Sickle Cell Federation Of Kenya - SFK

29/04/2026

20/04/2026

On 17th April 2026, joined stakeholders, patients, healthcare workers, and partners at Kenyatta National Hospital to commemorate World Haemophilia Day under the theme: “Diagnosis: First Step to Care.”

The Ministry of Health is strengthening haemophilia care as part of ongoing health reforms under the Social Health Authority (SHA), with renewed focus on improving access to treatment and long-term support for patients.

During the event, Principal Secretary for Medical Services Dr Ouma Oluga announced plans to integrate haemophilia into the SHA benefits package. This move is expected to ease the financial burden on patients and ensure sustainable access to essential care.

The PS noted that current reforms are now moving beyond enrolment to addressing service delivery gaps, particularly hospital payments and access to quality care. He emphasized the importance of early diagnosis through increased sensitization, integration of screening into primary healthcare, and stronger referral systems to specialised facilities.

Dr Oluga also highlighted ongoing efforts to improve the availability of medical commodities and expand digital health innovations, including personalised care tools such as mobile applications and integrated health information systems to better track services and medicines.

He further called for increased investment in advanced care, including specialised services such as gene therapy, while reaffirming the government’s commitment to strengthening the health workforce and ensuring stability across the sector.

KHA patron Hon. David Sankok reiterated that a parliament petition has been filed to secure sustainable government funding for haemophilia care. Dr Richard Lesiyampe, KNH CEO reaffirmed the hospital commitment to delivering world class care.

11/03/2026

On 9th of March 2026, the Sickle Federation of Kenya (SFK) and the Kenya Haemophilia Association (KHA) held a strategic meeting with the Kenya Medical Supplies Authority (KEMSA) Director of Commercial Services, Eliud Muriithi.

The discussion focused on strengthening government procurement pathways for haemophilia treatment products while also addressing the need for consistent availability of Hydroxyurea for people living with sickle cell disease in Kenya.

KEMSA expressed its willingness to support procurement once the following steps are completed:

• Formal engagement between KHA, SFK, and the Social Health Authority (SHA).
• Commitment from treatment facilities (counties) to take off the procured products.

It was also confirmed that KEMSA currently stocks Hydroxyurea for distribution to treatment centres.

Strengthening supply systems for both sickle cell and haemophilia treatment is a critical step toward improving access to life-saving care for patients across the country.

This engagement was made possible through the support of the Novo Nordisk Haemophilia & Haemoglobinopathies Foundation (NNHF), the Novo Nordisk Foundation (NNF), the World Federation of Hemophilia (WFH), and Roche LTD.

06/02/2026

The Sickle Cell Federation of Kenya is hosting a two-day meeting (5th–6th February 2026) to strengthen its governance structures through the induction of newly selected Scientific, Research, and Patient Advocacy Committees.

As SFK prepares for the next five-year strategic period, CEO Emily Gumba shared key milestones achieved so far and reaffirmed the Federation’s mission to champion the welfare of people living with sickle cell disease.

Key highlights from the engagement:
• Participation of key partners and stakeholders, including Mr. Llyord Mwaniki from Novo Nordisk Haemophilia & Haemoglobinopathies Foundation, Mr. Abdoulsalaam from Fondation Pierre Fabre, and Dr. Gladwell Gathecha from The Ministry of Health, underscoring the importance of coordinated national action.

• Strong focus on governance strengthening, with emphasis on the role of committees in strategy, accountability, and implementation

• Commitment to building systems that position SFK as a leading patient organization in Africa, with calls for sustained investment in long-term impact.

• Recognition of SFK as a key stakeholder within the national health ecosystem, and the importance of alignment with Ministry of Health policies and guidelines.

• Emphasis on evidence-based advocacy, with data guiding priorities, decision-making, and national engagement

Overall, the meeting underscored the need for unified leadership, stronger coordination with partners, and empowered committees to drive governance, advocacy, and program delivery.

With continued support from donors and the Ministry of Health, SFK remains committed to championing evidence-based action, stronger health systems, and improved access to quality care for people living with sickle cell disease.

30/01/2026

📢 TERMS OF REFERENCE (TOR)
Sickle Cell Federation of Kenya (SFK) invites qualified suppliers for procurement, installation, and operational support of Sickle Scan devices for early detection of Sickle Cell Disease in Kenya.

Strengthening early diagnosis
Improving access to quality screening
Scan the QR code for full TOR details

For submissions & inquiries: [email protected]

30/01/2026

REQUEST FOR PROPOSALS (RFP)
Sickle Cell Federation of Kenya (SFK) invites qualified suppliers to submit proposals for the supply, delivery, installation, and support of Gazelle Hemoglobin Testing Machines (9 units).

Submission deadline: 6 February 2026
Delivery expected: End of February 2026

Submit proposals to: [email protected]
Scan the QR code for full RFP details.

19/01/2026

07/01/2026

Sickle Cell Awareness in Action Pain Management Matters

We are encouraged to see conversations around Sickle Cell Disease (SCD) gaining national attention. Increased awareness means stronger voices, better understanding, and improved support for all those living with SCD.

We proudly highlight our caregiver, Peter Ahago, who featured on KBC TV to speak on sickle cell pain management a critical aspect of improving quality of life for people living with SCD. This platform amplifies hope, knowledge, and practical solutions for our community.

To all sickle cell warriors across Kenya and the globe: your strength inspires change every day. Together, through awareness, advocacy, and unity, we can do it.
Children Sickle Cell Foundation - Kenya The Sickle Cell Awareness Foundation-KENYA Sickle Cell Warriors Association

🎥 Watch the full discussion here: https://youtu.be/XYjCZoYq1Mo?si=wduchlars6rvH2vX

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26/11/2025

🌍 “Care shouldn’t be an accident of geography.” – Prof. Ulla Hedner

❓ Why should a person’s birthplace decide their access to care? It shouldn’t.

Discover the inspiring story behind the Novo Nordisk Haemophilia Foundation - founded over 20 years ago by Prof. Ulla Hedner and a team of visionaries who believed that quality haemophilia care should be possible everywhere.

🤝 Learn how a bold idea became a global movement, empowering local leaders and transforming care in more than 87 countries.

https://nnhf.org/why-geography-should-not-decide-care/

18/11/2025

Strengthening Sickle Cell Care in Taita Taveta County

The Sickle Cell Federation of Kenya (SFK) is proud to join hands with the County Government of Taita Taveta, the Africa Sickle Cell Organization (ASCO), to strengthen the fight against sickle cell disease (SCD) in the county.

40 healthcare providers from across Taita Taveta are taking part in a Training of Trainers (ToT) programme. This initiative focuses on:
1. Improving early detection of SCD through Point-of-Care Testing (POCT).
2. Enhancing comprehensive patient management at all levels of care.
3. Building a strong network of trainers who will deliver continuous medical education to colleagues in primary healthcare facilities.

This is a 3 days training and is support by Fondation Pierre Fabre and the Agence Française de Développement under the KETAN Project, which seeks to expand early diagnosis, strengthen holistic care, and uplift the livelihoods of families affected by SCD.

By building the capacity of frontline health workers, we take a major step toward reducing complications, improving patient outcomes, and empowering communities across Taita Taveta.
Together, we move closer to a Kenya where every person living with sickle cell disease has access to timely, quality care.

11/10/2025