Childhood Eye Cancer Trust (CHECT)

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Childhood Eye Cancer Trust (CHECT) CHECT is the only UK charity dedicated exclusively to supporting all those affected by retinoblastoma.
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The Childhood Eye Cancer Trust (CHECT) is a UK charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer. We:

• Provide support and information to families and individuals.
• Fund research into the prevention and treatment of retinoblastoma.
• Raise awareness among health professionals and the public.
• Influence policy to improve services for patients. We know that when a child is diagnosed, it can be a distressing and frightening time for everyone, and we are here to help. We also understand that for some people retinoblastoma can have a long term impact and we offer lifelong support for anyone affected – from diagnosis to adulthood. We’ve been helping families for nearly 30 years but we don’t receive any money from the government and we rely on public support to fund our vital work.

This World Sight Day, we are sharing Kyle's retinoblastoma story, as he talks to us about what life was like growing up ...
07/10/2026

This World Sight Day, we are sharing Kyle's retinoblastoma story, as he talks to us about what life was like growing up after being diagnosed with the eye cancer, and how it shaped him into the adult he is today: https://buff.ly/sd86DYh

Thank you to the CHECT members who spotted this! Meet Claire de Luna - a new doll by Monster High. She's a clairvoyant w...
07/10/2026

Thank you to the CHECT members who spotted this!

Meet Claire de Luna - a new doll by Monster High. She's a clairvoyant witch who reads constellations as easily as she reads braille. Claire is blind, with a prosthetic eye and some light perception in her other eye, and she navigates the halls of Moonspell High with her cane in hand and stylish sunglasses to ease the glare.

https://buff.ly/6lxtBkZ

A massive thank you and well done to Ivy who completed the Kiltwalk!Ivy raised £500 for CHECT during Childhood Cancer Aw...
06/10/2026

A massive thank you and well done to Ivy who completed the Kiltwalk!

Ivy raised £500 for CHECT during Childhood Cancer Awareness Month and we couldn't be more grateful for her generosity and hard work 💙

Huge congratulations to Isla for taking on the Wimbledon Common Half Marathon and raising over £650 for CHECT! Such a sp...
05/10/2026

Huge congratulations to Isla for taking on the Wimbledon Common Half Marathon and raising over £650 for CHECT!

Such a special way to celebrate and raise awareness for Childhood Cancer Awareness Month - we are super proud of you Isla. 💙

Register today!Join at the Hampton Court Palace Half Marathon next year!Registration Fee: £25Sponsorship target: £350R...
04/10/2026

Register today!

Join at the Hampton Court Palace Half Marathon next year!

Registration Fee: £25
Sponsorship target: £350
Registration Deadline: 1st March 2027

Contact [email protected] if you have any enquiries.

Our Hospital to Hospital Challenge participants have truly outdone themselves! 👏Not only did they cover the distance bet...
02/10/2026

Our Hospital to Hospital Challenge participants have truly outdone themselves! 👏

Not only did they cover the distance between The Royal London Hospital and Birmingham Women’s and Children’s Hospital (with some even completing the round trip!), but together they also raised an incredible £11,860!

What a special way to mark Childhood Cancer Awareness Month in September. Join us in giving them all a huge well done and a heartfelt thank you for making every mile count!

We want to say a huge thank you to our superstar awareness-raisers Oliver, Olivia and Tom, who shared Oliver's retinobla...
01/10/2026

We want to say a huge thank you to our superstar awareness-raisers Oliver, Olivia and Tom, who shared Oliver's retinoblastoma story as part of our Childhood Cancer Awareness Month campaign.

Their story reached the national press, being featured across the UK and it has helped to raise awareness of childhood eye cancer.

We can't raise awareness without you - so thank you!

https://buff.ly/78pflqz

Thank you so much for helping us to raise awareness of retinoblastoma this Childhood Cancer Awareness Month!
30/09/2026

Thank you so much for helping us to raise awareness of retinoblastoma this Childhood Cancer Awareness Month!

We are sad to share the news that Mary Digby, who spent 30 years working as a play specialist for children with retinobl...
29/09/2026

We are sad to share the news that Mary Digby, who spent 30 years working as a play specialist for children with retinoblastoma, passed away earlier this month at the age of 97.

Her funeral will be held at St Anne’s Church, 31 Kew Green, Richmond TW9 3AA at 12 noon on 8 October 2026. Any CHECT members that would like to attend will be very welcome.

Head over to our blog to read about Mary from the 25th anniversary edition of InFocus in 2012: https://buff.ly/V5PPLRD

Earlier on in the year we shared a casting call for Children with Cancer UK's 'Kid Like Us' filming. We are delighted to...
29/09/2026

Earlier on in the year we shared a casting call for Children with Cancer UK's 'Kid Like Us' filming. We are delighted to share that Charlie was selected and the videos are now available to watch on YouTube. Well done Charlie and friends!

Https://www.youtube.com/watch?v=MTSIqIIR-N0

Late effects from cancer can last a lifetime. Harry (12) and Charli...

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