Scleroderma & Raynaud's UK - SRUK

Scleroderma & Raynaud's UK - SRUK Welcome to our page where we offer support & information to those affected by Scleroderma & Raynaud's

Scleroderma & Raynaud's UK (registered charity number 1161828) was formed on 31st March 2016 from the merger of The Scleroderma Society and The Raynaud's & Scleroderma Association.

Scleroderma can be difficult to diagnose. It can develop gradually and take on different forms, and there isn't a defini...
16/06/2026

Scleroderma can be difficult to diagnose. It can develop gradually and take on different forms, and there isn't a definitive test that offers a clear yes or no answer.

Instead, diagnosis is determined by evaluating the entire person, considering their symptoms, conducting a physical examination, and reviewing blood tests. This process may require a visit to a specialist, typically a rheumatologist, who focuses on joint and connective tissue disorders.

We know it can be stressful to make sure you are covering everything you want, so we have developed an appointment planner with leading healthcare professionals and members of our patient community 🤝

Download our appointment planner here ➡️ https://www.sruk.co.uk/get-support/support-for-you/appointment-planner/

15/06/2026

It's , and this video, Simon shares his journey with diffuse cutaneous systemic sclerosis, covering everything from early symptoms and diagnosis to treatment and living and thriving with .

Whilst scleroderma is significantly more prevalent in women, men account for approximately 20% of cases, underscoring the importance of hearing and sharing men's experiences.

This , we are amplifying the voices that often go unheard. Are you one of them? Share your story with us to help raise awareness among healthcare professionals, ensuring they recognise the early symptoms of scleroderma effectively 🤝

"I’m taking on a 19-mile walk for SRUK in support of my son Beau.Since he was a baby, Beau has faced serious health chal...
14/06/2026

"I’m taking on a 19-mile walk for SRUK in support of my son Beau.

Since he was a baby, Beau has faced serious health challenges, and later was diagnosed with Morphoea, a rare form of scleroderma. Watching him go through treatments, including a form of chemotherapy, has been incredibly tough, but his strength inspires me every day.

That is why I signed up to take part in the 19-mile walk for SRUK.

My friends know how much of a physical challenge it will be for me, but they also know how much this charity means to our family. SRUK has provided us with knowledge, reassurance and support when we needed it most.

Taking on this challenge is my way of giving something back and helping to ensure that other families facing scleroderma never feel as alone as we once did.

No matter how difficult it is, I am determined to complete it."

Please join us in wishing Clare the very best of luck on her journey đź’™

If you're inspired, you can sign up to the SRUK Walk at sruk.co.uk/walk

Scleroderma has many forms, making each person's experience unique. What unites them is their rarity, which can lead to ...
12/06/2026

Scleroderma has many forms, making each person's experience unique. What unites them is their rarity, which can lead to feelings of being misunderstood, anxiety or isolation.

Being a supportive, friend, family member or partner is one of the best things you can do for someone navigating this. Caring for someone requires patience, listening, and validating their feelings 🫶

Did you know we have a support groups for parents and carers? Our next meetings is on Thursday 18th June at 7pm (BST).

11/06/2026

SRUK WALK 2026!

We are inviting you to lace up your trainers or walking boots and take steps this summer to raise funds and awareness for SRUK.

This is your walk, your way. Whether you take 10 steps or 10,000, it all counts.

You can walk in your garden, in the park, around the house, or across town, however you Walk, wherever you Walk, you'll be joining teams across the UK to help make a difference.

Get your friends, family, colleagues and neighbours involved, or even bring your dog! You'll receive a FREE SRUK t-shirt after your receive your first donation, and the SRUK team will be on-hand to support you every step of the way.

Sign up here: https://www.sruk.co.uk/events/london-walk-2026/

10/06/2026

is an opportunity to listen to the stories of those who haven't been heard, like Simon and Dawn, as they share their first signs and symptoms of .

No one should spend years searching for answers to what their body is already trying to say. If something doesn’t feel right, trust your voice. If you feel dismissed, keep speaking up 🩵

'Scleroderma' is an umbrella term for a rare autoimmune condition. With various forms, each individual's experience can ...
08/06/2026

'Scleroderma' is an umbrella term for a rare autoimmune condition. With various forms, each individual's experience can vary significantly.

There are two primary categories of scleroderma: localised and systemic. Localised scleroderma, otherwise known as morphoea, affects the skin, creating hardened patches. Systemic scleroderma, more commonly known as systemic sclerosis, affects the skin and internal organs.

Walker Spotlight ✨"Hello my name is Amanda, I was diagnosed with diffuse systemic sclerosis in March 26 at the age of 45...
07/06/2026

Walker Spotlight ✨

"Hello my name is Amanda, I was diagnosed with diffuse systemic sclerosis in March 26 at the age of 45.
Without the support of SRUK and the resources available about this rare, chronic autoimmune disease I think I’d still be googling every possibility of what could happen to me.

That’s why myself, family and friends are taking part in the SRUK walk this summer. It gives us a chance to walk together whilst raising vital funds for research and continued support they give to us all living with Scleroderma and Raynaud’s.

I encourage all of you to sign up and take part, it’s a great way for us to enjoy the outdoors and even better if you do it as a team, as team members can do the steps for you when you're having a bad day."

Please join us in wishing Amanda the very best of luck on her journey đź’™

Did you know that up to 90% of patients with experience gastrointestinal issues? This can lead to decreased appetite a...
05/06/2026

Did you know that up to 90% of patients with experience gastrointestinal issues? This can lead to decreased appetite and weight loss, making a balanced nutritious diet essential.

There isn't a specific 'scleroderma diet’, so it is important to experiment and find out what works for you. Healthcare professionals can suggest initial treatments, and if you wish to explore alternatives, such as prescription medications, your GP can prescribe this.

Due to symptoms like decreased appetite, finding joy and balance with food is just as important as being mindful of nutrition.

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London

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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+442038935998

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