Cavernoma Society

Cavernoma Society A UK Charity supporting those affected by brain or spinal Cavernoma through information, retreats, and free counselling.

We launched the first UK Cavernoma awarness day - Raspberry Day in 2020. Help us build awareness on the third Friday every September.

20/08/2026

Raspberry day, 2026 is ALMOST here! Itโ€™s September 18 this year!

๐Ÿ“Œ Where would you like to see a billboard this year? Comment below with your location and if there is a board near you we will endeavour to secure it.

๐Ÿ’ฐ Can you help by fundraising or hosting a fundraising event for us? Or maybe helping raise awareness?

๐Ÿซ Could your childโ€™s school do a non school uniform day for us?

๐Ÿง Could you host a bake sale?

๐Ÿƒโ€โ™€๏ธ Could you maybe walk/run/cycle/swim a certain distance?

๐Ÿ’ƒ Could you do something unique?

๐Ÿ–Š๏ธ Please get in touch! [email protected]

๐ŸŽ‰ SAVE THE DATE! ๐ŸŽ‰๐ŸซถFriday 18th September 2026 is our annual Raspberry Day! ๐ŸซถRaspberry Day is a special day dedicated to ...
12/08/2026

๐ŸŽ‰ SAVE THE DATE! ๐ŸŽ‰

๐ŸซถFriday 18th September 2026 is our annual Raspberry Day! ๐Ÿซถ

Raspberry Day is a special day dedicated to raising awareness of Cavernoma and helping people around the world better understand this often misunderstood condition.

Itโ€™s a day of fun, awareness and fundraising! ๐Ÿ™Œ
Want to get involved? There are lots of ways you can help:

๐Ÿซ Host your own fundraising event
๐Ÿซ Take part in our Raspberry Day fun
๐Ÿซ Share your Cavernoma story
๐Ÿซ Help spread awareness on social media
๐Ÿซ Encourage your friends, family and community to get involved

Every share, story, event and donation helps us raise awareness, support the Cavernoma community and make sure more people know about Cavernoma. ๐Ÿ’—

๐Ÿ“… Friday 18th September โ€” save the date!

Letโ€™s make this yearโ€™s Raspberry Day bigger, louder and more colourful than ever! ๐Ÿ’—

Want to get involved?

Message us here or email us : [email protected]

๐Ÿ’™ Want to give something back to our Cavernoma community, but not quite sure how?Whether you have a fundraising idea, wa...
09/08/2026

๐Ÿ’™ Want to give something back to our Cavernoma community, but not quite sure how?

Whether you have a fundraising idea, want to organise an event, take on a challenge, or simply want to help in your own way โ€” weโ€™d love to hear from you!

Sometimes, the smallest idea can make the biggest difference. ๐Ÿ’™

If youโ€™d like to get involved or chat about how you can help, get in touch with our fundraising team by sending a message here or email us

๐Ÿ“ง [email protected]

Together, we can make a real difference to our Cavernoma community. ๐Ÿ’™

โค๏ธ

๐Ÿ›๏ธ Want to help us fundraise while doing your online shopping?๐Ÿ›๏ธYou can support us  at no extra cost  every time you sho...
04/08/2026

๐Ÿ›๏ธ Want to help us fundraise while doing your online shopping?๐Ÿ›๏ธ

You can support us at no extra cost every time you shop online! ๐Ÿ˜ฑ

Simply click the link below and registerโ€”it's quick, easy, and only takes a couple of minutes. Once you're signed up, every eligible purchase you make can help raise valuable funds for us.

Your support means so much to us, and we'd be incredibly grateful if our community could get behind this. ๐Ÿซถ

Every click, every shop, and every share helps make a difference. โค๏ธ

Thank you for your continued support!

๐Ÿ‘‡ Register here:

https://www.easyfundraising.org.uk/causes/cavernomasociety

๐Ÿ—ฃ๏ธPOP UP SHOP -  OPEN NOW ๐ŸŽ‰We have recently been gifted four stunning handmade crochet blankets by the amazing talented ...
01/08/2026

๐Ÿ—ฃ๏ธPOP UP SHOP - OPEN NOW ๐ŸŽ‰

We have recently been gifted four stunning handmade crochet blankets by the amazing talented people at Crochet for Cavernoma and we're incredibly grateful for their ongoing support.

We have set up an online pop up shop where you can purchase one of these beautiful blankets. Every pound from each sale comes directly to us without any deductions , helping us continue to raise vital funds. We have no paid staff and the charity is run by many volunteers helping to keep our services going for you our members. ๐Ÿซถ

Whether you're looking to treat yourself or are looking for a gift for someone special, you'll be supporting us at the same time!

A huge thank you to Crochet for Cavernoma for their kindness and generosity. ๐Ÿ’œ

๐Ÿ›๏ธ Browse the blankets and support our fundraising here:

https://www.zeffy.com/en-GB/ticketing/the-cavernoma-societys-shop

Please like, share and tag your friends to help us reach as many people as possible. Every share could help us find these beautiful blankets a new home while raising much-needed funds. ๐Ÿ’œ

26/07/2026
โœจ Beautiful handmade blankets for sale โœจWe're delighted to have been gifted four stunning handmade crochet blankets by t...
25/07/2026

โœจ Beautiful handmade blankets for sale โœจ

We're delighted to have been gifted four stunning handmade crochet blankets by the amazing people at Crochet for Cavernoma. Their generosity means so much, and we're incredibly grateful for their support.

We've now set up an online shop where you can purchase one of these beautiful blankets. Every single penny (100%) from each sale comes directly to us, helping us continue to raise vital funds.

Whether you're looking for a cosy addition to your home or a thoughtful gift for someone special, you'll be supporting an important cause at the same time!

A huge thank you to Crochet for Cavernoma for their kindness and generosity. ๐Ÿ’œ

๐Ÿ›๏ธ Browse the blankets and support our fundraising here:

https://www.zeffy.com/en-GB/ticketing/the-cavernoma-societys-shop

Please like, share and tag your friends to help us reach as many people as possible. Every share could help us find these beautiful blankets a new home while raising much-needed funds. ๐Ÿ’œ

18/07/2026
18/07/2026

What a wonderful and heartwarming Love Festive ! Thank you for supporting our small charity. Also, thank you to everyone who donated, bought raffle tickets, got some homemade raspberry lemonade, or had a reflexology session with Sukh. We raised ยฃ250 today! We met some incredible people, had some fab conversations, and raised awareness and funds. Thank you for having us Chetna. Congratulations on such a successful event. Thank you Sukh for donating proceeds from your reflexology to us! Thank you to .murray.5496 and Lizzie, as well as Lucy for helping out. .london

Address

Twickenham

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 10am - 3pm
Sunday 10am - 12pm

Telephone

+443301224470

Alerts

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