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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Williams Syndrome Foundation UK

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Williams Syndrome Foundation UK

Williams Syndrome is a rare congenital disorder that occurs sporadically in approx 1 per 18,000 births in the UK. The incidence is approximately 1 in 25,000.

It causes cardiac, physical and mental health problems, learning disabilities including sensory, behavioural, social and processing issues. Williams Syndrome is a rare disorder caused by an abnormality in chromosomes, and shows a wide variation in ability from person to person. Williams People have a unique pattern of emotional, physical and mental strengths and weaknesses. For parents, teachers, and care workers, learning about this pattern can be a key to understanding a Williams person and in helping them achieve their full potential. It is a non-hereditary syndrome which occurs at random and can effect brain development in varying degrees, combined with some physical effects or physical problems. These range from lack of co-ordination, slight muscle weakness, possible heart defects and occasional kidney damage. Hypercalcaemia - a high calcium level - is often discovered in infancy, and normal development is generally delayed. The Foundation hears of over 75 cases a year - and this figure is rising as publicity spreads.

01/11/2026

Please join us in wishing Paul a big happy birthday for today! 🥳 We hope you have lots of fun celebrating your special day. 🎂

29/10/2026

Our next Dads Support Group with Gareth Martin, is on Tuesday 3rd November at 7.30pm! ❤ If you would like to meet and chat with other WS dads, share experiences or gain advice, please email [email protected]

24/10/2026

Please join us in wishing Aubrey a big happy 5th birthday for today! 🥳 We hope you have a great day and have lots of fun celebrating! 🎂

21/10/2026

Join us on Saturday 24th October at the Make Café, Portsmouth.🍰 There is a soft play area and lots of crafting bits for the younger children and space for parents and adults with WS to chat.☕
Just 5 minutes from Fratton station and with a car park next door! Please email: [email protected] for more information.

18/10/2026

Fabulous festive fun for the whole family! 🧑‍🎄 Whether you join our London team or take part in a Santa Run closer to home, it's a great way to kick off the Christmas season, and the perfect opportunity to raise vital funds for the WSF during the season of giving. Email: [email protected]

15/10/2026

The WSF are very pleased to be able to offer mental health support to our members through our partnership with . We will be holding the following online workshop for parents of adults and teens with Williams Syndrome:

Tuesday 27th October - 7pm - 8.30pm - Living with Uncertainty

For all enquiries relating to Rare Minds, please email: [email protected] 💙

15/10/2026

Congratulations to Archie who won Class Dojo Star of the Week at his mainstream school! ⭐Well done Archie! 👏

14/10/2026

Good luck to WSF Patron on the premier of Ghosts: The Possession of Button House. 👻 The beloved and award-winning BBC comedy GHOSTS arrives on the big screen this Halloween. Tickets and pre-bookings available.

14/10/2026

Do you want to better understand what life is like for your adult son or daughter who has a disabled or neurodivergent brother or sister? Perhaps you’d like to feel closer to them, know how to support them better, learn what help is available, or start conversations about the future. Come along to our supportive online workshop to explore these questions together with other parents. For more info and to book your place visit www.sibs.org.uk/beside

14/10/2026

Our next siblings Zoom chat is on Thursday 15th October at 8pm, where we will be joined by adult members with WS siblings for an informal chat about the positives, strengths and challenges of having a sibling with WS. Please email: [email protected] if you would like to join in or find out more. ⁠ ⁠

Address

Portsmouth

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+442085671374

Website

http://www.williams-syndrome.org.uk/, https://www.justgiving.com/wsf

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