08/10/2026
What happens when hospice care is left to chance? For some families, it means having no respite care close to home.
Jada-Lea, who has a rare genetic condition, has short breaks and expert nursing care at East Anglia's Children's Hospices - EACH. For her parents, Trevor and Michelle, it’s the only chance they get to switch off from being carers.
“In terms of respite care, there’s nothing here, and it’s a gaping black hole. The only break we get is when Jada-Lea's at Milton,” says Trevor.
Children’s hospices only receive around a third of the cost of their care from government, so the rest relies on what local communities can raise. Whether that support is there can come down to where you live.
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