Endometriosis UK

Endometriosis UK Endometriosis UK provide support, information and a community for people affected by endometriosis

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Curious about the effects of diet on endometriosis symptoms? While high-quality evidence is still limited, there is a gr...
19/08/2026

Curious about the effects of diet on endometriosis symptoms? While high-quality evidence is still limited, there is a growing understanding of the role of nutrition for symptom relief. Research is ongoing, and many report that making changes to their diet helps with their endometriosis symptoms. 
 
We have gathered the latest evidence and put it all in one place in our Diet and Complementary Therapies for Endometriosis booklet so you can make an informed decision about what may be worth trying for symptom relief. As always, it is important to remember that what works for one person may not work for another.
 
Read more in our Diet and Complementary Therapies for Endometriosis booklet: endometriosis-uk.org/publications

Image descriptions:
1. A slightly faded picture of Mediterranean diet foods in the background, including tomatoes, almonds, broccoli, blueberries, oats, walnuts, leafy greens and a salmon fillet arranged on white plates. In the centre, white text highlighted red reads: “Endometriosis, Diet and Nutrition”. The Endometriosis UK logo appears at the bottom.
 
2. The same faded Mediterranean food background appears on all slides, featuring tomatoes, almonds, salmon, broccoli, oats, walnuts and blueberries on white plates and surrounding the plates. At the top, red handwritten-style text reads: “Diet and Nutrition”. Two bullet points below read: “You may have read the certain diets can help manage endometriosis symptoms. There is little high-quality evidence for this but there is growing understanding of the role of nutrition for symptom relief. Research is ongoing, and many people report that making changes to their diet helps to relieve symptoms. It is important to note that what works for one person may not work for another.”

Image descriptions continued in comments…

18/08/2026

Endometriosis (end-oh-me-tree-oh-sis) affects 1 in 10 women and those assigned female at birth from puberty to menopause, though the impact may be felt for life. In the UK, that’s over 1.5million living with the disease.
 
Learn to say it, learn about it: endometriosis-uk.org

On Sunday 13th September 2026 we will be hosting a Living with Endometriosis Information Day at The Royal Free Hospital,...
17/08/2026

On Sunday 13th September 2026 we will be hosting a Living with Endometriosis Information Day at The Royal Free Hospital, London.

Our Living with Endometriosis information events aim to provide those attending with information, knowledge and the opportunity to meet and connect with others.

The event will include presentations and workshops relevant to living with endometriosis from a range of speakers including Doctors, Nurses, Pain specialists and Clinical Psychologists. Topics include, symptoms and diagnosis, management and treatment options, wide impact of endometriosis including fertility and menopause.

Learn more and register now at: https://www.endometriosis-uk.org/civicrm/event/info?reset=1&id=1195

"It is a hard battle to go through, but it can definitely be made easier by having some incredibly supportive people in ...
14/08/2026

"It is a hard battle to go through, but it can definitely be made easier by having some incredibly supportive people in your corner. I’m glad I have Lex in mine."

Navigating friendships with endometriosis can have its challenges, but Pippa shares the difference it makes to have someone show up for you.

Thank you Pippa and Lex for sharing your friendship story 💛

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Image descriptions:

1. White and pale yellow striped background with circular white and black letter beads spelling out “Pippa, Lex” across the top, alongside a star-shaped bead. This background repeats on all slides In the centre, there is a polaroid-style photo of Pippa and Lex, secured with a silver heart-shaped paper clip in the top left corner. Red handwritten-style text on the polaroid reads “Endometriosis and Friendships”, with a red four-point star illustration in the bottom right corner.

2. Text in a notes app style box reads: "Me and Lex started out as work colleagues, and now she is my closest friend who I can’t live without. We have known each other for over three years but it feels like she’s always been here. " A black line illustration of linked little fingers with a small heart sits beneath the note.

3. Text in a notes app style box reads: "I didn’t know what endometriosis was until I saw my doctor for abdominal pain, and then everything clicked. I struggled with how to live my life, seeing friends, having relationships and generally looking after myself. Lex has gone above and beyond to support me."

4. Text in a notes app style box reads: "She’s taken me to doctor appointments and scans, bringing me food and drinks on the days when it all gets too bad, to hearing me vent about how I was struggling, even though she’s heard it all a hundred times before. She’s never judged me for needing to cancel plans, or going silent for days on end when it gets too much.
Lex didn’t realise endometriosis existed until she met me, and now she had a daughter, she knows it’s something she can look out for."

5. Text in a notes app style box reads: "It is a hard battle to go through, but it can definitely be made easier by having some incredibly supportive people in your corner. I’m glad I have Lex in mine." In the lower right corner is a small rounded photo of Pippa and Lex with a hand-drawn pink heart above it.

13/08/2026

Living with diagnosed or suspected endometriosis and need support?

We’re here for you 💛

Our volunteer-led helpline, web chat, forum and support groups are available for all those affected by endometriosis across the UK for support, signposting, or just an opportunity to speak to others who get it.

Our nurse-led helpline offers medically informed support and guidance.

Also available are webinars, downloadable resources, and our online symptom checker.

Visit endometriosis-uk.org today to learn more 💛

There's still time to add your voice and call for change in Scotland and Wales 📢 Elections recently took place in Scotla...
12/08/2026

There's still time to add your voice and call for change in Scotland and Wales 📢

Elections recently took place in Scotland and Wales and last month, we launched an e-action for you to call on your newly elected representatives asking them to take action to improve endometriosis care.

Our easy to use online form auto-generates an email for you to send to your MSP/MS by using your address to find your local representatives.

Together we can call for the change you deserve. Fill out the online form at: https://secure.endometriosis-uk.org/page/195084/action/1

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Image description:
A yellow background with a graphic of a red envelope with a white piece of paper sticking out. On the paper, text reads: "Write to your MSP/MS to call for change to improve endometriosis care in Scotland/ Wales using our simple online form"

Could you join our Cheer Squad at running events this Autumn? Join team Endometriosis UK and make a difference as you so...
10/08/2026

Could you join our Cheer Squad at running events this Autumn?

Join team Endometriosis UK and make a difference as you soak up the atmosphere at iconic events in the UK.

We’re looking for cheer volunteers at:
The Great North Run on Sunday 13 September
The Royal Parks Half Marathon on Sunday 11 October

Learn more at endometriosis-uk.org/volunteer or visit the link in our bio 💛

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Image descriptions:
1. A video of Endometriosis UK cheer volunteers shaking tambourines. Text over the top reads “Cheer with us at running events this Autumn. 3 reasons to join team Endometriosis UK”
2. A photo of two cheer volunteers wearing yellow tabards. Text reads: “Have fun and meet others. Cheering can be a great opportunity to meet and connect with others affected by endometriosis. You’ll be joined fellow supporters and Endometriosis UK staff for a fun and inspiring day out.”
3. A photo of three cheer volunteers holding up supportive signs. Text reads: “Raise awareness of endometriosis. By joining our cheer squad, you’ll help to raise awareness and visibility of endometriosis and Endometriosis UK among the general public.”
4. A photo of a runner smiling in an Endometriosis UK t-shirt. Text reads: “Support our amazing runners. Your cheering can provide a much needed boost for runners. These little moments of support can have a big impact.”
5. A photo of four cheer volunteers smiling in front of an Endometriosis UK flag. Text reads: “Ready to join us? endometriosis-uk.org/volunteer”

Summer plans, work, life, or just getting through the day - we asked our community what it's really like managing endome...
07/08/2026

Summer plans, work, life, or just getting through the day - we asked our community what it's really like managing endometriosis when life doesn't slow down. ⁠
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You shared your tips and words of encouragement, and nurse helpline advisor Zoe shares her advice too. ⁠

Do you have anything to add? Share your thoughts in the comments 💛

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Image descriptions:
1. A white heading reads “Navigating endometriosis with a busy schedule” over a split background showing a laptop on a desk and containers of fruit on a picnic blanket. Additional text reads “Tips from our community... and our nurses”.
2. A graphic featuring a faded image of a picnic blanket and fruit in the background. Text reads: “This summer, we asked you what it’s really like managing endometriosis when life doesn’t slow down. You shared your tips and words of encouragement for others. Here’s what you said...”
3. A graphic displaying several community-submitted messages in text boxes over the faded picnic blanket background. Messages include advice about setting boundaries, slowing down during flare-ups, inviting friends anyway even if plans may change, recognising that rest is important, and balancing self-care with activities.
4. More community messages over the same picnic blanket background. Messages encourage self-kindness, resting when needed, staying hydrated, seeking support, prioritising personal wellbeing, using cooling methods during hot weather, and recognising that endometriosis pain is real.
5. A graphic featuring a faded image of a laptop on a desk in the background. Text reads: “Nurse helpline advisor Zoe shares: I often advise building in "micro-rests". The aim is to avoid the feeling that you have to choose between doing everything and doing nothing. Even five or ten minutes to take a breath, sit quietly, stretch gently, or use a heat or cool patch before carrying on can be beneficial.”
6. Laptop on desk background. Text reads “Zoe continues… And remember that you don't need to wait until you are really struggling to seek rest or relief. For example, if pain relief is part of your plan, taking it as advised rather than waiting until pain becomes severe may help it to work more effectively, hopefully enabling you to continue with plans and activities.”
7. Picnic blanket and fruit background. Text reads: “For information, resources, and support, visit: endometriosis-uk.org”. The website address is highlighted in a yellow box

06/08/2026

Our webinar on ‘Navigating GP Pathways’ is now available to watch.

Dr Rebeccah Tomlinson explains the GP pathways for endometriosis and shares tips on how you can advocate for yourself to get what you want out of your GP appointment.

Webinar recording available at: endometriosis-uk.org/past-webinars or at the link in our bio 💛

“I just wanted to say that after the call I burst into tears. It was the first time anyone had taken the time to explain...
05/08/2026

“I just wanted to say that after the call I burst into tears. It was the first time anyone had taken the time to explain things so clearly and kindly and I finally felt as though I knew what was going on in my own body.
I now have an action plan for tackling my pain, and I feel so much more confident in going to my GP and asking for the help I need. She was so kind, compassionate, and funny, and in that phone call has made me feel understood and validated. I will recommend this service to everyone I meet with endometriosis”

Thank you so much to the caller who shared this feedback for our nurse helpline. Hearing that someone felt validated, understood and empowered after speaking with one of our specialist nurses is an important reminder of why this service exists 💛

If you or someone you know is living with endometriosis and need support, our nurses are here to provide and evidence-based information and compassionate support over the phone, or by email.
Learn more about the service at: endometriosis-uk.org/nurse-support or visit the link in our bio.

Image descriptions:
1. Graphic featuring a quote in a handwritten font on an off white background. The quote reads: “After the call, I burst into tears. It was the first time anyone had taken the time to explain things so clearly and kindly.” The words “clearly and kindly” are highlighted in yellow. Small text reading “Nurse Helpline caller (shared with permission)” is shown at the bottom.
2. Quote continues with the same styling as the first slide. The quote reads: “I now have an action plan for tackling my pain, and I feel so much more confident in going to my GP and asking for the help I need. I will recommend this service to everyone I meet with endometriosis.” The word “everyone” is highlighted in yellow.

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