoca una sentencia por hacer una “incorrecta valoración del cuadro clínico de la administrativa”

17/11/2025

https://www.deia.eus/actualidad/sociedad/2025/07/29/tsjpv-otorga-incapacidad-permanente-fibromialgia-9928665.html