Jonah’s Journey

Jonah’s Journey Birth complications, Cancer, Secondary Infertility and Twin Loss, - a few tear jerkers and a lot of celebrating success we never take for granted 🫶🏼

I feel like every day with Jonah comes with this tiny question hanging over my shoulder: “Is this normal?” I think every...
23/11/2025

I feel like every day with Jonah comes with this tiny question hanging over my shoulder: “Is this normal?” I think every parent asks it, but I still catch myself wondering if I’m somehow the only one doing it on loop.
I sit there thinking: is this a phase? a leap? a quirk? or just… Jonah being Jonah?

I watch him at baby groups, how he’ll happily toddle over to any adult and plonk himself on their lap like he’s known them for years. Part of me melts, because he’s so trusting and open-hearted. Another part of me pokes that same question again: should he have more “stranger danger” by now? Then I remind myself that he’s still so little. He’s barely tasted the world. How could he possibly know who’s “safe” or not? All he knows is who feels warm, who smiles, who plays.

He pushes cars back and forth for ages, completely absorbed, and I ask myself: Is this normal? Is this just his thing? Is it a boy thing? A Jonah thing? The truth is, the more time passes, the more I realise that “normal” is this huge stretchy word that somehow manages to fit every baby inside it.

Theres days when he’s extra cuddly, days when he’s distant, days when he’s loud, days when he’s intense. And I think, honestly, aren’t we all like that? Why do I expect him to be consistent when I’m not? Why do I assume his quirks are problems instead of personality? I think sometimes I get caught between wanting reassurance and wanting control.

What I keep coming back to is this: Jonah is learning who he is at the same exact time I’m learning who I am as his mum. We’re both winging it. We’re both just responding to the world with whatever tools we have that day.

And maybe asking “Is this normal?” isn’t a sign that something is wrong ,maybe it’s just a sign that I care enough to pay attention to who he is and what he needs. That I want the best for him. That I’m watching him grow so closely I notice every tiny thing. Maybe that’s what being a mum is? noticing, worrying, loving, wondering, and then realising that he’s exactly who he needs to be right now.

Maybe the real question isn’t “Is this normal?”
Maybe it’s “Does this feel like Jonah?”
And most days, the answer is yes.

Until he finds something new to make us worry about / laugh about / think about when I should be asleep.

Anogher layer underneath all of that, there’s this constant, tinnitus like buzz that humms under all this. The fear around milestones. When you’ve been told your baby had brain injury, even if they seem okay now, the whole idea of “development” becomes something different. Other parents see milestones as cute checklists; for me they can feel like cliffs Jonah has to climb.

Every new skill is a mix of pride and a tiny spike of panic. If he’s early with something, I breathe out. If he’s a bit behind, even just by a week, my mind whispers: is this the moment the extent of his birth shows? is this the delay? is this where things change? Has reality cracked? It’s exhausting, carrying that invisible stopwatch in my head.

I can never dwell long, I watch him and see how determined he is. The absolute textbook definition of resilience.
I watch his curiosity, his busy body, and how stubborn he is in the best possible way. Jonah doesn’t know about milestones or charts or what professionals expect. He only knows how to be himself, in his own time.

This is when I remind myself that his story didn’t end in those early frightening minutes of his life. It started there. And every day since, he’s been proving that his little brain is stronger, smarter, and more resilient than I ever gave it credit for.

Milestones are scary, yes. But Jonah isn’t. Jonah is brave. Jonah is capable. Jonah is still becoming who he is. He is making his Debut as a person. Maybe the most “normal” thing of all is that I’m learning to trust his pace, even when my fear tries to rush him.

He’s writing his own timeline, I’ll have to continue my patience as it unfolds.

The Hunnan motto is;
If there’s one thing that never changes, is that things always change.

I always talk about this feeling. like i did something wrong. the nicu staff were the best humans to grace this planet. ...
07/11/2025

I always talk about this feeling. like i did something wrong. the nicu staff were the best humans to grace this planet. but that feeling never leaves 💙

Visitor.
I was a visitor to my own baby.

I didn’t feel like a mother.
I had to scrub in just to see them.
I had to ask permission to hold them.

I stood by their bed, staring at monitors, that told me more about their day than I could.
I memorized the rhythm of the machines instead of the sound of their cry.
I learned to be grateful for ounces gained instead of milestones met.

I watched nurses and doctors care for my baby
in ways I should have been able to.
And even though I was thankful beyond words,
it broke something in me that I couldn’t be the one doing it.

I was a visitor.
to the baby I carried,
to the moments I had dreamed about,
to the title I had waited so long to claim.

To every parent who’s ever scrubbed in, waited for a green light, or whispered “I love you” through an incubator…
you’re not alone.

🤍

I love ironyand I hate itI love motherhoodBut I hate the body I’m in now I love that Jonah turns 1 in a week. I hate tha...
31/10/2025

I love irony
and I hate it

I love motherhood
But I hate the body I’m in now

I love that Jonah turns 1 in a week.

I hate that I had a momentary psychosis that there were bugs crawling out of my ears when Jonah stopped breathing

speaking of bugs
I love butterflies- terrified of moths
I love snails- terrified of slugs
I love squirrels- terrified of rats

maybe if a rat had a bushy tail I’d learn to love it?
but it doesn’t - so I don’t like them.

maybe if Jonah’s birth went okay it would have been the best day of my life? but it wasn’t. So I don’t like that day

I love my son- but I hated his pregnancy

I love my cat- but he killed 4/5 of the butterflies we hatched.

One survived
I think it was you Robin 🫶🏼

Please give me the strength I need to enjoy a time I should be celebrating but instead fills me with dread🦋🦋🦋🦋

Jonah needs a special day X

this.4 times it took for the spinal block to work. I guess I am pretty tough😉
31/10/2025

this.
4 times it took for the spinal block to work.
I guess I am pretty tough😉

To the mama who remembers that spinal needle…

You don’t forget that moment.

You tried to be calm.
You tried to breathe.
But when they told you to bend forward and hold still, your whole body was shaking not because you didn’t trust them, but because you were scared.

Scared of what was about to happen.
Scared of not feeling your own legs.
Scared of closing your eyes and not waking up.

They told you it was routine. You saw the needle. You felt the cold and then that weird, spreading numbness. Your legs went from yours to a foreign thing you couldn’t move. You couldn’t feel pain, but you felt everything else — the panic, the tug, the pressure.

You didn’t choose to be powerless in that moment.
You trusted strangers with the part of you that had been protecting life for months.
You let someone touch the place that’s been yours and only yours.
That takes guts most people never see.

What you did in that room wasn’t small.
You surrendered your body so your baby could be born.
You trusted hands you didn’t know, and came out holding a life that needed you.

That needle didn’t just numb you.
It changed you.
It was the line between “before” and “after.”
Before you were just a woman.
After, you were a mother who went through surgery awake feeling everything and nothing at the same time.

So if your back still hurts some days, or your eyes still fill up when you think of that moment, you’re not weak.
You’re remembering what it cost you to survive.
You did what you had to do, scared, shaking, and still showing up.

That’s not bravery people clap for.
That’s the quiet kind that lives in your bones forever.
And you? You carry it so well, even if no one else can see it.

🤍

“A Mother’s Knowing”Before Jonah ever took a breath, I felt him and his twin deep within me. I knew when one slipped awa...
07/10/2025

“A Mother’s Knowing”

Before Jonah ever took a breath, I felt him and his twin deep within me. I knew when one slipped away; the pain in my right side wasn’t random, it was my body grieving before anyone could confirm what my heart already understood.

Still, something told me to keep going. My body began providing colostrum weeks too soon, as if it already knew that Jonah would need every drop of strength it could give. I didn’t know why at the time — just that it felt urgent, protective, almost sacred.

When he was born and couldn’t breathe on his own, when his tiny chest rose and fell under wires and tubes, I realised my body had been preparing for this moment all along. Every ounce of that early milk was waiting for him — medicine my body made before I even knew how much he’d need it.

He came terrifyingly close to slipping away. But he didn’t. He fought, and we fought beside him My body knew. My heart refused to let go. And somehow, together, we pulled him back.

Now, against every odd, that same little boy is on the verge of turning one. His beautiful face lights up every room, his big smile and cheeky laugh drawing people in wherever he goes. He’s endlessly social, curious, and full of joy — a sunshine soul who seems to carry double the spirit, as if he’s living enough for both himself and the sibling he never got to meet.

Every breath, every giggle, every dirty giggle is proof of the fight we shared — and the bond that nothing, not even the darkest night, could break.

💙 in my feelings a lot recently x

Rhys dreamt of a purple butterfly last night , gentle and bright, hovering close as Jonah slept. We like to believe that was our other twin watching over their brother, reminding us that love doesn’t end where life does. It just changes shape, and keeps on fluttering. 🦋

04/10/2025

Cancer, you took away my dreams of more children. You’re taking away my breastfeeding and you’re taking away Jonah’s innocence too young. The idea his mum might not be there one day. 6 months of my life I’ve been a slave to this disease. A lifetime to go now. Dormant or not, it dictates everything now.
I’m not looking in the bright side today. Don’t wait up!

I’m not posting as much as I’d like to,I either have something to do or recovering from too much to do. Alas, there neve...
25/07/2025

I’m not posting as much as I’d like to,
I either have something to do or recovering from too much to do. Alas, there never stops being updates with little bean.

As he grows older. More neurodivergent behaviour arises. Some worrying but also some- he’s a freakin baby leave him alone.

Positive though:
he’s sitting up. 🤍
I remember in my job years ago, a parent saying all they ever wanted was their son to be able to sit up to access the world. I remember feeling so much for a family asking for such the bare minimum, or something we wouldn’t even consider being a massive achievement typically.

When Jonah was born, and we had to take life “hour by hour” the thought he would ever be able to leave hospital without tubes, or even at all felt miles away. I seem to forget how far we’ve come when I’m moaning to Rhys because our delinquent son won’t take the bottle🤣
The bloody baby was tube fed, then managed to breastfeed 3 weeks later and I’m annoyed he won’t bottle feed now. Too hard on him I am.

(Another thing I’m grieving; I’m drying up breastfeeding because I need to have stopped by my next CT scan.)
I wanted to breastfeed until he was 3. But again, look how far we’ve come.

say it with me now. FCKIN CANCER!

Jonah detestes the bottle, even though he’s being offered Kendamil comfort milk. Cream of the crop that is. Posh baby, I tell you.

Next he’ll be wanting scalloped potatoes and Lobster milk

Ah boy 🫠

because Rhys and I are still nerds on Tumblr 🤦🏼‍♀️
23/06/2025

because Rhys and I are still nerds on Tumblr 🤦🏼‍♀️

Jonah is still on newborn schedule when it comes to the night time, up every 30-40 mins. He is barely cramming in 1hr of...
09/06/2025

Jonah is still on newborn schedule when it comes to the night time, up every 30-40 mins. He is barely cramming in 1hr of nap each day at the moment too and (unsurprisingly) is so overwhelmed as a result of lack of sleep. AS AM I JONAH BEAR!
Rhys is working a lot more, so I’m on my own more which is fine. But- I’m a lot more tired. Having a baby with additional support needs is proving difficult (who’d have thought!). Public events, people’s houses are proving too much. He can’t stand the noise. Weaning is scaring me senseless. Im still struggling to lose the baby weight and honestly feel I’ve lost all my sense of self.
Anyways

We’re doing okay. Just a busy life right now.
It is in the back of my mind to update this page with positivity, but I just don’t have it in me at the moment
X

Smiles himself is 6 months old today! Aren’t I lucky to have the most beautiful, sociable most RESILIENT child. Jonah Be...
08/05/2025

Smiles himself is 6 months old today!
Aren’t I lucky to have the most beautiful, sociable most RESILIENT child.
Jonah Bear, never change~
you’ll change the world with your heart🤍

TW- Postpartum & Cancer (mother not child)What a month.We’ve been quiet. We’ve been trying to navigate how to get throug...
23/04/2025

TW- Postpartum & Cancer (mother not child)

What a month.
We’ve been quiet. We’ve been trying to navigate how to get through yet another awful time.

On April 2nd. I received an urgent call. When Jonah was very unwell in the NICU they sent my placenta off to see if there was a genetic link/reason as to why.
Unfortunately, an incidental finding of Cancer was found. Not what I expected the appointment to be at all.

It was only 6 weeks ago we had our appointment with the consultant that Jonah is out of the woods but to now hear I had cancer while I was pregnant with him.
Adding onto this, we’ve spent 3 weeks not knowing if I still had the Cancer 6 months later, or if it was taken with the placenta.

We are very pleased to say after much imaging of myself and Jonah we are both CLEAR 🥰

For myself, I will need to have a blood test every 4 weeks for the rest of my life to check my bHCG levels are staying the same.

Unfortunately, due to all complications, we have been advised to not have any more children.

We are very lucky to have the one child, as getting to this point was not easy at all. To have the choice taken away though, that’s another thing to process.

For another day…

But today let’s celebrate being cancer free 🎗️

31/03/2025

Enjoy this video of Jonah thinking he has to engage his ENTIRE body to activate a switch😂🥰

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