08/09/2025
The message no one wanted to write but was so eloquently put by Katie!
It is with utterly broken hearts we inform you that Alex, our brave and handsome boy, passed away on Tuesday 2nd September.
He had just completed the first week of his new treatment plan but tragically suffered a fatal brain bleed…he quietly slipped away, surrounded by family and wrapped in the arms of his courageous and devoted wife Elle.
I don’t claim to understand the purpose of why he was taken so soon or why Elle has been left without him… but I do know that although the lifetime they planned was cruelly cut short, the love they shared and impact it had, ensures their souls will be forever entwined.
Maybe the story of our life is scripted long before any of us are born- destiny had already planned that these two soulmates would meet, would fall in love and for whatever reason, would endure this fate together.
On the night we left the hospital for the last time, the Nurses and staff lined the hallway to pay their respects to Alex and to cuddle and praise Elle. They were so in awe of the love, care, maturity and selflessness she had shown- Sleeping on a chair besides her husband for 6 weeks straight, being with him every single day- a level of dedication they rarely saw and sadly many never experience.
Her strength and determination to find treatments, to keep Alex positive and to tirelessly fight for him was acknowledged by everyone who met them. Family and friends are so proud of her but more importantly, Alex was so immensely proud of her. He told his friends that without her love, he would have never have made it as far as he had… he felt lucky to have her by his side and Elle feels lucky to have loved him.
Alex has left his mark on all of us; we are all somehow better for having him in our lives- that is felt by the gaping hole he leaves in our hearts.
There are so many things I wish could have been different for him, so many things he deserved better. We would have fought to the end of time to make him well but it was clear in the end that his body was tired, he’d had enough.
In the last 6 weeks we’ve had some wonderful and sometimes painful conversations- we spoke about things no parent ever wants to. We discussed his hopes, fears and what Alex’s legacy would be. I assured him that we would celebrate his memory always, and promised to help others in his name.
We are therefore turning their GoFundMe Account into the Registered Charity Alex wanted to establish, despite the outcome of his own battle. We will fulfil his dream of relocating to Shropshire where we will build the kind of place he and Elle so desperately needed but could not access.
The Alex Able Retreat will offer visitors a cosy and homely place to stay and heal. Surrounded in the beauty of nature that Alex so wanted for himself. We will ensure that each guest, receives a little bit of the love that was supposed to be for him.
Elle and I thank you all so much for your generosity and support to date; and we really hope you will continue to support us, to raise funds and share Alex’s story… it doesn’t end here, Alex’s legacy will live on.
Together The Alex Able Retreat will make someone else’s journey a little easier and offer hope when it feels like there is none -let’s continue to make Alex proud!
All my love,
Katie ###
