Nystagmus Network

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Nystagmus Network

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Registered charity in England and Wales, number 1180450. https://linktr.ee/nystagmusnetwork No two cases of nystagmus are the same.

Nystagmus is an involuntary movement of the eyes which can seriously reduce vision. It is thought to affect at least 1 in 1,000 and probably as many as 1 in 400 people in the UK and is the most common form of vision impairment in school aged children. People with nystagmus have varying degrees of vision impairment and encounter different levels of difficulty in everyday life, education and employment. The two main types are congenital nystagmus, where a child is diagnosed at or near birth, and acquired nystagmus, where an individual develops nystagmus, usually as a result of another health condition or physical trauma. The Nystagmus Network is here to support everyone living with nystagmus.

29/10/2026

Could you spare a few minutes to help shape better
genetic healthcare?
We’re supporting a Cardiff University Master’s student with a
short online research study that could improve how outcomes
from genetic healthcare are measured.
If you:
• have a genetic condition, or
• are at risk of a genetic condition, or
• are the parent or legal guardian of a child with a genetic
condition or who is having genetic testing .. they’d really appreciate your help.
Taking part involves answering the same six questions twice,
two weeks apart. You won’t be required to do anything in
between.
Find out more and take part: https://buff.ly/Qw1zy1L

28/10/2026

Today the APPG on Eye Health and Visual Impairment has publishes Accessible Healthcare in a Digital NHS. Only 3.1% of survey respondents rated the NHS App as fully accessible. As it becomes the “front door” to the NHS, blind and partially sighted people must not be shut out of their own healthcare.
You can read the report here: https://buff.ly/e6QiQgd

27/10/2026

Great to see more people with nystagmus engaging with sports.

23/10/2026

A gift in your Will to Nystagmus Network is more than a donation. It’s a commitment to a future.

A gift in your Will ensures everyone with Nystagmus is supported.

A gift in your Will could fund research which could improve the lives of people living with nystagmus, now and in the future.

Write you free Will any time of the year, with our Will Writer Amanda. You are under no obligation to leave Nystagmus Network a gift, but if you choose to, your legacy will help transform lives for years to come.

https://buff.ly/CSqRlfm

23/10/2026

A Charity Quiz?

As the night's are drawing in (don't forget the clocks go back on Sunday!) it's the perfect time of year to host a quiz night and fundraise for the Nystagmus Network at the same time. That's exactly what Gemma is doing and we couldn't be more grateful.

Or why not join our end of year, online quiz in December? If you'd like to join in and haven't received an invitation, please email: [email protected].

22/10/2026

A gift in your Will to Nystagmus Network is more than a donation. It’s a commitment to a future.

A gift in your Will ensures everyone with nystagmus is supported.

A gift in your Will could fund research which could improve the lives of people living with nystagmus, now and in the future.

Write you free Will any time of the year, with our Will Writer Amanda. You are under no obligation to leave Nystagmus Network a gift, but if you choose to, your legacy will help transform lives for years to come.

https://buff.ly/CSqRlfm

22/10/2026

would like to hear from as many people as possible, who are less active.

The findings of this research will directly shape their future work including:

The sports clubs they support through the VI Active Together programme
The multi-sport and sport-specific Have a Go Days they deliver across the country
Which NGBs and partnerships are prioritised

The onlne survey closes on 3 November 2026. It is open to blind and partially sighted people of any age across the UK.

https://buff.ly/AQLXwih

20/10/2026

Already got a Will? Brilliant.

If you're planning to renew, why not leave Nystagmus Network a gift?

Your legacy really could change the future of people living with nystagmus.

https://buff.ly/CSqRlfm

Address

Stockport

Telephone

+441427718093

Website

https://nystagmusnetwork.org/

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