Duchenne Muscular Dystrophy Foundation Kenya-DMDFK

05/03/2026

05/03/2026

Yesterday we had a successful meeting with Heather Medlin from PPMD .We look forward to learning from such a global champion on DMD matters.Thank you for your partnership!.Thank you Pat Furlong for your incredible works at PPDD and for believing in us!.

04/03/2026

It's our time to speak out!.

04/03/2026

And we are part of the Network!.

27/02/2026

As we create Awareness on Rare Diseases tommorrow at Getrudes Hospital Muthaiga, Kenya,the pain and agony of parents and children suffering from Duchenne Muscular Dystrophy is real!. Acham is only 15 years and unable to do anything.He lost his elder brother to DMD.His younger brother shows the signs at only 5 years and he is unaware what could be ahead.There younger brother is 3 years and we pray that God shows mercy on him and the entire family.With No food,No anything we can give them hope,we can stand with this family from Tiaty,Baringo County in Kenya.Contact us at [email protected]

24/12/2025

To our Partners and the Global Duchenne Community,we are grateful for walking with us over the years.We pray that 2026 brings new hope for our boys with Duchenne and Becker Muscular Dystrophies.Together we are changing the future of our boys through advanced medication through Gene Therapies.
Big thanks to World Duchenne Organization,Parents Project Muscular Dystrophy,Research Companies and Patient Organizations for your relentless efforts through collaborations to ensure our boys get the best standards of care through trainings and workshops.
Sapphire Africa Foundation and Everett and Austin Project, thank for standing with our boys over the years.
We invite well wishers to put a smile on our our boys and their families with foodstuff,clothes,wheelchairs,small business support for parents,education,therapies etc to reach us through +254 720201619 Scolar Muthamia(Chairperson)or [email protected] for more details.
Our Bank details are:
A/C NO. : 01100358907001
NAME : DUCHENNE MUSCULAR DYSTROPHY KENYA ASSOCIATION
Currency : KES
Bank : COOPERATIVE BANK OF KENYA
Branch : WESTLANDS
Bank Code : 11
Branch Code : 036
Swift Code : KCOOKENA

17/12/2025

It was great learning at the just concluded Duchenne Patient Academy 2025 where Patient Organizations learn from each other on critical areas on Duchenne,latest research on gene therapies,collaborations and partnerships,Care centres,Standards of care for Duchenne Boys and much more!.Thanks to our global partners World Duchenne Organization,PPMD US,Duchenne Data Foundation,Patient Organizations and Research Companies!

Duchenne Patient Academy 2025 is organized by Duchenne Data Foundation in cooperation with World Duchenne Organization.Join us online on December 13 & 14 to ...

17/12/2025

A visit at Florence Wanjiru in Kikuyu mid this year.At Duchenne Muscular Dystrophy Foundation Kenya,we walk with our parents every step of the jourmey.

24/11/2025

God has provided and we thank Him!.
Paul and Sapphire Africa Foundation, thank you for your partnership!.

24/11/2025

Its all smiles to Musenya and her grandparents i after receiving her new wheelchair through our partners Sapphire Africa Foundation.