Rosie-May was born with cerebral palsy, this effects mainly her lower limbs making it very difficult for Rosie to ever walk independently and pain free.
01/02/2026
I haven't posted on this for some time life has been busy. Rosie is doing well after her surgeries a few years ago . She started a new school in September and she is currently starting to do more moving she is due to start hydrotherapy. I will update her progress over the summer as she has also got a new trike to get more active with 🥰💚❤️
25/08/2023
Thankyou so much to whoever donated £190 to Rosie's funds to help towards physiotherapy. It will go along way.
We still need to keep fundraising for physiotherapy as unfortunately we have to pay for private sessions because the NHS can only see her every 6 months for one hour session.
Any help would be greatly appreciated ❤️💚❤️💚
01/08/2023
I have reached 500 followers! Thank you for your continued support. I could not have done it without each of you. 🙏🤗🎉
29/05/2023
We are going to America next month Rosie is finally getting her muscles lengthened! We had some issues with funding so we had to push the date but I can finally say we have done it :)
We will still be collecting donations for physiotherapy as we are now completely out of funds and this is very important for her after care
I will keep everyone updated on how it all goes 🙂
Just 4 Children gives access to quality of life enhancing surgeries and treatments like selective dorsal rhizotomy (SDR), stem cell therapy, Mobility and sensory equipment for children.
21/08/2022
If anyone can help support Rosie's journey, Please get in contact and please keep SHARING 💚❤️💚
07/08/2022
Can everyone please follow/like Rosie's new page. You can click here Rosie's Journey
This page was for her previous surgery. I am still updating her new page also. Thankyou for your support 💚
03/12/2021
Rosie is now running out of funding for physio therapy. We need to start raising money again for this to continue, if anyone can support us it would be a massive help ❤️
(The money shown on the page has been spent but there is a little remaining)
This is with a registered charity
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Rosie-May Edwards, from Weston, can stand up with support, but as soon as she tries to walk her legs become stuck together.
Selective dorsal rhizotomy (SDR) surgery would transform her life as it reduces lower limb spasticity – which can impair walking and sitting and causes discomfort, cramps and spasms.
The surgery would enable Rosie to walk and be pain-free, but it is not available on the NHS so her parents are hoping to take her to America for the procedure.
Josie said: “Having cerebral palsy is a day-to-day struggle for Rosie as she finds it difficult to do a lot of things independently.
“Rosie can currently sit unaided and roll over. She is currently using a Kaye walker – she can take steps but as soon as she does her legs instantly cross over and get stuck together. This is due to her thigh muscles pulling her legs together.
“Rosie really enjoys standing with support and she always wants to try new things but she becomes very frustrated and upset when her body just can’t do it.
“Rosie loves watching other children run around and she’s starting to realise she can’t because she’s different – it’s very upsetting for her.
“We are doing everything we can to try to make this possible for her and her future.”
Josie and Simon are hoping to raise £100,000 so Rosie can have the surgery at St Louis Children’s Hospital.
The money would also pay for medical equipment, a year’s worth of physiotherapy and flights and accommodation for the family to stay in America for three weeks while Rosie recovers.
Josie said: “SDR surgey will take away the spasticity in Rosie’s legs.
“This stops the tight muscles getting in her way, leaving her able to move more freely to move around and walk. SDR surgery will also stop pain in the now and the future.
“Also, this operation will allow her to finally take some independent steps of her own and help her to be able to find new ways to move around and be independent.”
