Pan-African Cystic Fibrosis Research Network

27/05/2026

May this day bring many rewards

12/05/2026

What amazing work being done in Egypt. Cystic fibrosis in Africa exists. We just have to look.
Thank you to the Bonnell Foundation.

10/05/2026

Thank you for your hands that heal

04/04/2026

20/03/2026

Wishing you all a blessed feast.

08/03/2026

To the many women living with cystic fibrosis and those working for better care for them, cheers 🥰

28/02/2026

World Rare Disease Day
*More Than You Can Imagine*

Cystic fibrosis is a life-threatening disease that causes repeated chest infections, malnutrition, organ damage, and early death if untreated.

Across many African countries, people with CF rarely receive a correct diagnosis because testing is simply not available.

*This is invisible suffering.*
*This is preventable loss.*
*More than you can imagine.*

*What Must Change—*

We must come together to expand access to diagnosis, strengthen awareness, and ensure no child is left undetected.

*The time to act is now.*

Pan African Cystic Fibrosis Research Network (PACFRN)

28/02/2026

Africans get cystic fibrosis too

26/02/2026

What we did in 2025.
If you are interested in research or advocacy, join us 😍

25/02/2026

North American Cystic Fibrosis Congress 2025