Northern Ireland Neurological Charities Alliance

10/09/2026

On Monday 7 September we officially launched Left Behind: The Price of Inaction on Neurology Reform, a landmark new report prepared by MW Advocates.

We were blown away by the support from the neurological community on the day - with people joining us on the steps of Stormont to demand action and vital funding for neurology reforms.

£870 million is the amount of potential annual savings if recommended reforms were put in place. Inaction is not a neutral choice.

Thanks to everyone who supported us on Monday - together we will continue to .

Pictured: a large group of people gathering on the steps of Parliament Buildings, Stormont, holding the numbers £870, 000 000.

07/09/2026

🚨 Northern Ireland’s neurological community cannot afford the cost of continued inaction.

Today we launched Left Behind: The Price of Inaction on Neurology Reform, written by MW Advocate it estimates that neurological conditions cost Northern Ireland £2.72 billion a year, equivalent to 4.3% of GDP

Behind that figure is an unsustainable strain on patients, families, and unpaid carers. But as the report launched today shows, the solution is clear:Investing £13 million annually over five years represents less than 0.16% of the health budget.

This modest investment could save nearly £870 million a year in avoided healthcare spending, boosted productivity, and essential support for unpaid carers.

Investing in neurology reform isn't just the right thing to do for patients and families—it is the economically sensible choice for Northern Ireland. 🧠💷

The neurology community needs action now and we call for the Minister of Health to prioritise and fully fund Neurology reform.

👉 Read the full report and join our call for action: https://shorturl.at/YnZ5v

31/08/2026

🚨 ONE WEEK TO GO 🚨

Neurological community, we need you!

It has been over a year since the Regional Review of Neurological Service consultation closed and nothing has been actioned!

We afford to wait any longer. It is time to make our voices impossible to ignore. Patients, families, and clinicians join us and stand up for the vital changes we desperately need.

Join the and stand with us on the steps of Stormont. Let’s show our leaders the real faces behind the statistics and demand immediate action.

📍 Where: The Steps of Stormont
🗓️ When: Monday 7 September at 10.15 am

We need you there. Let’s demand the changes we need. See you on the steps! ✊🧠

Lets us know you can come by completing this form

https://docs.google.com/forms/d/1PKfWO56C_YNx6zAgxZXonQwUsuXowM-_nDrs8iQrLkk/edit?eops=0

13/08/2026

We're demanding urgent action on Neurology Reform - join us on Monday 7 September on the steps of Stormont to hold our decision-makers to account.

Stand with us to - as we raise our collective voices to demand better services for our neurological community.

When: Monday 7 September, photo at 10.15am
Where: Steps of Stormont, Parliament Buildings, Belfast

RSVP by filling in our registration form: https://forms.gle/1tgwQQGN9VzkLfa98

22/07/2026

🚨 Neurological community, we need you!
It has been over a year since the Regional Review of Neurological Service consultation closed and nothing has been actioned!

We can’t afford to wait any longer. It is time to make our voices impossible to ignore. Patients, families, and clinicians join us and call for neurology services to be prioritised and adequately funded.

Join the and stand with us on the steps of Stormont for a photo call. Let’s show our leaders the real faces behind the statistics and demand immediate action.

📍 Where: The Steps of Stormont
🗓️ When: Monday 7 September arrive for photo at 10:15 am

We need you there. Let’s demand the changes we need. See you on the steps! ✊🧠

Sign up here https://forms.gle/p12LxG1CeTzzEUm9A

16/07/2026

🚨 Neurological community, we need you!

It has been over a year since the Regional Review of Neurological Services consultation closed and nothing has been actioned!

We can’t afford to wait any longer. It is time to make our voices impossible to ignore.

Patients, families, and clinicians join us and call for neurology services to be prioritised and adequately funded. Join the and stand with us on the steps of Stormont for a photo call.

Let’s show our leaders the real faces behind the statistics and demand immediate action.

Let us know if you're attending by completing our registration form, we hope to see you there:

Please fill out this form to register for our upcoming photo call: Date: Monday 7 September Time: Photo at 10.15 Venue: Stormont, Parliament Buildings Please complete a separate registration form for each person attending to give us an accurate idea of numbers. Location: The photo cal...

09/07/2026

📢Calling all carers 📢

Share your experiences of what it is like to care for someone living with a neurological condition in Northern Ireland.

By completing Carers NI's latest State of Caring Survey you will be providing vital insight which could help to improve the lives of all carers living in Northern Ireland.

At a time when decisions are being made about the future of health, social care and support for carers, it has never been more important that carers have their say. Share what matters to you and help to build a powerful case for change.

Attention Carers 📣help us to make your voice heard.
Take part in the survey and build powerful evidence to drive real change for unpaid carers. CLICK HERE :
https://www.surveymonkey.com/r/8GWF3MT

02/07/2026

The Migraine Trust have just published new research ‘The cost of waiting: how the migraine treatment gap is failing patients’.

Over 1,500 adults with migraine responded to their survey. Key findings include:
• Almost 2 in 5 respondents were dissatisfied with their current migraine treatment.
• Just over a third had turned to private healthcare due to long delays and problems accessing treatment through the NHS.
• Almost all respondents (90%) had never been offered mental health support such as counselling or therapy through the NHS because of the impact of migraine.

The Migraine Trust are calling on Health & Social Care leaders and policymakers to improve understanding of the condition among health professionals, reduce waiting times, strengthen mental health support and ensure that effective migraine treatments are available fairly and promptly to everyone who needs them.

You can read the full report here https://migrainetrust.org/.../new-research-highlights.../

Have you experienced difficulty accessing migraine treatments?

18/06/2026

✨Member Spotlight✨

This week’s Member Spotlight shines on Hope 4 ME & Fibro Northern Ireland, who are working alongside the World M.E. Alliance to improve education, patient safety, and outcomes for people living with Myalgic Encephalomyelitis (M.E.) and Post-Covid M.E. in Northern Ireland, where an estimated 38,000 people may now be affected. Many patients still face delayed diagnosis, misunderstanding, and a lack of specialist services.

To help address this, the charity co-produced a free 1-hour CPD-certified M.E. Clinical Update webinar with General Practice Northern Ireland (GPNI), aligned with the NICE NG206 guideline and focused on the safe recognition and management of M.E., including Post-Exertional Malaise (PEM). The initiative has received formal support from the Northern Ireland Health Minister and Department of Health, who are helping promote the training across the healthcare system to encourage widespread uptake among healthcare professionals.

To learn more and view education resources visit their website, linked below:

hopew4me fibro

11/06/2026

✨Member Spotlight✨

The Child Brain Injury Trust is the UK's premier charity dedicated to childhood-acquired brain injury support.

For over 30 years, The Child Brain Injury Trust has been the trusted voice providing comprehensive resources and advocacy for families navigating paediatric brain injury recovery. Whether they are dealing with traumatic brain injury, stroke, brain tumours, or other neurological conditions in children, their family services provide practical, emotional, and personalised support to families navigating life after a childhood-acquired brain injury.

From one-to-one guidance to events, resources, and advocacy, The Child Brain Injury Trust walks alongside families so they feel heard, supported, and never alone.

Referrals into the service can be made online here:

The child brain injury trust (CBIT) are a national charity supporting families and professionals affected by Childhood Acquired Brain Injury (ABI) for the