Rubinstein-Taybi Syndrome Support Group

11/05/2026

Bookings for our 2026 Family Conference have now closed! Thanks to all of you who have signed up - we are really looking forward to seeing you in June!

30/04/2026

Tickets are still available for our 2026 RTS Family Conference on Saturday 6 June! Organised by the UK RTS Support Group, this event will give you an opportunity to hear from expert speakers, meet specialists to discuss your queries, and share experiences with other families. We have a fantastic line up including Dr Susan Wiley from Cincinnati Children’s Hospital. We would love to see you there!

Full details of our speakers and packages available are on our website so do have a look:

https://www.rtsuk.org.uk/booking-details/

Bookings are open until 11 May so please book to secure your place!

Please note that we are giving priority to UK-based families, but if you are outside the UK and are interested please contact us at [email protected]

25/09/2025

Tickets are still available in our fantastic 2025 raffle - please do support us if you can!

02/09/2025

Kidz to Adultz North is just a few months away – and we need your help!🫶

This FREE exhibition is full of information, equipment, and advice for children and young people with disabilities and additional needs, plus their families, carers and professionals who support them.

We want to spread awareness to make sure everyone who could benefit knows about it!📣

How you can help:
🌟 Share a social media post, tag friends, or post in groups that might be interested.
🌟 Request a flyer by email to share with colleagues, in newsletters or to display on notice boards.
🌟 Tell anyone who would benefit from attending.

Together, we can make sure no one misses out on this brilliant opportunity.

Visit our website for more information: www.kidzexhibitions.co.uk/kidz-north
Register for free: https://bit.ly/KtANorth25

11/08/2025

Please check out the 2025 RTS Support Group raffle - we have some fantastic prizes!

The more tickets you buy, the better chance you have to win! Please help us to spread the word by sharing the link below.

Each ticket is priced at £5.00. Click on the link to look at the prizes and buy your tickets!

05/07/2025

Tomorrow, hot on the heels of World RTS Day, a team of relatives, friends, supporters and those with RTS will be taking on a range of challenges events at Parallel Windsor!

Parallel Windsor is a Festival of Inclusivity with challenge events for all ages, health conditions and abilities.

Some of our participants are fundraising for the charity. If you can, please do check out our fundraising page and give them your support! We hope to see many of you tomorrow.

Help Richard Kell raise money to support Rubinstein-Taybi Syndrome Support Group

04/07/2025

Over the past few years, we've had so many people ask if we have a charity T-shirt, so we are delighted to say that now we do!

Made by and available to purchase from Differently Perfect, the profits from every purchase will be donated to the RTS Support Group.

To find out more and to buy, click on the link below:

Support RTS families with the official RTS UK Support Group charity T-shirt. 100% of proceeds go to RTSUK. Breathable polyester. Awareness meets action.

03/07/2025

We are taking the opportunity to mark World RTS Day in a number of different ways.

We have launched the BIG 2025 RTS Support Group raffle with some fantastic prizes to be won!

The more tickets you buy, the better chance you have to win! Please spread the word to everyone you know!

Each ticket is priced at £5.00. Click on the link to look at the prizes and buy your tickets!

03/07/2025

Here’s wonderful Aara to wish you all a happy World RTS Day!