DSUK - Positive About Down Syndrome

DSUK - Positive About Down Syndrome Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome.

We do this by providing contemporary information and support to parents and professionals. Down Syndrome UK is a parent-led organisation providing honest support and expert resources to families and professionals, empowering every child with Down syndrome to thrive.

Some of you took part in a survey we shared earlier this year about swimming. Here's what came of it.Our partners at SEN...
08/09/2026

Some of you took part in a survey we shared earlier this year about swimming. Here's what came of it.

Our partners at SEN UK Swimming, alongside the Swimming Teachers' Association, have published Swimming Without Barriers - believed to be the first report of its kind in the UK. It brings together the real experiences of families and swimming teachers to understand what's working, and what still needs to change.

The findings show that many families are still struggling to find suitable swimming lessons - and that swimming teachers want more specialist training and support to do their jobs well.

The report sets out five recommendations for improving swimming access across the UK, including strengthening teacher training, sharing good practice, and helping families make more informed choices.

You helped make this happen. Read the full report or summary at the link in our bio, or here: https://senukswimming.com/blog/swimming-without-barriers-report

📷 A little girl swimming underwater.

Life skill, Down syndrome, Down syndrome support, SEND swimming, DSUK

Missed out on the live PEGS groups? You can buy the video-only option to access the video recordings. The video-only opt...
07/09/2026

Missed out on the live PEGS groups? You can buy the video-only option to access the video recordings.

The video-only option includes:
💚 Research-based early intervention activities that you can enjoy with your child.
🧡 The videos cover key skills such as communication, speech development, early number and reading, fine motor, and memory.
💛 Access for 12 months so you can watch the videos at your own pace.

Stage A (for children aged 6-12 months): £40
Stages B, C & D (for children aged between 1 and 4 years): £90

Buy the video-only option here: https://community.downsyndromeuk.co.uk/pegs

Please note this option doesn't include the live support sessions, but gives you access to the videos for your stage for 12 months.

06/09/2026

It’s time for and this week as it’s been back to school for the majority of children, here’s some of our members showing just how much they were looking forward to starting/ returning to school 🧡💛💚

🎥 A reel of smiling primary-aged school children in their school uniforms.

Down syndrome, nobody told me, the lucky few, starting school, first day, Sunday smiles

For this week’s we hear from Jacque who is in the middle of undertaking a terrific challenge of walking 21 peaks this ...
05/09/2026

For this week’s we hear from Jacque who is in the middle of undertaking a terrific challenge of walking 21 peaks this year 🧡

Last weekend we tackled 5 peaks in Brecon Beacons bringing us up to 11 peaks in our 21 peaks in 2026. We did the Horseshoe Ridge walk and added a 5th peak making it 20km in total. The weather was rough, but we did finally get some views and completed it all in 6 hours and 40 minutes.

We are climbing 21 peaks this year to raise funds for an incredible organisation DSUK - Positive about Down syndrome, who have supported us and many families with children with Down syndrome in so many ways. Link in my bio if you want to donate jacquerossi17! Over half way done, next stop Peak District 🗻

💛Thank you so much for your support 💚

📷 A carousel of images showing a woman and a man in waterproofs and wet weather on a mountain range.

Fundraising, small charity, Down syndrome, DSUK, parents supporting parents

🎉 Another hole sponsor announced! ⛳ A huge welcome and thank you to Bold Spaces for becoming the latest hole sponsor ...
05/09/2026

🎉 Another hole sponsor announced! ⛳ A huge welcome and thank you to Bold Spaces for becoming the latest hole sponsor at our Uttoxeter Golf Day this September. We're incredibly grateful for your support of Down Syndrome UK's very first golf day. Every sponsorship helps us continue supporting children and young people with Down syndrome and their families through our free information, education and support programmes. 💛 We’d also like to say a huge thank you to DBS for their support and help in making our golf day possible. We really appreciate everything you’re doing to help us bring this event together! 💛 Want to join us on the day, enter a team or find out more? ⛳ Find out more here : https://downsyndromeuk.co.uk/community-events/dsuk-golf-day/ Thank you again to Bold Spaces and DBS for helping make this event possible! 💛

Today mum Hannah tells us:Nobody told me that as a family we would still be able to enjoy a visit to the Dutch Grand Pri...
04/09/2026

Today mum Hannah tells us:

Nobody told me that as a family we would still be able to enjoy a visit to the Dutch Grand Prix! Yes, there was noise, yes, there were crowds, but Naomi enjoyed her first visit to see Formula 1 racing and shared the experience with us all. She danced along to the Max Verstappen song and loved to see the cars whizz by! 💛

📷 A carousel of images: 1. A little girl wearing noise-cancelling headphones. 2. Cheering with her mum, dad and brother. 3. With her family posing in in a Grand Prix frame.

Nobody told me, Down syndrome, SEND family, family holiday, DSUK

Today mum Caroline tells us:We take our PADS preschool pack everywhere we go, even on holiday! Joy loves it that much an...
03/09/2026

Today mum Caroline tells us:

We take our PADS preschool pack everywhere we go, even on holiday! Joy loves it that much and always enjoys learning and matching colours 🧡

You can purchase one of our pack here: https://downsyndromeuk.co.uk/product/preschool-parent-pack/ 💚

And you can find all of our early years information here: https://downsyndromeuk.co.uk/parents/preschool-parents/ 💛

📷 A little girls sits on the floor matching coloured blocks to the relevant coloured cards.

Early learning, early support, Down syndrome, colour matching activity, Down syndrome support, learning through play

It’s back to school time and for some this next year will mean thinking about transitioning to high school, so we have a...
02/09/2026

It’s back to school time and for some this next year will mean thinking about transitioning to high school, so we have a choosing a secondary school online session to help 💛

When choosing a secondary school, parents are faced with a number of potential options and secondary schools can seem a huge change from primary. This session provides more information about the possible options and what to expect from a range of settings. The session discusses the potential outcomes (both academic and social) as well as practical strategies and examples to support a successful transition 💚

Info and booking here: https://community.downsyndromeuk.co.uk/checkout/choosing-a-secondary-school?event_id=35095414 🧡

📷 A boy with glasses wears a blue school blazer and striped tie.

Secondary education, Down syndrome, nobody told me, year 6 transition

It’s the 1st of September so time for 💛 Mum Michelle told us:First Karate lesson for Harrison - he went in all by hims...
01/09/2026

It’s the 1st of September so time for 💛 Mum Michelle told us:

First Karate lesson for Harrison - he went in all by himself. First club we’ve not had to be present for so it’s a first for us as parents too. 🧡

📷 A little boy wearing glasses smiles as he stands proudly in his karate suit.

First on the 1st, nobody told me, Down syndrome, karate lessons, belonging

As we head back to school this week, we’re looking at ways to ease the transition 🧡Supporting pupils with Down syndrome ...
31/08/2026

As we head back to school this week, we’re looking at ways to ease the transition 🧡

Supporting pupils with Down syndrome to develop self‑care skills can make a real difference to their confidence and comfort, which in turn, promotes participation throughout the school day 💛

In our blog post, specialist Occupational Therapist Ashleigh Dick outlines practical ideas teachers can implement in the classroom to help pupils build independence.
Be sure to share this with your child’s teacher:
https://downsyndromeuk.co.uk/blog/self-care-down-syndrome-primary/ 💚

📷 A young girl in school uniform sits in a wheelchair. There are sensory toys in the background and a black Labrador support dog in front of her.

Starting school, school transition, Down syndrome, classroom tips, life skills

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