DSUK - Positive About Down Syndrome

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DSUK - Positive About Down Syndrome Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome.

We do this by providing contemporary information and support to parents and professionals. Down Syndrome UK is a parent-led organisation providing honest support and expert resources to families and professionals, empowering every child with Down syndrome to thrive.

Fancy joining our team? 💛We are looking for a Grants and Partnerships Manager to help us support people with Down syndro...
02/11/2026

Fancy joining our team? 💛

We are looking for a Grants and Partnerships Manager to help us support people with Down syndrome and their families 🧡

This is a newly created role, approved by our Trustees as a deliberate investment in DSUK's
future. It marks the start of the next phase of our growth: diversifying our income, building long-term funding relationships and putting the charity on a stronger, more sustainable footing so we can reach even more families 💚

You can find all the information and details on how to apply here:https://downsyndromeuk.co.uk/docs/jobs/grants-partnerships-manager.pdf 💛

📷 An infographic advertising the job described in the text featuring photographs of a family with a donation cheque, a young girl with Numicon, a woman writing and a truck with DSUK branding.

It’s the 1st of November so as well as   it’s also time for   🧡Mum Sarah sent us these cute pics of little Beau on his f...
01/11/2026

It’s the 1st of November so as well as it’s also time for 🧡

Mum Sarah sent us these cute pics of little Beau on his first flight and his first holiday! It’s apparent he throughly enjoyed himself 💛

📷 A carousel of photographs: an air hostess holding a little boy, the little boy asleep with a travel pillow round his neck, the boy running into the sea, a lady holding the boy and the boy smiling in his pushchair.

This week’s   is dad, Manvir who is undertaking  a press-up challenge for   🧡 100 push-ups a day. 21 days. 2,100 push-up...
31/10/2026

This week’s is dad, Manvir who is undertaking a press-up challenge for 🧡

100 push-ups a day. 21 days. 2,100 push-ups. One very special reason. 💚💛

Our beautiful son Zayyan was diagnosed with Trisomy 21 (Down syndrome) at birth.

Like many parents receiving that diagnosis, we suddenly found ourselves stepping into a world we knew very little about. There were questions, worries and plenty of emotions.

But Zayyan has completely changed our perspective. He has brought an unbelievable amount of happiness, love and laughter into our lives. Down syndrome is part of him, but it doesn’t define him. He’s our little boy, our superhero, and we wouldn’t change him for the world.

That’s why I’ve decided to put myself through a challenge that I’m fairly sure my arms are going to regret… 😂

For 21 consecutive days, I’ll complete 100 push-ups every day — 2,100 push-ups in total.

🧡Thank you so much for your support Manvir! If you’d like to support him, you can do so here: https://www.justgiving.com/page/2100pushupsforzayyan?utm_medium=FR&utm_source=WA 🧡

📷 A boy sits on a man’s knee.

It’s the final day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help dispel...
31/10/2026

It’s the final day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help dispel some of the myths that we often encounter 💛

You can find the full set of our fact cards here along with an editable version for you to add your own photo here: https://downsyndromeuk.co.uk/support-us/down-syndrome-awareness-month/ 🧡

📷 An infographic featuring a photo of a girl smiling. The text reads: 76% of PADS parents feel more positive about their child's future.

It’s the penultimate day of   so before our post gets lost in all of the Hallowe’en costume posts (which we’re so lookin...
30/10/2026

It’s the penultimate day of so before our post gets lost in all of the Hallowe’en costume posts (which we’re so looking forward to seeing 😉) we wanted to say thank you to our families, community and partners who have supported us this month 🧡

Whether you’ve shared our posts, had a discussion about Down syndrome or fundraised for us, we’re extremely grateful for your support 💛

We think Murphy’s Sketches says it best 🌻

📷 A piece of artwork by with a border of sunflowers. The text inside reads: Nobody told me that we would be part of a beautiful community that supports and celebrates each others’ beautiful children and their achievements.

It’s the penultimate day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help ...
30/10/2026

It’s the penultimate day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help dispel some of the myths that we often encounter 💛

You can find the full set of our fact cards here along with an editable version for you to add your own photo here: https://downsyndromeuk.co.uk/support-us/down-syndrome-awareness-month/ 🧡

📷 An infographic featuring a photo of a little girl sitting on the floor watching a ball. The text reads: Children with Down syndrome tend to be hypermobile and Low-toned, therefore take care when supporting all movements and positions.

29/10/2026

Tailoring learning to the child’s strengths ✨

For children with Down syndrome, visual short term memory is often a key strength, meaning they can recognise sight words earlier than we might typically expect. Having learned this through our Early Years Development Programme, Hambledon Nursery School created a scrapbook using photos of the child’s family to help develop communication and literacy skills.

Get access to expert-led training, information, resources and ongoing support for your setting by signing up to our Early Years Development Programme: https://downsyndromeuk.co.uk/professionals/early-years-development-programme/

🎥 A woman wearing glasses talks to the camera.

It’s the twenty-nineth day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to hel...
29/10/2026

It’s the twenty-nineth day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help dispel some of the myths that we often encounter 💛

You can find the full set of our fact cards here along with an editable version for you to add your own photo here: https://downsyndromeuk.co.uk/support-us/down-syndrome-awareness-month/ 🧡

📷 An infographic featuring a photo of a little girl holding a newborn baby in her lap. The text reads: 84% of PADS Parents now have a better understanding of Down syndrome.

Good news for parent carers who also work. 🧡The government has announced it will end the Carer’s Allowance “cliff edge”....
28/10/2026

Good news for parent carers who also work. 🧡

The government has announced it will end the Carer’s Allowance “cliff edge”. At the moment, carers can earn up to £204 a week after deductions and keep their full £86.45 payment. Go even a penny over, and the whole week’s payment goes.

The new rule is simpler. For every £1 you earn over the limit, your Carer’s Allowance goes down by £1. At today’s rates, earning £10 over would mean keeping £76.45 instead of losing it all.

There’s no start date yet, and ministers have said it will take some time to come in. Until then the current rules apply, so keep telling the Carer’s Allowance Unit if your earnings change.

We’ll share more as the detail comes out. In the meantime, our DLA support can help you understand what your family is entitled to. Make sure to join our parent/carer hub to access free DLA support or more personalised support for an additional fee 💚

📷 A carousel of infographics explaining the changes to carer’s allowance.

It’s the twenty-eighth day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to hel...
28/10/2026

It’s the twenty-eighth day of Down Syndrome Awareness Month and each day we’re sharing a fact about Down syndrome to help dispel some of the myths that we often encounter 💛

You can find the full set of our fact cards here along with an editable version for you to add your own photo here: https://downsyndromeuk.co.uk/support-us/down-syndrome-awareness-month/ 🧡

📷 An infographic featuring a photo of a man in a gym holding a dumbbell. The text reads:

Every year, more young people with Down syndrome than ever before are living in the community, gaining qualifications and succeeding in a wide variety of jobs. People with Down syndrome date, socialise, form ongoing relationships, and get married.

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