28/02/2026
PSORIASIS ASSOCIATION OF GHANA JOINS THE WORLD TO MARK WORLD RARE DISEASE DAY, RENEWS CALL FOR STRONGER ADVOCACY AND INCLUSION.
The Psoriasis Association of Ghana has joined the global community to commemorate World Rare Disease Day, standing in solidarity with millions of people worldwide who live with rare diseases and often face neglect, stigma, delayed diagnosis, and limited access to care.
Observed annually on the last day of February, World Rare Disease Day is dedicated to raising awareness, promoting equity, and amplifying the voices of persons living with rare conditions. The day serves as a powerful reminder that while individual rare diseases may affect small populations, collectively they impact over 300 million people globally, making rare diseases a significant public health concern.
As an association that represents people living with psoriasis and other chronic inflammatory conditions, the Psoriasis Association of Ghana recognizes that psoriasis especially severe and a typical forms continues to be misunderstood and, in some cases, treated as a rare or lesser-known disease within many communities. This misunderstanding often fuels discrimination, misinformation, and poor health-seeking behavior among patients.
The Association is therefore emphasizing that rare disease advocacy is not only about statistics but about people, dignity, and equal access to healthcare.
Many persons living with rare diseases in Ghana struggle with late diagnosis, high treatment costs, lack of specialist care, and minimal psychosocial support. These challenges are further compounded by low public awareness and limited policy attention.
In alignment with global advocacy efforts championed by bodies such as the World Health Organization, the Psoriasis Association of Ghana believes that universal health coverage cannot be achieved without deliberately including people living with rare diseases.
On this World Rare Disease Day, we remind the nation that rare is many, rare is strong, and rare is not invisible, the Association is encouraging that every person living with a rare disease deserves understanding, quality healthcare, and the opportunity to live with dignity.
As Ghana joins the rest of the world to mark this important day, the Psoriasis Association of Ghana pledges its commitment to advocacy, patient empowerment, and collaboration, ensuring that no one is left behind simply because their condition is rare.