Endometriosis UK

Endometriosis UK Endometriosis UK provide support, information and a community for people affected by endometriosis

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“We are receiving an increasing number of support requests to the Nurse Support Helpline, and we want to make sure that ...
08/10/2026

“We are receiving an increasing number of support requests to the Nurse Support Helpline, and we want to make sure that everyone who needs us has the opportunity to be heard.” - Elsa Palmer, Endometriosis Nurse Specialist

This is why this year’s Big Give is so important.

We’re raising the funds needed to expand our Nurse Support Helpline so we can bring another Nurse Specialist into our team. This means more appointment slots available, increased evening availability and greater access to specialist support for those living with endometriosis when they need it.

Every donation helps us make this happen. For one week only, between 6-13 October, donations through the Big Give campaign page will be matched by the Women & Girls Match Fund. This means one donation, double the impact at no extra cost to you.

To have your donation doubled today, please visit the link or share this post to help us raise awareness and reach more people: https://donate.biggive.org/campaign/a05WS00000FyMJaYAN

A huge thank you to those who have donated so far. We’re incredibly grateful for your support 💛

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Image descriptions:
1. A photo of Elsa Palmer, Nurse Specialist for Endometriosis UK Nurse Support Helpline. Along the bottom, a yellow banner with red text reads: "One donation, twice the impact. 6 - 13 October." A purple and black triangle logo displays: "Women & Girls Match Fund, Big Give." Above is white text that reads: "A message from Elsa Palmer, Endometriosis Nurse Specialist"

2. A faded photo of Elsa as the background of the graphic with red text that reads: "We are receiving an increasing number of support requests to the Nurse Support Helpline, and we want to make sure that everyone who needs us has the opportunity to be heard.

3. The same faded photo of Elsa as the background of the graphic with red text that reads: "Help us expand our Nurse Support Helpline so we can support more of those living with endometriosis. Double your impact by donating today."

07/10/2026

Will you donate today to help us to expand our nurse helpline?

It’s day two of our Big Give Women & Girls match fund campaign and we couldn’t be more grateful to all those who have donated so far. We have a long way to go to meet our ambitious target and we need all the help we can get.

Between 6-13 October, through our Big Give campaign page will be matched by the Women & Girls match fund. If we unlock our full match pot of £25,000 in donations this week, we’ll receive £50,000 to help increase capacity our nurse support helpline.⁠

What does this mean for our community?

We will increase capacity on our nurse helpline, meaning more booking slots available, including more evening availability. We will also introduce monthly expert support days, with a physiotherapist, psychotherapist, and dietitian each responding to calls and emails and delivering webinars, to be shared live and on YouTube, so you can access quality information in your own time.

Please donate if you can, or simply share this video to help raise awareness. Every share helps us to reach more people.

To have your donation doubled today, please visit: https://donate.biggive.org/campaign/a05WS00000FyMJaYAN

And don’t forget, if you need support, we’re here for you. Head to our website for our support services and information resources 💛

06/10/2026

The Big Give is HERE!

For those living with endometriosis, finding trusted information and specialist support can be difficult. Every day, Endometriosis UK hears from those who feel isolated, overwhelmed and unsure where to turn.

Our Nurse Support Line is a vital lifeline, offering trusted information and specialist support when it is needed most. But demand is growing, and we need greater nursing capacity to ensure that everyone who contacts us can access that support.

That’s why, through this year’s Big Give, we’re raising the funds needed to expand this service and provide more support to those who need it.

For one week only, between 6-13 October, donations made to Endometriosis UK through our Big Give campaign page will be matched by the Women & Girls match fund up to a total of £25,000. That means, if we raise £25,000 in donations this week we'll receive £50,000 to help expand our nurse support line.

Donate via the Big Give to have you donation doubled today: https://donate.biggive.org/campaign/a05WS00000FyMJaYAN

Thank you 💛

There’s still time to ask your MP to ‘Save the Date’ 📢 On 14th October, the All Party Parliamentary Group (APPG) on Endo...
05/10/2026

There’s still time to ask your MP to ‘Save the Date’ 📢

On 14th October, the All Party Parliamentary Group (APPG) on Endometriosis will launch its report on endometriosis in the workplace.

The report is based on evidence from more than 6,000 employees and employers and sets out recommendations to improve support for those with endometriosis at work.

Take just two minutes to ask your MP to attend the launch and hear why change is needed. The more voices the better - use our online form here: https://secure.endometriosis-uk.org/page/199189/action/1

A £2.4 million UK-wide study will investigate whether a tailored pain management programme could improve quality of life...
02/10/2026

A £2.4 million UK-wide study will investigate whether a tailored pain management programme could improve quality of life for those living with endometriosis.

The five-year study will explore whether an endometriosis-specific Pain Management Programme (e‑PMP) can help those whose pain is not adequately controlled by surgery or medication.

Our CEO Emma Cox says: "Symptoms of endometriosis including chronic pelvic pain can have a significant impact on someone's physical and mental health, and research is vital to helping improve management and treatment options.
We welcome this much needed research and look forward to working with the team to see how an endometriosis specific pain management programme could support those with the disease in the future."

Read more at: https://www.endometriosis-uk.org/news/university-aberdeen-awarded-ps24-million-lead-national-trial-endometriosis-treatment

02/10/2026

Have you had your say in the global survey to help improve endometriosis care worldwide?

The World Endometriosis Organisations are asking those with endometriosis what they want to change about endometriosis care through a global survey in collaboration with the World Health Organization. Findings from the survey will contribute to the development of global endometriosis guidelines.

The survey is closing soon so if you haven't shared your experience yet, now is the time.

📢 Have your say and share far and wide: surveymonkey.com/r/P53BM8M

Have your say and help shape our work in England.⁠This survey will help us to better understand the needs, experiences a...
01/10/2026

Have your say and help shape our work in England.
⁠
This survey will help us to better understand the needs, experiences and challenges of those living in England who are affected by endometriosis. The information you share will help us identify priorities for future support, guide our fundraising efforts, and ensure we invest in projects that make the greatest difference to our community.⁠
⁠
The survey takes around 10 minutes to complete, and everyone who takes part can choose to enter a prize draw for a chance to win a £50 voucher.⁠
⁠
Fill out the survey at: https://www.surveymonkey.com/r/DJVQXYF

Thank you to those who filled out our previous surveys for Northern Ireland, Wales, and Scotland. We look forward to continuing to work with our community to shape the support we provide 💛

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Image description: A red clipboard graphic on an off white background. Red text on the clipboard reads:
"If you are... living in England and affected by endometriosis, we want to hear from you! Take part in our short survey to help us better understand the needs, experiences and challenges of those living in England affected by endometriosis."

Less than one week to go 📢Our Big Give Women and Girls Match Fund campaign page opens noon Tuesday 6th October.For one w...
30/09/2026

Less than one week to go 📢

Our Big Give Women and Girls Match Fund campaign page opens noon Tuesday 6th October.

For one week only, all donations made through our campaign page will be doubled by the Big Give. We have an ambitious target of £50,000 this year, meaning we need to raise £25,000 in matched donations to reach our goal. If you're considering making a donation, this could be the perfect time.

Every donation helps us continue more of the work we do to support those with endometriosis. We could not be more grateful to each and every person who chooses to support our work 💛

We look forward to sharing more about our campaign and what we hope to achieve.

Save the date: 6-13 October 2026

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Image description: A faded photo of a woman using a phone. Red text over the image reads: "Double your impact. 6 days to go." Along the bottom, a white banner with red text reads: “One donation, twice the impact. 6 - 13 October.” A purple and black triangle logo displays: “Women & Girls Match Fund, Big Give.”

We're pleased to be at the Labour Party Conference this week where we have been encouraged to see women's health on the ...
29/09/2026

We're pleased to be at the Labour Party Conference this week where we have been encouraged to see women's health on the agenda.

This has been a great opportunity to engage with MPs and stakeholders, including Health Secretary Yvette Cooper, pictured here with our CEO Emma Cox and Trustee Sanchia Alasia.

There has been significant discussion around the renewed Women's Health Strategy, the 10-Year Health Plan and the government's wider vision for reforming health services. We look forward to working with the new Health Secretary and wider government to ensure these plans deliver real change for those with endometriosis and menstrual health conditions.

Endometriosis UK will be attending Party Conferences for Plaid Cymru and SNP and where we look forward to engaging with those in power to call for the change you deserve.

Closing this week!Have your say and help shape our work in Scotland.This survey will help us to better understand the ne...
28/09/2026

Closing this week!

Have your say and help shape our work in Scotland.

This survey will help us to better understand the needs, experiences and challenges of those living in Scotland who are affected by endometriosis. The information you share will help us identify priorities for future support, guide our fundraising efforts, and ensure we invest in projects that make the greatest difference to our community.

The survey takes around 10 minutes to complete, and everyone who takes part can choose to enter a prize draw for a chance to win a £50 voucher.

Together, we can help improve support, awareness and outcomes for those affected by endometriosis across Scotland.

Fill out the survey at: https://www.surveymonkey.com/r/PP575L3

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