Scleroderma & Raynaud's UK - SRUK

Scleroderma & Raynaud's UK - SRUK Welcome to our page where we offer support & information to those affected by Scleroderma & Raynaud's

Scleroderma & Raynaud's UK (registered charity number 1161828) was formed on 31st March 2016 from the merger of The Scleroderma Society and The Raynaud's & Scleroderma Association.

As we await next week's winter energy price cap announcement, we are thinking about the millions of people living with ...
19/08/2026

As we await next week's winter energy price cap announcement, we are thinking about the millions of people living with who rely on warm homes to manage painful symptoms and reduce health risks.

Year on year we have called on energy companies to work with us to provide support for vulnerable customers by providing fairer tariffs and targeted assistance, with clear communication about available help. We have already had some positive conversations this year, and we are looking forward to continuing to build on this.

When we think about , otherwise known as , our minds naturally consider the noticeable skin changes it causes. This ma...
18/08/2026

When we think about , otherwise known as , our minds naturally consider the noticeable skin changes it causes. This makes sense, as morphoea predominantly affects the skin, resulting in the formation of one or more patches of hardened skin.

However, its impact can reach beyond the skin, affecting underlying tissues such as muscles, fascia, fat, and even bones. Localised scleroderma can also cause itching, pain, burning sensations, numbness, tightness and restricted movement. Some people can also experience fatigue.

In fact, research suggests that discomfort and pain can have a greater emotional impact than how visible the condition is. Find out more ➡️ https://www.sruk.co.uk/about-scleroderma/what-is-scleroderma/types-of-scleroderma/localised-scleroderma/

Early diagnosis can change lives.When and secondary are identified early, people have a much better chance of access...
17/08/2026

Early diagnosis can change lives.

When and secondary are identified early, people have a much better chance of accessing specialist care, slowing disease progression, managing symptoms and improving quality of life.

Early referral also connects people to patient organisations like SRUK, providing vital support, information and services 🤝

Our latest research found that 30% of primary care professionals would wait and observe symptoms before referring suspected cases to a specialist. For conditions where delays can have serious consequences, waiting for symptoms to worsen is not the answer.

That's why SRUK is calling for action. Greater awareness and education among primary care professionals, alongside stronger collaboration between primary and specialist services, is essential to ensuring timely referral, earlier diagnosis and better outcomes.

Things we think are kinda chic! Thank you for being part of this wonderful and community 💚
14/08/2026

Things we think are kinda chic! Thank you for being part of this wonderful and community 💚

The SRUK Grant Call 2026 is open for Expressions of Interest! SRUK is inviting researchers to apply for funding to help ...
13/08/2026

The SRUK Grant Call 2026 is open for Expressions of Interest!

SRUK is inviting researchers to apply for funding to help improve treatment for people living with systemic sclerosis.

One £100,000 award will be available for work that could help doctors better understand which treatments may work best for different people.

Check the full call details on our website, or reach out to the SRUK Research Team.

The weather looks very different across the UK right now. While some areas are experiencing an amber heat-health alert, ...
12/08/2026

The weather looks very different across the UK right now. While some areas are experiencing an amber heat-health alert, others are seeing cooler temperatures.

Wherever you are, managing can be challenging, with lots of factors to consider. Summer isn't always symptom-free. Heat can be draining, and sudden temperature changes, like stepping into an air-conditioned supermarket, can trigger Raynaud's attacks.

Raynaud's can be difficult to manage at any age, but young people and those new to symptoms face the added challenge of learning what triggers their symptoms and how best to manage them day to day.

Take extra care of yourself and those you support this summer. Swipe to learn more! ➡️

11/08/2026

We hosted a webinar with Dr. Hanna Lythgoe, Specialist Nurse Lucy King, and Occupational Therapist Jen Nisbet, on juvenile , also known as .

During the Q&A session, a participant asked about the side effects of , which is frequently used as the 'first line' treatment for morphoea in both adults and children.

In this segment, Specialist Nurse Lucy King shared insights on how young people can advocate for themselves, ensuring they feel empowered to express their experiences of treatment. You can watch or listen to the full recording on our YouTube Channel.

We know that prolonged uncertainty in diagnosis can exacerbate symptoms, hinder timely treatment, and create emotional s...
10/08/2026

We know that prolonged uncertainty in diagnosis can exacerbate symptoms, hinder timely treatment, and create emotional stress for individuals and their families.

Sue Farrington, Chief Executive of SRUK, emphasises that early recognition and referral to specialised services can enhance outcomes, minimise long-term complications, and provide patients with clearer care pathways and support.

Anyone can develop , regardless of age. It is common in teenagers, often starting during puberty, but symptoms usually ...
09/08/2026

Anyone can develop , regardless of age. It is common in teenagers, often starting during puberty, but symptoms usually improve by the time they enter their early twenties due to treatment, lifestyle changes, or hormonal shifts. However, some young people may continue to experience it.

Though rare, infants and young children can also have Raynaud’s. As it is more uncommon in early childhood, seeing a doctor is important to rule out other causes. Raynaud’s should not be ignored, as it can be painful and impact daily life.

It's important to talk about experiences with Raynaud’s and seek support rather than suffer in silence 🩵

Meet the SRUK (Cat!) Team 👋 Research shows that pets can greatly improve both our physical and mental well-being, which ...
08/08/2026

Meet the SRUK (Cat!) Team 👋

Research shows that pets can greatly improve both our physical and mental well-being, which can have a profound impact when managing a .

Do you have a furry friend? We’d love to see your pictures or hear how animals help you 🐾

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London

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+442038935998

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