Tango2UK

Website

A small charity improving the lives of those affected by TANGO2 Deficiency Disorder in the UK

31/10/2026

Trick or Treat!
Happy Halloween from all our TANGO2 families!

19/10/2026

Today TANGO2UK celebrates our amazing Trustee Deb Gunn on her Birthday! 🎈 🎂🎉

Deb has written and checked countless policies and worked tirelessly as our Legal Advisor.
We are super grateful for her efforts and the super person she is to strive for TANGO2 affected individuals in the UK.

Thank you Deb. Have a great day ❤️

07/10/2026

October TANGO2UK Spotlight!

Thank you to Guy Boulding one of our amazing trustees who has been our Treasurer since the start and also helped fundraise over the past few years!

Happy Birthday Guy 🎉🎂

30/09/2026

TANGO2UK is delighted to collaborate with Rareminds who will be offering counselling services to our UK patients and families as needed.
This is a free confidential service to support those families affected by TANGO2 Deficiency Disorder at whatever point they need support. 👂 ❤️ 🧬

This service has been made possible due to a generous donation from a Charitable Fund who recognised the importance of carer mental health and need to support rare disease families.
We are really grateful for this support.

11/09/2026

📢 Exciting news from TANGO2UK!

We’re delighted to announce that TANGO2UK has established its Scientific and Clinical Advisory Board, bringing specialist clinical and research expertise into the heart of our work.
The Board will help us stay connected with the latest developments in TANGO2 Deficiency Disorder and the wider rare metabolic disease community. It will provide expert guidance, strengthen links between families, clinicians and researchers, and help us identify opportunities for future research and collaboration.

We’re incredibly pleased to welcome Dr Abinaya Seenivasan, who is in the final years of her paediatric neurology training and has a specialist interest in paediatric neurometabolic disorders. Abinaya has worked with neurology and metabolic teams across the UK and brings valuable experience of rare neurological and metabolic conditions, alongside a real commitment to collaborative research and supporting affected children and families.

We’re also delighted to welcome Dr Reena Sharma, Consultant in Adult Inherited Metabolic Diseases at the Mark Holland Metabolic Unit, Salford Royal Hospital, who has also joined TANGO2UK as a board Trustee. Reena has more than 15 years’ consultant experience supporting adults with inherited metabolic conditions and their families and is actively involved in research into new therapies for rare disease.

Together, Abinaya and Reena bring expertise spanning paediatric and adult metabolic medicine – an important step as TANGO2UK continues to grow and work towards better understanding, support and outcomes for everyone affected by TANGO2 Deficiency Disorder. 💙

We’re very grateful to have them both on the TANGO2UK team and excited about what we can achieve together.

08/09/2026

SUPER SEPTEMBER FUNDRAISER SPOTLIGHT!

💙 A very special thank you to Adam! 💙

We wanted to take a moment to publicly say a huge THANK YOU to Adam Jolliffe, whose incredibly generous donation of an Olivia Rodrigo VIP Box experience gave Tango2UK the opportunity to hold a very special fundraising raffle.
Thanks to Adam’s generosity – and, of course, everyone who bought a ticket – the raffle raised an amazing £1,590 for Tango2UK! 🎉

For a small, family-led charity supporting an ultra-rare community, every pound really does matter. The money raised will help us continue supporting individuals and families affected by TANGO2 Deficiency Disorder, including helping us build on the specialist counselling support we have introduced for our community through Rare Minds.

💙 But the impact goes beyond one project.
Our long-term ambition is to make sure that no UK family affected by TANGO2 feels they are facing this journey alone. We want to connect and support families, raise awareness of this incredibly rare condition amongst healthcare professionals, provide better information and resources, and ultimately help drive greater understanding and research into TANGO2 Deficiency Disorder.

Support like Adam’s helps a small charity like ours turn those ambitions into reality.
Adam, we are incredibly grateful for your kindness and generosity.

Thank you for choosing to support our TANGO2 community – it genuinely means so much to all of us. 💙

We’ll be keeping Adam updated on the difference his support helps us make, and we hope our whole community will join us in saying a very big THANK YOU! 🙏💙

05/09/2026

Happy 14th Birthday Tabby!
Wishing you a fun filled Descendants/ Pokemon and Huntrix filled birthday fun!
🎂🎉🎈
Lots of love from all your TANGO2 UK family.

05/09/2026

Well done to all those who supported the Leamington based SIP, Swop, Shop.
An amazing £1000 was raised!!!!
final total to follow.

This money is going direct to the TANGO2 Research Foundation and their shine a light on TANGO2 campaign.

THANK YOU.

01/09/2026

Happy Birthday Lily! Wishing you an amazing 16th Birthday and year ahead!
We love celebrating our TANGO2 birthdays. Each one deserves a party! 🎉 enjoy celebrating today!!!

27/08/2026

Happy Belated Birthday to Beth! One of our UK TANGO2 Warriors.
She celebrated 23 years this August!

Wishing you an amazing year ahead Beth 🎂🎉

Address

Leamington Spa

Website

http://www.tango2uk.org/

Alerts

Be the first to know and let us send you an email when Tango2UK posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.