13/12/2025
Granny was asked last week about end stage dementia and to be honest Granny has had to do research into it as she was not totally up to speed on it however GGAT is a new group and we are learning along with our members as we go forward.
So this information is what Granny found so far.
What do the end stages of Dementia look like.
As your loved one moves on to the end stages of Dementia they are going to need much more help and support as their brains are loosing their ability to communicate, coordinate and respond.
There will be significant changes in mobility and walking may become more difficult if possible at all. They may lean forward, take shorter steps, lean to one side and start shuffling along.
Your loved one may just want to sleep round the clock, 16 to 20 hrs per day is quite normal.
Eating will become difficult with swallowing becoming an issue while food is often chewed in the mouth for longer.
Often food is totally refused.
Control of bladder and bowel function can be lost.
Stiffness in the joints of your loved one can occur and they may experience jerking movements with hands and feet curling inwards.
Summing up I think you can see that the end stage is not only difficult for the patient but it can be a very exhausting time for the carer having to deal with knowing the final journey is close to its end.
Here at GGAT we always recomend that carers look after themselves too because if you become tired, exhausted and emotionally drained you are unable to care in the way you would like and at this already difficult time we know you want to give as much comfort and care towards the patient as you can. For what ever reason you are the one who was chosen to care for the patient and herexat GGAT we know that you would want their passing to be as painless and comfortable as it can be.
Often at the end of life a patient will have some package in place to help them through the end stage or you can talk to people like Mari Cure who along with others offer palliative nursing care, or palliative hospice care.
Google your own area for local results.
Granny sincerely hopes this helps our members but if you have any questions then please get back to us and we will do our very best to research further and reply to your questions with local or national help and support groups.
If you have already gone through
the final stages of Dementia and you feel you can now share your experiences Granny knows our members would love to read your stories.
Sharing experiences can often help others to cope.
Please use the comments to send in your experiences. 💜💜 XX
Website
www.ggat.uk
https://www.facebook.com/groups/ggat
Donations
https://www.justgiving.com/campaign/GGAT
Where LGBTQ members can voice their experiences, concerns and solutions of caring for a loved one suffering from a Dementia related illness