Florie's lost her speech, functional use of her hands, her ability to chew, she has recently lost her mobility and her back has started to curve. She suffers with stomach pains and constipation, stiff joints, and more. They describe Rett Syndrome as Epilepsy, Parkinson's, Autism, cerebral palsy, and anxiety disorder all in one little girl. The reason we have set up this fund is because not everything is available on the NHS and although me and Adam will do as much as we can, you can imagine the list of things that will help is endless. Top of our list is a EyeGaze computer, they are over 10 grand. But this will allow Florie to play and communicate with her eyes, it's amazing, we have trialled one and are excited that soon enough with enough fundraising we can have one in our home. Other things we will purchase is furniture, sensory equipment and therapies that will make Florie's day to day life easier. Florie was born 26/08, She has 2 older Brothers and comes from Hertfordshire.
