Tumaini Sickle cell Organization -TSCO

21/05/2026

𝐓𝐮𝐦𝐚𝐢𝐧𝐢 𝐒𝐢𝐜𝐤𝐥𝐞 𝐂𝐞𝐥𝐥 𝐎𝐫𝐠𝐚𝐧𝐢𝐳𝐚𝐭𝐢𝐨𝐧

Proud to have represented people living with Sickle Cell Disease at this week’s 𝐇𝐑𝐆 𝐋𝐞𝐚𝐫𝐧𝐢𝐧𝐠 & 𝐃𝐨𝐜𝐮𝐦𝐞𝐧𝐭𝐚𝐭𝐢𝐨𝐧 workshop, sponsored by 𝐀𝐌𝐑𝐄𝐅 𝐇𝐞𝐚𝐥𝐭𝐡 𝐀𝐟𝐫𝐢𝐜𝐚 𝐚𝐧𝐝 𝐟𝐚𝐜𝐢𝐥𝐢𝐭𝐚𝐭𝐞𝐝 𝐛𝐲 𝐍𝐞𝐱𝐭 𝐆𝐞𝐧𝐞𝐫𝐚𝐭𝐢𝐨𝐧 𝐋𝐚𝐰𝐲𝐞𝐫𝐬.

As a member of the 𝐋𝐚𝐤𝐞 𝐄𝐧𝐝𝐞𝐦𝐢𝐜 𝐇𝐞𝐚𝐥𝐭𝐡 𝐅𝐨𝐜𝐮𝐬 𝐍𝐞𝐭𝐰𝐨𝐫𝐤, Tumaini joined CSOs and partners to develop priority HRG recommendations for GC8 and strengthen community-centered malaria programming in Kenya.

We pushed for stronger integration of SCD and malaria services, accountability in care, and stigma-free access for patients and caregivers. Our voices and evidence matter in shaping policies that leave no one behind.

Thank you to 𝐀𝐌𝐑𝐄𝐅 𝐇𝐞𝐚𝐥𝐭𝐡 𝐀𝐟𝐫𝐢𝐜𝐚, 𝐍𝐞𝐱𝐭 𝐆𝐞𝐧𝐞𝐫𝐚𝐭𝐢𝐨𝐧 𝐋𝐚𝐰𝐲𝐞𝐫𝐬, 𝐚𝐧𝐝 𝐋𝐚𝐤𝐞 𝐄𝐧𝐝𝐞𝐦𝐢𝐜 𝐇𝐞𝐚𝐥𝐭𝐡 𝐅𝐨𝐜𝐮𝐬 𝐍𝐞𝐭𝐰𝐨𝐫𝐤 for creating space for lived experience to lead.

13/05/2026

Shout out to my newest followers! Excited to have you onboard!

09/05/2026

Yesterday, 8th May 2026, marked a significant milestone as the pilot 𝗩𝗼𝗹𝘂𝗻𝘁𝗮𝗿𝘆 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗚𝗲𝗻𝗼𝘁𝘆𝗽𝗲 𝗦𝗰𝗿𝗲𝗲𝗻𝗶𝗻𝗴, 𝗖𝗼𝘂𝗻𝘀𝗲𝗹𝗶𝗻𝗴, 𝗘𝗱𝘂𝗰𝗮𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗣𝗿𝗼𝗴𝗿𝗮𝗺 for university students was successfully rolled out at Jaramogi Oginga Odinga University of Science and Technology.(JOOUST)

This impactful initiative was spearheaded through a powerful collaboration between 𝗧𝘂𝗺𝗮𝗶𝗻𝗶 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗢𝗿𝗴𝗮𝗻𝗶𝘇𝗮𝘁𝗶𝗼𝗻, 𝗔𝗠𝗣𝗔𝗧𝗛 𝗞𝗲𝗻𝘆𝗮, 𝗜𝗻𝗻𝗼𝘃𝗮𝘁𝗶𝘃𝗲 𝗛𝗲𝗺𝗮𝘁𝗼𝗹𝗼𝗴𝘆 𝗜𝗻𝗰., 𝗗𝗿. 𝗦𝗮𝗺 𝗠𝗯𝘂𝗻𝘆𝗮 𝗛𝗲𝗮𝗹𝘁𝗵 & 𝗟𝗲𝗮𝗱𝗲𝗿𝘀𝗵𝗶𝗽 𝗖𝗼𝗻𝘀𝘂𝗹𝘁𝗮𝗻𝗰𝘆, 𝗠𝗮𝘁𝗶𝗯𝗮𝗯𝘂 𝗛𝗼𝘀𝗽𝗶𝘁𝗮𝗹, 𝗮𝗻𝗱 𝗦𝗶𝗹𝘃𝗲𝗿𝗹𝗮𝗸𝗲 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗖𝗼𝗺𝗽𝗮𝗻𝘆/𝗛𝗲𝗺𝗼𝘁𝘆𝗽𝗲𝗖𝗦.

Our goal is to increase awareness on Sickle Cell Disease (SCD), promote voluntary genotype screening among young people, and generate critical data that will support evidence-based advocacy and policy reform on genetic screening in Kenya.

One of the highlights of the day was a highly educative and emotionally moving performance by the JOOUST Drama Team, which boldly challenged the long-held myth that sickle cell disease is caused by witchcraft. Through drama and storytelling, they emphasized the importance of seeking proper medical care instead of relying on traditional misconceptions and harmful stigma.

We extend our sincere gratitude to the leadership of JOOUST, especially 𝗣𝗿𝗼𝗳. 𝗚𝗲𝗼𝗿𝗴𝗲 𝗔𝘆𝗼𝗱𝗼, for graciously hosting the event and for the tremendous mobilization that saw students turn up overwhelmingly for voluntary screening.

We are matching on with the initiative to all universities in Western Kenya , we are breaking stigma, promoting informed choices, and building a healthier future through awareness, science, and community action.

07/05/2026

30/04/2026

Over the past two days, 𝐓𝐮𝐦𝐚𝐢𝐧𝐢 𝐒𝐢𝐜𝐤𝐥𝐞 𝐂𝐞𝐥𝐥 𝐎𝐫𝐠𝐚𝐧𝐢𝐳𝐚𝐭𝐢𝐨𝐧 had the privilege of participating in an intensive workshop on Kenya’s malaria programming, organized by 𝐘𝐨𝐮𝐭𝐡 𝐟𝐨𝐫 𝐀𝐜𝐭𝐢𝐨𝐧 𝐊𝐞𝐧𝐲𝐚 𝐅𝐨𝐫𝐮𝐦 (𝐘𝐎𝐅𝐀𝐊) and funded by 𝐀𝐦𝐫𝐞𝐟 𝐇𝐞𝐚𝐥𝐭𝐡 𝐀𝐟𝐫𝐢𝐜𝐚.

The training equipped participants with critical knowledge on malaria programming, strengthened our understanding of the vital role Civil Society Organizations (CSOs) play in community representation, and provided deep insights into Community-Led Monitoring (CLM) as a tool for driving accountability and improving health outcomes.

We also actively contributed to developing CSO county action plans and identifying key advocacy priorities that will shape future interventions.

As 𝐓𝐮𝐦𝐚𝐢𝐧𝐢 𝐒𝐢𝐜𝐤𝐥𝐞 𝐂𝐞𝐥𝐥 𝐎𝐫𝐠𝐚𝐧𝐢𝐳𝐚𝐭𝐢𝐨𝐧, we continue to strongly advocate for the recognition of Sickle Cell Disease (SCD) patients as a key vulnerable population within malaria programming. There is an urgent need for targeted, inclusive interventions that address their unique health risks and challenges.

30/04/2026

With Kenya Red Cross Society – I just got recognised as one of their top fans! 🎉

27/04/2026

Today marked a powerful step toward dignity, health, and empowerment for girls living with sickle cell disease in Kisumu Central.

In a collaborative effort, Tumaini Sickle cell Organization -TSCO , Together for Better , 𝐄𝐪𝐮𝐚𝐭𝐨𝐫 𝐑𝐨𝐮𝐧𝐝 𝐓𝐚𝐛𝐥𝐞, and the Kenya Red Cross Society came together to support over 50 girls by distributing free reusable sanitary pads, a sustainable solution designed with 100% organic materials, free from chemicals and plastics, and reusable for up to two years.

Beyond distribution, the initiative created a safe and empowering space for learning. 𝐃𝐫. 𝐀𝐫𝐮𝐧𝐚 from Together For Better Foundation led an engaging and insightful session on 𝐦𝐞𝐧𝐬𝐭𝐫𝐮𝐚𝐥 𝐡𝐞𝐚𝐥𝐭𝐡 𝐦𝐚𝐧𝐚𝐠𝐞𝐦𝐞𝐧𝐭, equipping the girls with practical knowledge on:

* Understanding their menstrual cycle
* Maintaining hygiene while using reusable products
* Managing menstrual pain naturally without over-reliance on painkillers

The session also included live demonstrations on the proper use, cleaning, and care of the reusable pads, ensuring every participant left confident and informed.

For girls living with sickle cell disease, menstrual health management can be particularly challenging due to pain crises and limited access to safe menstrual products. This initiative not only addressed a critical health need but also restored dignity, boosted confidence, and promoted environmentally sustainable practices.

At Tumaini Sickle Cell Organization, we believe that no girl should miss school, feel ashamed, or risk her health because of her period. Today’s impact is a testament to what partnerships can achieve when we come together for a shared purpose.

We extend our heartfelt gratitude to all partners and volunteers who made this day possible. Together, we are not just meeting immediate needs—we are building a future where every girl can thrive with dignity and good health.

11/04/2026

Today marked a powerful moment of collaboration and impact at 𝐒𝐚𝐰𝐚𝐠𝐨𝐧𝐠𝐨 𝐇𝐢𝐠𝐡 𝐒𝐜𝐡𝐨𝐨𝐥 in Siaya County.

𝐓𝐮𝐦𝐚𝐢𝐧𝐢 𝐒𝐢𝐜𝐤𝐥𝐞 𝐂𝐞𝐥𝐥 𝐎𝐫𝐠𝐚𝐧𝐢𝐳𝐚𝐭𝐢𝐨𝐧 was honored to join a multi-sectoral medical camp organized by the 𝐃𝐫. 𝐉𝐨𝐬𝐞𝐩𝐡 𝐀𝐥𝐮𝐨𝐜𝐡 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧 in partnership with 𝐊𝐞𝐧𝐲𝐚 𝐌𝐞𝐝𝐢𝐜𝐚𝐥 𝐀𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧. The camp brought together an incredible network of health facilities, media houses, NGOs in the health sector, financial institutions, and pharmaceutical partners — all united by one goal: 𝘪𝘮𝘱𝘳𝘰𝘷𝘪𝘯𝘨 𝘢𝘤𝘤𝘦𝘴𝘴 𝘵𝘰 𝘲𝘶𝘢𝘭𝘪𝘵𝘺 𝘩𝘦𝘢𝘭𝘵𝘩𝘤𝘢𝘳𝘦 𝘧𝘰𝘳 𝘤𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘪𝘦𝘴.

As Tumaini, our contribution focused on what matters deeply to us — prevention. We conducted free sickle cell genotype screening for members of the public, empowering individuals and families with critical knowledge about their health status. This effort is a key step in strengthening primary prevention strategies aimed at reducing the burden of sickle cell disease in Kenya.

Through early screening and awareness, we can help prevent new cases, support informed decision-making, and ultimately build healthier futures for generations to come.

We extend our sincere gratitude to all partners who made this day a success and to the community members who showed up, participated, and took charge of their health.

Together, we are not just treating illness — we are preventing it. 💙