Cavernoma Society

Cavernoma Society A UK Charity supporting those affected by brain or spinal Cavernoma through information, retreats, and free counselling.

We launched the first UK Cavernoma awarness day - Raspberry Day in 2020. Help us build awareness on the third Friday every September.

💜 Can You Help Us Reach Our £10,000 Fundraising Goal? 💜We're looking for supporters who can take on a challenge, organis...
14/06/2026

💜 Can You Help Us Reach Our £10,000 Fundraising Goal? 💜

We're looking for supporters who can take on a challenge, organise an event, or come up with a creative fundraising idea to help raise money for our charity.

As a charity with no paid staff, every penny raised goes directly back into supporting our members and helping us provide our exclusive "Heal Your Brain" retreats.

Without fundraising, we simply couldn't offer the support and services that so many people rely on.

Whether it's a sponsored walk, a bake sale, a coffee morning, a raffle, a run, or something completely different, we'd love to hear your ideas!

If you'd like to help, send us a message or email us : [email protected]

Please like, share, and tag anyone who might be interested in supporting us. Together, we can make a real difference. 💜

🫶Thank you to everyone who took the time to nominate carers within our Cavernoma community.It was heartwarming to read e...
13/06/2026

🫶Thank you to everyone who took the time to nominate carers within our Cavernoma community.

It was heartwarming to read every nomination, and we have decided to send a small treat to all those who were nominated. Your care, dedication, and support make a real difference, and we want you to know how much you are appreciated.

You are doing an amazing job—thank you.❤️

🎉Please keep an eye on your inbox, as you'll be hearing from us shortly.

To all the other carers in our Cavernoma community: we see you, we appreciate you, and we thank you for everything you do.❤️

If you need to contact us about anything else you can either message us here or email :
[email protected]

💜 As it is the final day of Carers Week, we would like to take a moment to say a heartfelt **thank you** to all the incr...
12/06/2026

💜 As it is the final day of Carers Week, we would like to take a moment to say a heartfelt **thank you** to all the incredible carers in our Cavernoma community.

Today is your last chance to nominate a carer in our Cavernoma community who deserves recognition for the support, dedication, and care they provide.

We would love to hear from you! Please comment below or send us your nomination, telling us why you have chosen that special person.

From all the nominations received, we will select one carer to receive a small treat as a token of our appreciation.

Thank you to every carer for all that you do — your kindness and commitment make a real difference every day. 💜


🌟 Thank you Carers 🌟Do you know an amazing carer in our Cavernoma community who deserves a special thank you?Nominate a ...
09/06/2026

🌟 Thank you Carers 🌟

Do you know an amazing carer in our Cavernoma community who deserves a special thank you?

Nominate a carer who goes above and beyond. We'll choose one nominee to receive a little treat as a token of our appreciation for all their hard work, kindness, and support. 💜

To nominate someone, leave a comment or send us a message telling us why they're so special.

Nominations open until the end of Friday 12th June 2026 🫶

💜 This Carers Week, we want to say a heartfelt thank you to the family members, friends and loved ones who provide care ...
08/06/2026

💜 This Carers Week, we want to say a heartfelt thank you to the family members, friends and loved ones who provide care and support to people affected by cavernoma.

Whether you're helping with appointments, offering emotional support, managing day-to-day tasks, or simply being there through the challenges and uncertainties, your care makes an incredible difference.

Caring can be rewarding, but it can also be demanding and isolating at times. This week is an opportunity to recognise the vital role carers play and to remind carers that their wellbeing matters too.

To every carer in our cavernoma community: thank you for your dedication, compassion and strength. We see you, we appreciate you, and we are here to support you. 🫶

If you are caring for someone with Cavernoma and feel you need some support get in touch with us or visit carersweek.org for more information.

💜

At The Cavernoma Society, we believe nobody facing cavernoma should feel alone 💜Every day, we support individuals affect...
31/05/2026

At The Cavernoma Society, we believe nobody facing cavernoma should feel alone 💜

Every day, we support individuals affected by cavernoma with trusted information, emotional support, peer connections, and advocacy. But we can’t do it without your help 🫶

🙌 Could you fundraise for Cavernoma Society? 🙌

We do not have any paid staff and the charity is run by volunteers to ensure that fundraised money goes back into the services we can provide our members.

If you want to fundraise please get in touch with us here or email : [email protected]

Together, we can raise awareness and bring hope to those affected by cavernoma.

“HEAL YOUR BRAIN” RETREAT 2026 - Applications open NOW!📍 Lincolnshire📅 21-25 September, 2026We are delighted to announce...
16/05/2026

“HEAL YOUR BRAIN” RETREAT 2026 - Applications open NOW!

📍 Lincolnshire
📅 21-25 September, 2026

We are delighted to announce that applications are now open for our exclusive retreat designed for people living with Cavernoma.

💚 What to expect:
• Connect with others who understand your journey
• Mindful and relaxing activities
• Supportive group therapy sessions
• A safe, welcoming environment

👥 Who can attend?
• Cavernoma Society members aged 18+
• Option to bring a companion (18+)
• £50pp non-refundable deposit required
• If applying for 1 place you'll be expected to share

🌟 Thanks to our amazing fundraising community, this retreat is possible. Spaces are limited, so we invite you to apply to ensure the best experience for all attendees.

📧 APPLY NOW - applications open until 16 June.
https://forms.gle/oi2dfFwd2wSrnQSM9

✨ We look forward to receiving your applications ✨

Please nominate us to win £5,000! It makes a HUGE difference to us as a small charity with no paid employees! This money...
11/05/2026

Please nominate us to win £5,000! It makes a HUGE difference to us as a small charity with no paid employees! This money will be spent on supporting you.

It takes seconds to nominate!

Charity no 1184406 and we are in the health category!

🚨🚨 Fundraising Update 🚨🚨At the beginning of the year, we set ourselves a goal of raising £10,000 in 2026. 💷We’re delight...
08/05/2026

🚨🚨 Fundraising Update 🚨🚨

At the beginning of the year, we set ourselves a goal of raising £10,000 in 2026. 💷

We’re delighted to share that, thanks to the incredible hard work of our members and the generosity of our supporters, we have already raised £3,175 so far this year! ❤️

Every donation truly makes a difference. As we have no paid members of staff, every penny raised goes directly towards supporting our members’ services and helping fund our “Heal Your Brain” retreat. 🙌

We still need your help to reach the rest of our £10,000 target for 2026! 🫶🫶

If you’re thinking about taking on a challenge, hosting an event, or doing something fun to raise funds for us, we’d love to hear from you! Please get in touch via DM or email us at:

📧 [email protected]

If you would prefer to make a one-off or regular donation, please use the link below ⬇️

https://www.zeffy.com/en-GB/donation-form/donate-to-make-a-difference-20591

Thank you for your ongoing support — we couldn’t do this without you! ❤️

Let’s goooooooooooo! 🙌

Address

Twickenham

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 10am - 3pm
Sunday 10am - 12pm

Telephone

+443301224470

Website

Alerts

Be the first to know and let us send you an email when Cavernoma Society posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category