Jasper’s Journey

Jasper’s Journey Welcome to Jasper’s Journey! My 8 year old son Jasper from Mumbles, had a rare condition, APDS & is currently recovering from a bone marrow transplant.

Here we share his journey, raise awareness, & celebrate his strength. Thank you for your support🫶

🧡 A BUSY OCTOBER! 🧡Firstly, I just want to say a HUGE thank you for all of Jasper’s birthday messages! 🥰We’ve had an abs...
22/10/2026

🧡 A BUSY OCTOBER! 🧡

Firstly, I just want to say a HUGE thank you for all of Jasper’s birthday messages! 🥰

We’ve had an absolute blast this October, making memories we couldn’t always make before.

🏃‍♂️ Jasper’s birthday parkrun saw an incredible 107 children take part in Swansea Kids parkrun, all wearing orange to raise awareness for Louie's. What a way to celebrate his birthday! 🧡

🚐 The very next day, we headed off to Sandy Balls in the New Forest for a week away with Jasper’s grandparents. From seeing donkeys roaming around (which made me laugh 😂), to spending hours in the hot tub doing absolutely NOTHING, it was just what we needed!

🍔 And of course, Jasper enjoyed an epic-sized burger!

🇨🇦 Then we had an EPIC week with our Canadian family, who came all the way over to meet Jasper. ❤️ So many special moments and memories made together!

💉 And this week, Jasper had his final set of jabs for this year! Another little milestone on this journey!

October has been full of family time, laughter, adventures and moments that we’ll treasure. 🧡

Now… BRING ON HALF TERM! 🎃🍂❤️

05/10/2026

What an epic Birthday Morning Jasper had celebrating his 9th birthday with his Friends and Family at Swansea Prom junior parkrun.

You guys were all awesome thank you so much for coming to support Jasper and Mr Hughes in his Future London Marathon Run all for Louie's🧡

Also a huge shout out the each and every volunteer at Swansea Junior Park Run for also wearing orange. Thank you for your support, always 🧡

Jaspers Birthday Celebrations Ready at Swansea Prom junior parkrun for Louie's 🧡 🎂
04/10/2026

Jaspers Birthday Celebrations Ready at Swansea Prom junior parkrun for Louie's 🧡 🎂

02/10/2026

Please take a few minutes to watch these two incredible humans, Shannon and Addison, and hear why Louie's was founded 🤍

They’ve experienced unimaginable trauma, losing their beautiful son Louie. But through that pain, they’ve built something truly special, a foundation that supports families facing long hospital stays, driven by their own lived experience and understanding of just how hard it can be to get help when you need it most.

Jasper went 6 years without a diagnosis. During that time, I had to give up work, and we couldn’t access support like DLA because there was no official condition, yet we were in and out of hospital for years.

This is why Louie’s help families across Wales and England.

This is why we advocate.

This is why we and YOU have helped to support Louie’s 🧡

💙 Today is Awareness Day 💙For most people, APDS is something they’ve never heard of.It’s a Rare Blood Disorder that af...
01/10/2026

💙 Today is Awareness Day 💙

For most people, APDS is something they’ve never heard of.

It’s a Rare Blood Disorder that affects around 1 in a million people.

It took 6 YEARS for Jasper to be diagnosed.

✨ 6 years of constant illness.

✨ 6 years of infections, antibiotics, hospital visits and admissions.

✨ 6 years of being told it was “just school germs.”

✨ 6 years of knowing something wasn’t right, but having no answers.

Behind that “6 years” is a little boy who couldn’t live a normal childhood.

Missing school, missing out on playing with friends, always unwell, always recovering.

Everything changed when we finally got a diagnosis.

Because with a diagnosis comes understanding, treatment, and hope.

Awareness matters.

Always go with your gut, we know best.

Because no family should have to wait years for answers.

💙

Bubble Foundation UK Louie's Immunodeficiency UK Welsh Blood Service Jeffrey Modell Foundation Morgan’s Army Joseph’s Smile

Join us to Celebrate Jasper’s 9th Birthday! 🎂This Sunday, we’d love for anyone who can to come along and celebrate Jaspe...
30/09/2026

Join us to Celebrate Jasper’s 9th Birthday! 🎂

This Sunday, we’d love for anyone who can to come along and celebrate Jasper’s 9th birthday with us by walking, jogging the Swansea Prom junior parkrun 2k.

📍 Meet at The Secret Beach Bar & Kitchen
⏰ From 8:45am for a 9:00am start
🎂 Finish with Cake

If you’re coming along, please wear orange to create a “ray of sunshine” for Louie's ☀️

Thank you so much, see you all Sunday! 🎂

📝 Sign up for FREE (by Friday) to the kids park run to ensure they get a timing a number

Huge well done to Matt and Addison from Louie's for taking on the EPIC Gower Ultra Bach 55km! 🧡💪What a day… brutal heat,...
27/09/2026

Huge well done to Matt and Addison from Louie's for taking on the EPIC Gower Ultra Bach 55km! 🧡💪

What a day… brutal heat, tough terrain, and pushing right to your limits. This was the furthest Addison has ever run, you both absolutely smashed it!

Thank you for coming to Wales and giving it everything!

Incredible effort. So proud 👏🧡

Thank you to everyone for your continued support 🧡 https://raise.louies.org.uk/matt-hodgson-smith

When you feel like a bad parent… but you know it’s the right thing to do 💔➡️❤️‍🩹💉Jasper had his second round of immunisa...
23/09/2026

When you feel like a bad parent… but you know it’s the right thing to do 💔➡️❤️‍🩹

💉Jasper had his second round of immunisations today.

After the first set, he was so upset, achy for days, and then came down with shingles. So this time… he really didn’t want to go through it again. And honestly, I didn’t blame him.

As a parent, your mind goes into overdrive

👉 Will it make him poorly again?
👉 Am I doing the right thing?
👉 Do I just go back to what feels safe?

Part of me wanted to run straight back to immunoglobulin treatment, because it feels like a comfort blanket. But deep down, I know we have to keep going. We need to give his body the chance to show us what it can do.

And do you know what? He was so brave. Didn’t cry once 🥺

(Although he did remind me I promised him a Joes Ice Cream after 🍦😂)

One more set to go in 4 weeks…

Then it’s off to Cardiff to see how his body is doing 🤞

Proud doesn’t even come close. 💪🧡

20/09/2026

Well Done Jasper 👏 🧡

Swansea Bay 10k 2026

Louie's

JASPER’S BACK 💪 🧡After being disappointed not to make the Kids Great North Run after his shingles, and only getting back...
20/09/2026

JASPER’S BACK 💪 🧡

After being disappointed not to make the Kids Great North Run after his shingles, and only getting back to school last Wednesday… Jasper still wanted to give the Swansea Bay a go 💪

And he was EPIC!

🏃‍♂️ 8th boy
🏃‍♂️ 15th overall out of 102

We are SO proud of his determination and resilience. After everything he’s been through, he just keeps showing up and giving it his all.

This was Jasper’s final race of 2026, running for the incredible Louie's. We will forever be grateful for their support in helping so many hospitalised families 🧡

Thank you to each and every one of you for your support in following Jasper’s Journey 🫶

If you’d like to support his journey 👇
https://raise.louiestrust.org/jasper-hodgson-smith

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The Mumbles

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