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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Scleroderma & Raynaud's UK - SRUK

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Scleroderma & Raynaud's UK - SRUK

Welcome to our page where we offer support & information to those affected by Scleroderma & Raynaud's

Scleroderma & Raynaud's UK (registered charity number 1161828) was formed on 31st March 2016 from the merger of The Scleroderma Society and The Raynaud's & Scleroderma Association.

06/10/2026

Your experience of digital ulcers matters 💚

ERN RECONNET is looking for people living with to share their experiences of managing digital lesions, including digital ulcers.

Your lived experience can make a difference, helping researchers identify unmet needs and research gaps that could inform the future of systemic sclerosis care.

📣 The survey has been extended, so there’s still time to take part. Find the link in the comments!

05/10/2026

We LOVE seeing and in the spotlight! 👏

It was brilliant to see Beth Usher sharing her story in the Mail on Sunday yesterday, helping bring much-needed awareness to these often misunderstood or lesser-known conditions.

Every story shared helps more people feel seen, heard and understood. We will keep pushing for greater recognition and understanding, both in the media and beyond.

A huge thank you to Beth for using her voice to make a difference 💚

02/10/2026

We have seen this message going around social media, and it really struck a chord. For people living with rare, chronic conditions, like , taking the time to understand can mean more than you realise.

During , Simon shared what it can be like explaining to others: “Is it cancer? No. Is it arthritis? No. Have I made it up? No. How many people have it? Not many. Do you know anybody with it? Probably not. These are the kind of hurdles you have.”

If you care about someone, take the time to learn about their condition and ask them about their experience. It really can make a difference 💚

01/10/2026

For people living with , a cold home can trigger painful attacks, numbness and, for some, serious complications.

Yet from today, the energy price cap is rising by 4%, putting even more pressure on households already struggling with the cost of staying warm.

As our Winter Energy Campaign returns, we will continue to make sure our community’s needs and experiences are heard by policymakers and the energy sector.

30/09/2026

1,160 miles and an incredible £28,500 raised! 💚 This summer, our community truly went the extra mile for people living with and .

Inspired to take part? Start planning your 2027 Walk for SRUK today, and our fundraising team will support you every step of the way.

Walk for yourself, walk for someone you love, or let your friends and family do the walking for you. There’s no one way to Walk for SRUK!

29/09/2026

Did you know that can affect the heart too? ❤️

Pulmonary arterial hypertension (PAH), which is high blood pressure within the lungs, can place strain on the heart. Persistent breathlessness can be an early sign, so it’s important to be aware of changes in how you feel.

Do you have PAH and systemic sclerosis? Get involved in our latest video opportunity!

28/09/2026

Palliative care is often misunderstood. In this webinar, our speaker Julia Russell will challenge common myths and explore what palliative care really is, who it can help, and how hospices can support people living with health conditions at any stage of their journey.

📆 Date: Thursday 8th October 2026
🕐 Time: 1pm - 2pm
🗣️ Speaker: Julia Russell, a Clinical Quality Advisor at Hospice UK

Register via the link in the comments. If you can’t join us live, a recording will be available afterwards.

27/09/2026

Raynaud's isn't just cold hands. Migraine isn't just a headache.

Conditions that are invisible, or less visible, are often misunderstood. Too many people face disbelief, dismissal, or delays in getting support because the impact of their symptoms isn't immediately obvious.

This and , we are raising awareness of the reality of living with misunderstood conditions like and , reminding our community that their experiences matter.

26/09/2026

For many people living with , pain can become part of daily life. When secondary Raynaud's, skin tightening, or digital ulcers are involved, simple tasks such as dressing, washing, typing, cooking, or picking up objects can become much more difficult.

are one of the most painful complications of systemic sclerosis. Found most often on the fingers, they can be slow to heal, prone to infection, and have a significant impact on mental health and wellbeing.

Understanding how to prevent and manage digital ulcers can help protect hand function and improve quality of life. Check out the comments section for more info!

25/09/2026

Are you up to date with the you are eligible for?

Our Healthcare Specialist, Jill, shares why it's important for people living with autoimmune conditions to check what vaccines may be available to them this autumn and winter.

Watch the video and speak to your GP practice, healthcare team or local pharmacy if you are unsure about your eligibility.

Address

London

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+442038935998

Website

http://www.sruk.co.uk/

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