Follicular Lymphoma Foundation

Follicular Lymphoma Foundation Transforming lives through innovative, patient-informed research to find a cure for follicular lymphoma and find it fast.

07/08/2026

In this latest Science Simplified video, Dr Patricia Pérez‑Galán explains how follicular lymphoma can sometimes find ways to escape this treatment – either by changing the target CAR‑T cells are looking for or by creating an environment that makes it harder for them to work.​

As part of the FLF's CURE FL Awards Program, Dr Pérez‑Galán and her team have developed a new dual‑target CAR‑T approach designed to overcome these challenges. Recently published findings showed improved tumour control in preclinical models and identified a marker linked to higher relapse risk. ​

By understanding why treatments stop working, researchers can develop smarter approaches that could help deliver longer‑lasting responses and ultimately cure. ​

🔗 Find out more about Dr Pérez‑Galán's research supported by the FLF: https://www.theflf.org/our-research/our-funded-research-programs/cure-fl-programs/the-cure-fl-program-cycle-1/
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PET Scan. Bispecifics. MRD. Microenvironment. If you've ever found yourself reading about follicular lymphoma and thinki...
05/08/2026

PET Scan. Bispecifics. MRD. Microenvironment. If you've ever found yourself reading about follicular lymphoma and thinking, "What does that actually mean?" you're definitely not alone.​A follicular lymphoma diagnosis often comes with a whole new language to learn. From medical terms and treatment names to research jargon and acronyms, it can sometimes feel overwhelming.​

Our glossary is here to help – a growing library of explanations designed to help make sense of the words and phrases you're most likely to come across on your FL journey.​

📖 Explore the glossary: https://www.theflf.org/your-support-hub/glossary/

We'd love your help too! Is our glossary easy to understand? Which FL term took you the longest to understand? Or is there something missing from our glossary that you think should be there? ​

Leave a comment below and we'll add it to our list.​

03/08/2026

"I'm not just his carer. I'm his wife."​

In this clip from our recent Caring & Coping webinar, Sally shares her experience of supporting her husband Gav through follicular lymphoma.​

She speaks honestly about balancing family life, managing uncertainty and learning how to live with the worry that can come with FL. As Sally explains, supporting someone you love isn't just about appointments and practical help – it's about navigating life together.​

It's a powerful reminder that while follicular lymphoma affects the person diagnosed, it also impacts those closest too.​

🎥 Watch back the full webinar: www.theflf.org/previous-webinar/webinar-caring-coping/​

Getting Stuff Done In Heels

💜 "Lymphoma doesn't get to write the story for either of us." ​Friendship can be found in unexpected places.​After meeti...
30/07/2026

💜 "Lymphoma doesn't get to write the story for either of us." ​

Friendship can be found in unexpected places.​

After meeting Alison through the FLF community, what began as a shared understanding of life with follicular lymphoma grew into a lasting friendship built on support, laughter and always showing up for one another. Years later, they're still encouraging each other to keep saying yes to life, whatever challenges come their way.​

This International Friendship Day, we're celebrating the friendships that help people feel seen, supported and understood throughout their FL journey. 💜​

Read Charlotte's full story here: https://www.theflf.org/your-support-hub/personal-stories/charlotte-international-friendship-day/

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💜 "The friendships I've gained along the way are something I'll always be grateful for."​For Alison, one of the most une...
30/07/2026

💜 "The friendships I've gained along the way are something I'll always be grateful for."​

For Alison, one of the most unexpected gifts to come from her diagnosis was friendship.​

After meeting Charlotte through the FL community, what began as a chance connection grew into a lasting friendship built on understanding, support and plenty of laughter. Years later, they're still there for one another through life's challenges and celebrations​.

This International Friendship Day, we're celebrating stories like Alison and Charlotte's and the meaningful connections that remind us no one has to face follicular lymphoma alone. 💜​

Read Alison's full story here: https://www.theflf.org/your-support-hub/personal-stories/alisons-story-international-friendship-day/

Supporting someone living with follicular lymphoma can be one of the most important – and challenging – roles you’ll eve...
28/07/2026

Supporting someone living with follicular lymphoma can be one of the most important – and challenging – roles you’ll ever take on.​

Partners, family members and friends often find themselves balancing emotional support, practical help, uncertainty and their own wellbeing, all at the same time.​

Our upcoming webinar, Caring & Coping, is dedicated to those experiences.​

You'll hear from people with lived and professional experience as we explore: ​

🤝 What people living with FL wish their loved ones understood​
🙏 Why looking after your own wellbeing matters too​
💬 Practical ways to offer support without losing yourself in the process​
💜 The realities of navigating FL alongside someone you care about​

Whether you're supporting someone living with FL, or want to help a loved one understand your experience, we'd love you to join us.​

🔗 Register now: https://www.theflf.org/upcoming-webinar/webinar-caring-coping/

It's OK to not be OK.​Living with follicular lymphoma can bring difficult feelings in lots of different ways – whether y...
27/07/2026

It's OK to not be OK.​

Living with follicular lymphoma can bring difficult feelings in lots of different ways – whether you're newly diagnosed, on watch and wait, receiving treatment or living with the worry of relapse. These feelings are real, valid and incredibly common. ​

Click on the link below for practical strategies from blood cancer specialist and psychologist Surabhi Chaturvedi, as well as reflections from FL patient and primary care doctor Claire Hucker on coping with the down days. From recognising anxious thought spirals to focusing on what you can control, it's filled with simple, supportive ideas that may help when things feel overwhelming.​

🔗https://www.theflf.org/blog/coping-with-down-days/

​💬 What helps you through the tougher moments? If you're comfortable sharing, we'd love to hear what helps you and any practical tips you'd share with others. ​

24/07/2026

"Watch and wait isn't about doing nothing. It's an opportunity to learn about the disease, understand your treatment options.... and keep them in the bank until really needed" ​

Every person's experience of Active Monitoring (also called Watch and Wait) is different. For some people, it begins at diagnosis. For others, like Nicky, it comes after treatment. Having been diagnosed, treated, and then moved onto Watch and Wait, Nicky offers a different perspective on living with follicular lymphoma and adapting to life after treatment.​

💜 Read Nicky's earlier story: https://www.theflf.org/your-support-hub/personal-stories/nickysstory/

Have you experienced Watch and Wait after treatment? We'd love to hear your perspective in the comments, it could help someone else on their journey too.​

23/07/2026

With more treatment options available for follicular lymphoma than ever before, why is Watch and Wait (also called active monitoring) still recommended for some people? It's a question many people ask.​

In our latest article, we explore why Watch and Wait (also called Active Monitoring) remains a valid and important option for many people with FL.​

As lymphoma specialist Dr Brad Kahl explains, decades of research have shown that for people with low tumour burden FL, starting treatment immediately has not been proven to significantly improve long‑term survival compared with carefully monitoring the disease and treating when it becomes necessary. ​

That doesn't make Watch and Wait easy. But understanding the reasoning behind it can help people feel more confident in the strategy and the role it continues to play in FL care today. ​

Read the article and watch the full video: https://www.theflf.org/blog/understanding-watch-and-wait/

Supporting someone living with follicular lymphoma can bring its own questions, worries and challenges. That’s why our n...
22/07/2026

Supporting someone living with follicular lymphoma can bring its own questions, worries and challenges. That’s why our next webinar, Caring & Coping, brings together a panel of people with personal and professional experience of life alongside FL.​

​Together, we'll discuss:
💜 How to support someone without losing yourself in the process​
🤝 What people living with FL wish their loved ones understood​
🙏 Looking after your own wellbeing while supporting someone else​
💬 Practical advice and shared experiences from those who have been there​

Whether you're a partner, family member, friend or someone living with FL yourself, we'd love you to join us.​

🔗 Register now: www.theflf.org/upcoming-webinar/webinar-caring-coping/ ​

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