Cauda Equina Support and Advocacy UK

29/05/2026

Shout out to our newest followers! Excited to have you onboard!

Carly Charlton, Daneelia Damons, Lee Edwards, Taz Stoke, Jackie Ennis

29/05/2026

Hope you all have an amazing weekend!

29/05/2026

🌍⚽ CES WORLD CUP SWEEPSTAKE 2026 ⚽🌍

Fancy supporting a great cause while having the chance to win some cash? 💚💙

We're launching our 48-Team World Cup Sweepstake in support of Cauda Equina Support and Advocacy UK.

🎟 £20 per entry
🏆 1st Prize £250
🥈 2nd Prize £150
🥉 3rd Prize £50
🏅 4th Prize £50

💚How Does It Work?
A World Cup sweepstake is a simple game of chance where participants are randomly allocated a team and then follow that team's progress through the tournament.

⚽ Step 1 – Sell the 48 Entries
• We have 48 numbered spots available.
• Each spot costs £20.
• Purchase your spot and make your payment.
• At this stage, nobody knows which team they will receive.

🎥 Step 2 – Live Team Draw
Once all 48 spots have been sold:
• We will go LIVE on Facebook.
• All participant names will be placed into one container.
• All 48 World Cup teams will be placed into another container.
• One participant and one team will be drawn at a time until everyone has been allocated a team.

This keeps everything completely fair, transparent and exciting!

🏆 Step 3 – Follow the Tournament
Once teams have been allocated, simply cheer your team on throughout the World Cup!

At the end of the tournament:
🥇 World Cup Winner Team = £250
🥈 Runner-Up Team = £150
🥉 Third Place Team = £50
🏅 Fourth Place Team = £50

💚💙Every entry helps us continue raising awareness of Cauda Equina Syndrome, supporting those affected, advocating for better care, and building vital support services for our community.

📩 Comment below or message the page to claim your spot.

🎯 Purchase your spot here:
https://gofund.me/96debe550

Thank you for supporting Cauda Equina Support and Advocacy UK.

Together we are raising funds, raising awareness, and changing lives💚💙

Gemma Hall
Daz Nation Roberts

27/05/2026

💚💙 To Our 3000+ CES Warriors. This Community Means Everything 💙💚

To each and every one of our 3000+ CES warriors… I am so unbelievably proud of you all 💚💙

I’ve been sitting reading through the comments today and honestly, I could cry. But in a good way. The kindness, empathy, support, reassurance and love you all show each other every single day is something truly special.

When I created this group, all I ever wanted was for people living with Cauda Equina Syndrome to never feel dismissed, alone, frightened or left searching endlessly for answers the way so many of us once did.

And what this community has become is beyond anything I could have imagined. Complete strangers holding each other up during some of the darkest moments of their lives. People sharing experiences, comforting one another at 3am, reassuring someone they are not “going mad”, celebrating small wins together and carrying each other through the hardest days.

CES may have changed all of our lives, but this group proves that compassion, understanding and human connection still exist in abundance 💚💙

Thank you all for making this community what it is. You should all be so proud of yourselves too.

We fight together. We support together. We heal together 💙💚

Love always,
Gemma and Darren ###
Gemma Hall
Daz Nation Roberts

25/05/2026

Sometimes the hardest part of living with CES isn’t just the physical pain… it’s grieving the life you had before it all changed.

The missed moments. The loss of independence. The friendships that faded. The version of yourself you’re still trying to come to terms with.

And the truth is… some of what we’ve experienced should never have happened. The delays, the dismissal, the trauma, the lasting impact. It’s okay to acknowledge that. It’s okay to feel angry, hurt, exhausted or overwhelmed by it all.

Healing doesn’t mean pretending it didn’t affect you. Sometimes healing simply means surviving another day, reaching out for support, or allowing yourself to feel what you need to feel.

Please remember… you are not alone in this group. We see you, we hear you, and we understand 💚💙






゚viralシ

20/05/2026

Just a polite message to anyone who has been abusing the kindness of my colleague, this should never be mistaken for weakness or an invitation to cross boundaries.

Please do not take advantage of a colleague’s good nature, respect, or professionalism.

Any sexual, suggestive, inappropriate, or disrespectful messages will not be tolerated and will result in immediate blocking.

Respect and professionalism should always come first and will come first.

From now on due to inappropriate messages that have crossed the boundaries will nolonger be acknowledged.

If you would like any advice or help you can message me via whats app +447308 260895. (Daz)

We are here to help with giving our best advice and we don't take boundaries being crossed lightly.

You will be blocked without warning.

Many thanks

Daz Nation - Admin

Cauda Equina Support & Advocacy UK 💚💙Raising awareness, supporting warriors, and fighting for better education, recognition, and support for those affected by Cauda Equina Syndrome💙💚

19/05/2026

Some days we are not thriving… we are simply trying. Trying to manage the pain. Trying to hold ourselves together. Trying to smile through exhaustion, fear and frustration.

And honestly? That takes strength too 💚💙

To every warrior in this group quietly battling symptoms, appointments, setbacks, grief, mental exhaustion or simply trying to get through the day, we see you. You are not weak for struggling. You are human.

Please remember you do not have to carry it all alone. This community stands beside you through the hard days as well as the hopeful ones.

Drop a 💚 in the comments if today you are simply “trying” too. Let’s remind each other we are never alone in this journey.









゚viralシ

19/05/2026

💚 Become a Trustee of Cauda Equina Support and Advocacy UK 💙

We are looking for passionate, caring people who want to help us make a real difference within the CES community.

By becoming a subscriber trustee for just £9.95 per month, you will help support the growth of our charity while becoming part of the team helping shape the future of awareness, advocacy, education, and support for those living with Cauda Equina Syndrome.

As a trustee subscriber, you will:
💚 Help support the running and development of the charity
💙 Be part of important discussions and future planning
💚 Help us expand awareness campaigns, support groups, and resources
💙 Join a community driven by compassion, lived experience, and purpose

Every single subscription helps us move closer to:
✔️ Awareness posters in hospitals and GP surgeries
✔️ Better education for healthcare professionals
✔️ More support for patients and families
✔️ Building local support networks across the UK

This charity was created by people who truly understand the realities of living with CES, and together, we can create lasting change.

If you would like to become a trustee subscriber or would like more information, please comment below or message the page 💚💙

16/05/2026

💚 Meet Your Founders & Trustees 💙

Behind Cauda Equina Support and Advocacy UK are two people who understand the devastating impact of CES firsthand. Not just as advocates, but as patients who have lived through the physical, emotional, and life-changing realities of it every single day.

✨ Gemma Hall
✨ Darren Roberts

We created Cauda Equina Support and Advocacy UK because we saw too many people feeling dismissed, isolated, frightened, and left to navigate this condition alone. We know what it feels like to search for answers, support, understanding, and someone who truly “gets it.”

This charity was built to change that.

Our mission is to raise awareness, improve education around CES red flags, advocate for patients, and create a safe, supportive community where nobody feels unheard or forgotten. From emotional support and guidance to awareness campaigns and future outreach into healthcare settings, everything we do is rooted in lived experience and genuine care for others walking this journey.

By Patients. For Patients. Standing With You. 💚💙

Gemma Hall
Daz Nation Roberts