Lennox Gastaut Syndrome Connect Srilanka. සංකීර්ණ හා දුර්ලභ ළමා අපස්මාරය

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  • Lennox Gastaut Syndrome Connect Srilanka. සංකීර්ණ හා දුර්ලභ ළමා අපස්මාරය

Lennox Gastaut Syndrome Connect Srilanka. සංකීර්ණ හා දුර්ලභ ළමා අපස්මාරය LGS is a rare and Severe kind of Epilepsy that starts in childhood.

This condition is hard to treat,but emotional support is key to give the best quality of lives to LGS worriors and to caregivers.We believe that no one with LGS should go it alone.

19/01/2026

Together we make a difference.

Hope and a Future 2026 – Awareness EventOn behalf of HOPE Alliance – USA, I would like to express our sincere appreciati...
13/01/2026

Hope and a Future 2026 – Awareness Event

On behalf of HOPE Alliance – USA, I would like to express our sincere appreciation to everyone who contributed to making this year’s Hope and a Future 2026 Awareness Event a truly meaningful and successful occasion.

A special word of gratitude to Darla K. Davison, Dan Davison and Kathy Good Short.

This even was kindly sponsored by Kathy in loving memory of Craig, Whose life and compassion continue to inspire and give hope to many. We remember Craig with gratitude and respect.

This event was made even more special by the presence of our 40 special needs children and their families, who were the heart of this gathering and the true reason behind everything we do.

We are deeply grateful to our wonderful community, sponsors, volunteers, and HOPE families for their invaluable role in bringing this event to life.

Special Recognition and Appreciation
HOPE Alliance – USA – Organiser and Main Sponsor
Levant Wesleyan Church (New York)
West End Fellowship Church (Pennsylvania)
South Asia Access – USA – for providing food
Suigeneris Pvt Ltd and Hope Alliance – for jointly sponsoring the event T-shirts
Mr. Kithmal Gamage – Event Photography
Mr. Gayan – Videography
Cedric– Evangelical Wesleyan Church, Sri Lanka
Mrs. Jayangani, Sri Lanka Sumithrayo – Counselling services

Special Thanks to Our Professionals
Mr. Janaditha – Physiotherapist (Wheelchair House)
Ms. Shalika Shalani – Orthotist & Prosthetic Specialist (Ayati Centre & Rehabilitation Hospital, Ragama)
Mr. Dinidu Bandara -Speech and Language Pathologist

Our Dedicated Volunteers
Denis, Nalin, Dilantha,Nishanthi, Shashika, and Rasangika
With Deep Respect and Love.

We also extend our heartfelt respect and gratitude to the mothers of our late children:
Nirosha – Gihansa’s mother
Erandi Aponsu – Enosh’s mother
Erandi – Yowin’s mother
Your strength and courage continue to inspire us all.

Your partnership, kindness, and generosity are the backbone of our success. We look forward to continuing this journey together as we build hope and a future for our children and families.

Gayani Abeywardene
Director of Family Relations
HOPE Alliance – USA

The Science of Better Sleep: What Really HelpsSleep is one of the most fascinating processes in the human body. It isn’t...
16/08/2025

The Science of Better Sleep: What Really Helps

Sleep is one of the most fascinating processes in the human body. It isn’t simply “switching off” at night—it’s a carefully balanced rhythm controlled by our brain, body temperature, and internal clock. Understanding a few key points can help us improve the quality of our rest.

Sleep is a Switch

The brain has special circuits that regulate sleep and wakefulness. They work almost like a light switch: when one side turns on, the other side must turn off. This system prevents us from being half-awake and half-asleep at the same time. If the balance is disturbed—through stress, illness, or aging—falling asleep can become difficult.

Falling Asleep: More Than Closing Your Eyes

Good sleep doesn’t begin the moment your head touches the pillow. There is a short period called sleep latency, the time it takes to drift off. A shorter latency usually means your body is better prepared for rest. Several factors influence this, including stress levels, light exposure, and even body temperature.

Body Temperature and the Night

Our core body temperature naturally follows a daily rhythm. As evening approaches, it begins to fall, signaling the body that it is time to sleep. It stays lower during the night and starts to rise again just before waking, helping us feel alert in the morning.
If this natural rhythm is disturbed—by stress, irregular routines, or age—sleep may come slowly or feel unrefreshing.

Not All Sleep is the Same

Sleep occurs in cycles, alternating between non-REM stages and REM sleep.

Deep non-REM sleep is the stage that restores the body, repairs tissues, and strengthens the immune system.

REM sleep is lighter but crucial for memory, creativity, and emotional balance.
Both are important, and a healthy night includes several rounds of each.

A Simple Way to Sleep Faster

One practical tip is taking a warm shower or bath about an hour before bed. The warmth increases blood flow to the skin, which helps release body heat more quickly. After stepping out, your core temperature drops a signal that makes it easier to fall asleep.

Building Healthy Sleep Habits

Other small changes also improve sleep quality:

Keep a regular bedtime, even on weekends.

Limit bright light and screens at night.

Avoid heavy meals or caffeine close to bedtime.

Create a cool, quiet, and comfortable sleeping environment.

In short, good sleep is not an accident—it’s the result of a body and brain working in harmony. By respecting our natural rhythms and adding a few simple habits, we can all enjoy deeper, more refreshing nights of rest.

The Four Types of Intelligence Every Parent Should NurturePsychologists say that true success in life is not measured by...
16/08/2025

The Four Types of Intelligence Every Parent Should Nurture

Psychologists say that true success in life is not measured by academics alone. Human beings possess four types of intelligence, and to live fully, all four must be developed.

1. Intelligence Quotient (IQ):
This is our ability to understand, reason, and solve problems. Children need IQ for academics, mathematics, memory, and logical thinking.

2. Emotional Quotient (EQ):
EQ is about character. It is the ability to live in peace with others, adapt to challenges, act responsibly, remain honest, respect boundaries, and show kindness and humility.

3. Social Quotient (SQ):
SQ is about influence and relationships. It is the ability to create and sustain healthy friendships and meaningful connections over time.

Studies show that children with high EQ and SQ often achieve more in life than those with high IQ alone. That is why a person with great academic knowledge may still end up working for someone who has average IQ but strong EQ and SQ.

EQ reflects character. SQ reflects charisma. Both are essential for real success.

4. Adversity Quotient (AQ):
This is the newest and perhaps most vital form of intelligence. AQ measures our ability to withstand life’s hardships without giving up. It determines whether, in the face of struggles, we confront problems bravely or surrender to them. People with high AQ endure storms and come out stronger.

A Message to Parents

Dear parents, education is important, but it is not everything. Do not limit your children’s world to textbooks and exams. Give them opportunities to:

Work hard (never as punishment, but as a life skill)

Engage in sports and outdoor challenges

Explore art, music, and creativity

This way, their IQ, EQ, SQ, and AQ will grow together. They will become confident, independent, and resilient individuals — ready to face life without depending entirely on you.

Do not prepare the road for your children.
Prepare your children for the road.

Hope and a future 2025On behalf of HOPE Alliance - USA, I would like to extend my heartfelt gratitude to everyone who co...
08/02/2025

Hope and a future 2025

On behalf of HOPE Alliance - USA, I would like to extend my heartfelt gratitude to everyone who contributed to making this year’s Awareness Event a resounding success.

A special thank you to Darla K. Davison, Dan Davison, Kathy, and Craig (Hope Alliance)for their unwavering support and dedication. Your contributions continue to inspire and strengthen our mission.

We are deeply thankful to our incredible community, sponsors, volunteers, and Hope families for their invaluable role in bringing this event to life.

Special Recognitions:

HOPE Alliance- Organiser and Main Sponsor

Levant Wesleyan Church (New York)

West End Fellowship Church (Pennsylvania)

South Asia Access - USA (for providing food)

Suigeneris Pvt Ltd (for the event T-shirts)

Mr. Kithmal Gamage (for event photography)

Cedric and Sharlini (Evangelical Wesleyan Church, Sri Lanka)

Sri Lanka Sumithrayo (for counseling services)

Mr. Sameera Chandilmal (physiotheropist)-Wheelchair house

Ms. Shalika Shalani (Orthotist and Prosthetic - Ayati Centre and Rehabilitation hospital Ragama

Volunteers - Denis, Nalin , Nishanthi, Shashika and Rasangika

Your partnership and support are the backbone of our success, and we are truly grateful for your generosity and commitment.

We look forward to seeing all of you again at our next event as we continue working together to raise awareness and create meaningful change.

Gayani Abeywardene
Director of Family Relations
HOPE Alliance - USA

08/02/2025

දරුවෙකු පිළිසිඳ ගැනීම අවකාශය ඇති සෑම කාන්තාවක්ම Folic Asid මිලිග්‍රෑම් 4 ක් දිනපතා ලබා ගැනීම ඉතාම වැදගත්. එය වඩා වැදගත් .....

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