04/07/2026
I’m mum to an almost 8 year old boy, Jacob, with UBE2A Deficiency Syndrome which causes epilepsy and global developmental delay. Jacob was diagnosed with this condition at the age of 2. I’m looking to connect with other parents in the North West to share experiences. I currently host a coffee morning twice a year at The Simon Peter Centre in Woolton, Liverpool for parents and carers of children under 10.
