The Tilt Project

The Tilt Project The Tilt Project | Irish PoTS Awareness 💙
💓 Promoting understanding of Postural Orthostatic Tachycardia Syndrome
📍 Ireland | 🌐 Education & Support

22/11/2025

For most people, walking to the bathroom isn’t exactly a workout — but for me, with PoTS, it honestly feels like running a marathon.

My body struggles to pump blood properly when I’m standing, so my heart goes into overdrive trying to make up for it. This clip is just me walking from my bed to the bathroom — it’s maybe a minute or two at most — but look at my heart rate… it shoots right up!

My symptoms are always worse first thing in the morning, especially after lying down all night. I have to be really careful with those first few steps so I don’t faint.

It might look like nothing — but this is what something as simple as walking to the bathroom feels like with PoTS 💙

#7

💙 PoTS can look completely different from one person to the next — and even from one day to another.Some days, standing ...
22/11/2025

💙 PoTS can look completely different from one person to the next — and even from one day to another.

Some days, standing for a few minutes might feel manageable. Other days, even sitting upright can make your heart race, your head spin, and your body feel like it’s running a marathon.

what many people don’t realise is that the impact on quality of life can be as severe as living with heart failure.





Did you know there’s more than one type of PoTS? 💫PoTS isn’t the same for everyone — in fact, there are different subty...
22/11/2025

Did you know there’s more than one type of PoTS? 💫

PoTS isn’t the same for everyone — in fact, there are different subtypes that explain why symptoms can vary so much from person to person.

Here’s a quick breakdown 👇

❤️ Neuropathic PoTS – Linked to problems with the nerves that control blood flow in the limbs and abdomen, leading to blood pooling.

💥 Hyperadrenergic PoTS – Involves high levels of the stress hormone norepinephrine, which can cause a fast heart rate, anxiety, and tremors.

🩸 Hypovolemic PoTS – Caused by low blood volume, which can make dizziness and fatigue worse.

💗 Secondary PoTS – Develops because of another condition such as diabetes, Ehlers-Danlos syndrome, or lupus.

💬 Everyone’s experience of PoTS is unique, and understanding your subtype can make it easier to manage symptoms and find the right supports.

✨ Things You Probably Didn’t Know About PoTS ✨Postural Orthostatic Tachycardia Syndrome (PoTS) is so much more than feel...
22/11/2025

✨ Things You Probably Didn’t Know About PoTS ✨

Postural Orthostatic Tachycardia Syndrome (PoTS) is so much more than feeling lightheaded when you stand up. It affects multiple systems in the body — yet so many people (including health professionals) still haven’t heard of it.

💙 Many people with PoTS don’t faint — but they may experience extreme fatigue, dizziness, brain fog, and rapid heart rate.
💙 It’s heavily linked with hypermobility disorders like Ehlers-Danlos syndrome.
💙 It’s often misdiagnosed or dismissed for years before people finally get answers

💙 PoTS is more than just a fast heart rate 💙When people hear about PoTS they often think it’s just a racing heart. But t...
21/11/2025

💙 PoTS is more than just a fast heart rate 💙

When people hear about PoTS they often think it’s just a racing heart. But the truth is — it affects the whole body.

PoTS happens when your nervous system doesn’t regulate blood flow properly. When you stand up, blood pools in the lower half of your body instead of returning to your heart and brain — which can cause a whole range of symptoms beyond just a rapid pulse.

💫 Common symptoms include:
💓 Rapid heart rate
🌫 Brain fog
🩸 Blood pooling
🤢 Nausea
😵‍💫 Dizziness
💤 Fainting
😖 Headaches
🤲 Shaking or tremors

Everyone’s experience with PoTS is different — some days are better, and some days are really hard. But raising awareness helps others understand that it’s not “just feeling dizzy”.

💙 Let’s keep spreading awareness, sharing experiences, and supporting each other.
Have you experienced any of these symptoms?

15/11/2025

When you live with PoTS, your body struggles to pump blood back up to your heart and brain when you stand. Instead, blood pools in the lower parts of your body — like your legs, feet, and sometimes even your hands.

In this video, you can see in only a few seconds how the colour of my hand changes when I lower it — that’s blood pooling in real time. For many of us, this leads to dizziness, fatigue, fainting, and that heavy, achy feeling in our limbs, it can also cause a 'pins and needles' type feeling.


💙 What can help?
There’s no one-size-fits-all, but small things can make a big difference:
🧦 Compression wear (especially waist-high)
💧 Staying hydrated and adding electrolytes to your daily water.
🪑 Avoiding standing still for long periods
🚶‍♀️ Gentle movement or seated exercises to encourage circulation, such as scrunching your hands into a fist and rolling your ankles

💙 Hi, I’m Hope — and this is my PoTS story 💙Earlier this year, my whole world shifted. I started getting dizzy every tim...
15/11/2025

💙 Hi, I’m Hope — and this is my PoTS story 💙

Earlier this year, my whole world shifted. I started getting dizzy every time I stood up — my heart would race, I’d feel faint, and sometimes I’d completely pass out. After a hospital admission, I was diagnosed with PoTS (Postural Orthostatic Tachycardia Syndrome) — a condition that affects how blood circulates when you stand.

Since then, life has changed a lot. My heart rate can jump from 60 lying down to over 150 just from standing. I often feel weak, breathless, and foggy, and I now use a wheelchair to manage my symptoms and avoid fainting. I’ve had to pause my Master’s degree and adapt every part of daily life — but I’m learning to live with this new version of myself.

With a background in Social Policy, I’ve always been passionate about inclusion and advocacy. After seeing the incredible awareness and support provided by , I realised there was a real gap here in Ireland — for connection, understanding, and resources. That’s how The Tilt Project was born — to bring people together, raise awareness, and support those navigating life with PoTS. 💓

If you’re living with PoTS, waiting for a diagnosis, or supporting someone who is — you’re so welcome here.
👇 I’d love if you could introduce yourself in the comments — where you’re from, and a little about your journey if you’d like to share.

What is PoTS?PoTS stands for Postural Orthostatic Tachycardia Syndrome — but what does that actually mean?• Postural / O...
15/11/2025

What is PoTS?

PoTS stands for Postural Orthostatic Tachycardia Syndrome — but what does that actually mean?

• Postural / Orthostatic – means it’s related to your body’s position, especially when you stand up.
• Tachycardia – means your heart rate increases abnormally fast.
• Syndrome – means it’s a collection of symptoms that happen together.

In simple terms, PoTS is a condition that affects how your body controls blood flow. When you stand up, your heart rate can jump by 30+ beats per minute.

For many of us, that causes dizziness, fainting, fatigue, brain fog, and a racing heart — just from standing or walking.

It’s not “just feeling faint” — it’s a real condition that affects daily life, but with awareness, management, and support, it is possible to live well with PoTS. 💪

✨ Welcome to The Tilt Project ✨Hi everyone, my name is Hope — and I’m the founder of The Tilt Project. 💙I was recently d...
15/11/2025

✨ Welcome to The Tilt Project ✨

Hi everyone, my name is Hope — and I’m the founder of The Tilt Project. 💙

I was recently diagnosed with PoTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects how blood circulates when you stand up — causing dizziness, fainting, rapid heart rate, and exhaustion. Since my diagnosis, I’ve realised how little awareness and understanding there is about PoTS here in Ireland.

That’s why I created The Tilt Project — to build a community where we can share information, raise awareness, and support one another. Whether you’ve been diagnosed, are waiting for answers, or want to learn more, you’re very welcome here.

Over time, this page will share:
💓 Information about PoTS and related conditions
💬 Real stories and experiences
📚 Tips for managing symptoms and navigating care in Ireland
🌍 Resources and advocacy updates

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