Gilly Kicks Cancer

Gilly Kicks Cancer Hi, I’m Gilly, diagnosed with brain cancer. I’m determined to fight with all my strength, but I need your help.

Please support me in raising £250K for immuno or targeted therapy to defeat this cancer. Together, we can make it happen.

A Christmas Day Message🙏❤️This year has been the hardest year of my life. There were times when a dark cloud of fear and...
25/12/2025

A Christmas Day Message🙏❤️

This year has been the hardest year of my life. There were times when a dark cloud of fear and uncertainty consumed me. But even in this darkest storm, something more powerful broke through; something that rescued me from the dark; something that gave me strength; something that has kept my Hope alive; something that conquered all the darkness.

Love. Pure, unconditional, everlasting Love.

To my family, it doesn't matter how much you are tested, I know you will weather the storm for me and with me, for as long as you are here. You are my greatest blessing in life.

To all my friends who have stood beside me, thank you. For every message, for every loving thought, every prayer, every word of encouragement, every time you showed up, every time you checked in, thank you. Your love is a mirror of light that shone through my darkness. You gave me strength to fight.

To all the doctors, nurses, consultants and NHS staff, you are my Christmas angels. You saved me. Thank you for giving me reassurance in my darkest moments, for looking after me with so much care. I will forever sing your praises.

To every stranger who I crossed paths with and wished me well, thank you. To the young man who walked over in that London cafe and offered words of wisdom and comfort as tears rolled down my cheek, you restored my Hope and brought me peace in that moment. Wherever you are, God bless you. To the kind florist who gave me a flower to cheer me up on the day I broke down in her shop - thank you for putting a smile back on my face.

So even in the darkest storm, so much light has flooded through. That light is, Love. It's the heart of humanity that beats louder than all the bad and evil. It is the goodness of friends, family and strangers.

To all of you, I wish you a wonderful Christmas, and thank you for all your love, care and support this year. It's why I'm standing here today with a smile on my face and a grateful heart.

Happy Christmas & a very Healthy, Happy New Year🙏❤️

My Beautiful Church ⛪️✝️🙏       Reflection:✍️ At the beginning of this year my life took a very unexpected turn. So many...
20/12/2025

My Beautiful Church ⛪️✝️🙏

Reflection:✍️

At the beginning of this year my life took a very unexpected turn. So many nights I stared at my ceiling, tears rolling down my cheek, my heart racing with fear. It was like I could almost hear the ticking time bomb in my head. I stared into the darkness, longing for the light to break through my curtains. For months my life-changing diagnosis was like some noxious gas that I just couldn't escape; I was engulfed by words and places I just wanted ro run from.

For many months I was numb. It was like I shut down, like a computer that needed to reprogramme. But even in those depths of despair and fear, there was a flicker of light that I knew was there. Two days before my seizure, I asked a very good Christian friend of mine about her Faith. I wanted to know the role that God played in her life and how it had transformed her life so much. She was so keen to share this with me, but in that phone call, we only scratched the surface. She excitedly told me to phone her two days later, on a Sunday, when she would happily open up about her journey of becoming a Christian and finding God.

We never had that phone call. Instead I was sat in a hospital, waiting for a scan to understand why I had collapsed that afternoon from a seizure.

Twenty-Four hours later, a doctor stood at the end of my bed and delivered the earth-shattering news: I had a cancerous tumour in my brain. A void opened up and swallowed his words; I heard them but somehow they didn't reach my consciousness. My instincts of self-preservation pushed them away as I desperately waited for reassurance. The only thing I longed for in the hours that followed, was the comfort and familiarity of home.

A day later, when I did return home, everything felt different. I knew that life would never be the same. I knew that I would have to find a way to survive, a way of facing and dealing with a raging fear and the terrifying unknown. What is going to get me through this? How could I face each day, with the great weight of this dark reality clinging to my thoughts?

It was heavy for awhile, but then I felt the presence of something greater than fear; the presence of something beyond what I could see. This presence I knew was God. I knew that when I asked my friend about Him, two days before my seizure, it was a sign that I was, unknowingly at the time, seeking Him, almost calling on Him, and he too, had been looking for me, opening a door and holding out His hand. Knowing this gave me such peace, and a deep belief that He would guide and protect me, that if I called on Him through prayer, he would stand beside me and show me what his healing hands could do.

I started to look out of my window in the morning and thank Him for the gift of another day. I turned my face to the blazing light of the morning sun and felt a deep gratitude, like never before, that I could feel the warmth and the glow of those rays against my cheek. Glory be to God, my heart would sing, for here I am, taking in this beautiful moment with all my senses alive. How blessed am I, my heart cried out. So even though my storm was still raging, somehow it was calmed in moments like this, and the light of that morning sun, the light of God, shone through so brightly, that my Hope and faith lifted me and that raging fear was silenced.

My walks in nature also took me to a deeper place, a place where the sound of the birds drowned every other human sound and grew louder whenever I called upon the Lord. When I spoke to God, I realised that those wildly dancing trees that suddenly drew my gaze were his waving hands, his message that he heard me. Nothing was random. It was like a finely tuned world where something beyond the earthly realm was finding it's way to my heart. This might sound like some poetic nonsense, but when your heart is open, truly open, this beautiful wave moves you to see the world in a very different way.

One day, at the hour of twilight, I remember asking God for his help and I then I looked up, as if I wished he could send me a sign that he was listening. Through the smallest crack of a grey cloud, right in the middle of this hollowed out cloud, was a dot of light. I thought perhaps it was a plane, so I waited for it to move. It didn't. I closed my eyes and opened them again, and right above me was that same dot of light. It was unmistakably, a tiny star. This is not coincidence; this was God's presence, a light in my darkness, a sign he was there.

So is it just my faith that has helped me through this storm? No, it is the greatest blessings of my life too. My family and my friends and the goodness of so many human souls who have crossed paths with me on my journey.

My parents are 68 years old and the most loving, devoted, caring parents a child could hope to have. I have seen what unconditional love is; their love is the kind of sacrificial love that reflects that selfless act of Jesus who died on the cross for our salvation. My parents have shown that there is nothing they wouldn't do to save me. They have carried my burden too; the fear that has eaten away at me, has consumed them too. But in the face of it all, they have shown resilience and strength.

My dad has driven hundreds of miles to hospitals, both of them have sat for hours with me outside clinic rooms, and cancelled their own plans to be at my side. They've seen me at my worse, listened to me cry, watched me fall apart, and still kept their heads above the waves. They are quite simply, remarkable humans, and I am so blessed to call them my Mum and Dad. I am here today because of the sacrifices they have made, yesterday, today and always. But sadly, I have not shown them the thanks they deserve; I am not worthy of their love and yet I know how lucky I am to have them.

To all my friends: I want to reach out and embrace you in my arms. If ever you wanted to know what a true friend is, I would love you to meet mine. Every message, every call, every visit has shown how much they care.

So, after a successful brain operation, 30 rounds of radiotherapy, many tablets of chemotherapy and 21 rounds of hyperthermia, I am still here, days away from Christmas day.

This Christmas I will spend longer with those that I love, and hold them closer. I will pray to God for all that I have, and all he is doing to help me stay strong and keep fighting. I pray that all those battling cancer and facing adversity, will find a way through and hold onto Hope. Finally, I pray that in 2026, there will be a cure for GBM🙏

Merry Christmas my dear friends and a very happy, healthy new year🎄🌟❤️

16/09/2025

Greeted by the wonderful Dr. Mulholland today. Managed to persuade him to appear on video!

Here he is setting me up on the oncotherm machine & talking a little about what it does🧠

11/09/2025

All Party Parliamentary Meeting on Brain Tumours: A summary🧠📝

On Tuesday this week, myself, Dad and a friend attended an all party parliamentary meeting on brain tumours.

This group lays bare the shortfalls of the current NHS standard treatment for brain tumours, pointing out that they kill more children and adults under the age of 40, than any other cancer. Despite this, just 1% of the national spend on cancer research has been allocated to this area of medicine, since records began in 2002.

We also heard from experts in brain tumour diagnostics, genetic testing and tissue storage. At present this is somewhat of a 'postcode lottery.' We know from our own research and experience, how valuable tumour tissue is for diagnostics and possible vaccine production. Unfortunately, for us and many others, much of this knowledge comes when it's too late. In addition, there are no standardised procedures in operation to safeguard tumour tissue, that could potentially provide patients with equal opportunities and benefits, post-surgery.

Issues related to brain tumour tissue are very relevant to my own position, and other family members shared their own experiences in the meeting, highlighting the inadequacies surrounding tissue preservation and testing.

In a follow-up post, I will share more details about my own experience on this matter and my advice to anyone before undergoing brain surgery.

Thank you for the invitation and for your incredible efforts to raise awareness and to push for changes in treatment for brain tumour patients.

If you do one thing today, please click the link below, sign the petition & share with others: ✍️

https://petition.parliament.uk/petitions/738881

Thank you🙏❤️

Please, please could you click the link below and sign this petition, to help increase funding and improve outcomes for ...
11/09/2025

Please, please could you click the link below and sign this petition, to help increase funding and improve outcomes for brain cancer patients💪🧠✍️

Together we can make a difference🤲

Thank you so much for your support❤️

Brain cancer is the biggest cancer killer of children and adults under 40, 87% with a high-grade brain tumour diagnosis die within 5 yrs, and yet it gets just 1% of the national spend on cancer.

Brain Cancer Justice Event: ATTENDING 🗓  On Tuesday 9th September myself and my family will attend this hugely important...
07/09/2025

Brain Cancer Justice Event: ATTENDING 🗓

On Tuesday 9th September myself and my family will attend this hugely important Brain Cancer Justice event in Parliament Square, which is raising awareness about the need to move forward with research and treatment for brain cancer patients.

We have reached out to our local MP, Jeevun Sandher, and hope they will be able to attend.

Following this, Dad and I will be attending an all party parliamentary group for brain tumours🧠💪

For more details: https://www.facebook.com/share/16tnfhfiqi/

COME STAND WITH US

29/08/2025

Went and bought some new...HAIR! 👱‍♀️😃💛

When I was told I would lose some hair through radiotherapy, any sadness I felt was quickly replaced by a greater sense of gratitude for the treatment I was getting to help me fight a brain tumour.

If they'd told me I'd lose every strand of hair, I would have said, "It's fine, as long as I'm here and fighting." It's only hair, I told myself.

Did I lose all my hair? NO.
Does it bother me if people can see bald patches when I'm out & about? NO.
Did I cry? A little.
Do I miss my thick, bouncy curls? Of course!

Wig shopping was not high on my priority list, but today I went to Aderans Trendco Nottingham out of curiosity, not thinking I would find anything, and certainly not expecting to come away wearing a wig.

But Steph was amazing, and fixed me up with one that immediately brought me to life and lifted my spirits✨️

So now I'm rocking a wig, and loving it! 😃

RUN Loughborough member Gilly Entwistle is facing the biggest challenge of her life. Her heartfelt story is now live on ...
28/08/2025

RUN Loughborough member Gilly Entwistle is facing the biggest challenge of her life. Her heartfelt story is now live on our blog and you can find out all kinds of ways you can help us and hope Gilly Kicks Cancer 💗💗

At RUN Loughborough, we know that running is about so much more than PBs, finish lines, or medals. It’s about the strength of community, the courage to keep moving forward, and the bonds that grow when we run side by side, no matter the distance. Today, we want to share the story of our amazing cl...

26/08/2025

Please click: https://gvwhl.com/W0UYT to sign up for our One Mile at a Time Fundraiser🏃‍♀️🌟or message me if you would like me to send the link to you personally.

What: A run, relay or walk - suitable for everyone!
When: Sunday 5th October
Where: Victoria Park, Leicester

If you are unable to make it, I would be so grateful if you could spread the word about this fundraiser and share my sign up page.

Gilly Kicks Cancer one mile at a time💪

Thank you for standing beside me🙏🫶

https://www.gofundme.com/f/GillyKicksCancerA HUGE shout out to Claire Davies & Glen Chevannes for planning this fun Sund...
17/08/2025

https://www.gofundme.com/f/GillyKicksCancer

A HUGE shout out to Claire Davies & Glen Chevannes for planning this fun Sunday morning Aqua Class Fundraiser😅💦

A huge well done to everyone who took part - your energy and perseverance was amazing (so early on a Sunday!) I enjoyed participating poolside, and despite the sauna-like temperatures (🥵), you definitely had a harder job doing weights and leg lifts in water😆 You splashed it! 👏

Claire & Glen, thanks for your epic 80s/90s playlist, and the YMCA finish, Glen!🕺Finally, my thanks go to Bannatyne Health Club & Spa, Tamworth, in hosting the event and for your friendly welcome😊👍

The money raised is another much appreciated boost to my fund - your kindness and efforts to help me are keeping crucial doors open in being able to access alternative treatments and immunotherapy in my fight against brain cancer🙏❤️

08/08/2025

My Experience of mEHT (Modulated Electro-Hyperthermia)Treatment🧠

To boost my NHS chemotherapy treatment, I have also been travelling to London to receive an alternative treatment known as Electro-Hyperthermia (mEHT). The consultant leading this, and other pioneering work, is Dr Paul Mulholland, who exclusively treats brain cancer.

mEHT selectively heats up malignant cells with the aim of stimulating the immune system, triggering tumour specific immune reactions that will lead to cell death. In my case, this private treatment is combined with the NHS chemotherapy dosing on days, 1, 3 and 5, to deliver a two-pronged attack on any malignant cells.

Unfortunately, mEHT is not currently available on the NHS, so my family has funded the this treatment from pension savings, choosing to preserve the gofundme account for what will
undoubtedly be, escalating treatment costs.

My experience of receiving mEHT has been very positive. Dr Mulholland and his team of consultants have been amazing, their encouraging and calming influences generate an important positive mental attitude. They greet me with smiles and are extremely attentive and caring, always asking questions about how I am getting on.

I was informed in my consultation that side effects were minimal but patients can feel very tired the day after treatment. There is also a very small risk that it may trigger a seizure but I was reassured that this was not something any of their own patients had experienced and it was not likely to happen. As a precaution I was prescribed some emergency anti-seizure medication (Clobazam tablets and liquid Midazolam) which I carry with me at all times.

After 15 sessions on the Oncotherm machine, I have had no seizures and also experienced little, if any notable fatigue, following treatment. In fact, I am often out and about walking the day after.

Whilst on the machine I was told that I may feel quite warm and may sweat in the area where the machine pad is placed over my ear. I have coped well with this and never felt uncomfortably warm. However, the doctors are very keen to ensure I am comfortable throughout the one hour session and will happily make adjustments.

It is so evident that Dr Mulholland and his team are incredibly devoted to the research and development of treatment for glioblastoma patients and being able to ask questions and talk to them has been invaluable.

It's time that survival rates and outcomes for this diagnosis begin to improve.

For anyone who is curious or interested in this treatment, please contact the private patient manager: [email protected]


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Loughborough

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