Tango2UK

27/08/2026

Happy Belated Birthday to Beth! One of our UK TANGO2 Warriors.
She celebrated 23 years this August!

Wishing you an amazing year ahead Beth 🎂🎉

25/08/2026

Leamington based event!!!
Raise money for TANGO2 Research, clear out and get some new wardrobe items!!!

Book tickets for an opportunity to attend a super fun event on 4th Sept at 19:00 at St Paul’s.

We look forward to seeing you there.

All the proceeds will go direct to the TANGO2 Research Foundation and make a difference to every child who has TANGO2 deficiency disorder and deserves a better healthier future.

24/08/2026

Awesome August Fundraiser Spotlight!

Happy Birthday this week to our wonderful fundraiser Helen Edwards! 🎉🎂
She has wrapped presents and run half and full marathons for TANGO2UK!!! she has got us in the local paper and supported us since inception in so many ways!

Thank you Helen for being such a super human and supporter of our TANGO2 kids! Enjoy your celebrations! 🎈🤗 🧬

02/08/2026

Amazing Rowen TANGO2 Warrior 🧬 ❤️ 💡

Rowen recently won the opportunity to add his design to a lighthouse at the local museum.
He chose to add the TANGO2 Research Foundation Logo!
He also had a quote “friendship means holding hands, even when one hand needs a little more help”
We think Rowen could teach the world about what true friendship is. He is lucky to have such supportive kind friends and they are lucky to have him ❤️

We are lucky in our worldwide friendships across the TANGO2 network and together see hope and a better future for all our kids.

01/08/2026

Huge well done to Sebby and the Hulls for their amazing fundraising at their local village soup lunch!
Raising £226 and having a delicious lunch whilst at it! 🍲 😋
What could be better. Thank you to everyone who came and supported the event.

29/07/2026

We are excited to announce the TDD Research Pathways Grant, a new funding opportunity designed to support the next generation of researchers advancing TANGO2 research.

Are you an early-career researcher (e.g., MD, PhD) or trainee (undergraduate, graduate, or medical student) looking for funding to support TANGO2 research?

If so, we encourage you to apply for a T2RF TDD Research Pathways Grant

https://tango2research.org/wp-content/uploads/2026/07/clean_pathways-grant.pdf?utm_medium=email&utm_source=raisely&utm_content=Research%20Pathways&utm_term=45d3899a-4746-4b38-a855-4085106a8a62

This grant provides funding for pilot projects and innovative research initiatives that will expand scientific understanding and improve outcomes for individuals living with TANGO2 Deficiency Disorder.

Applications will open on July 31, 2026. Click below to learn more or contact [email protected].

This grant opportunity has been made possible through so many generously supporting TANGO2UK over the past 2 years. Working with the TANGO2 Research Foundation at the end of 2025 to establish funding for this inaugural grant. We are excited to advance global TANGO2 research and invest in the next generation of investigators.

https://tango2research.org/research/tdd-research-pathways-grant/?utm_medium=email&utm_source=raisely&utm_content=Research%20Pathways&utm_term=45d3899a-4746-4b38-a855-4085106a8a62

20/07/2026

Congratulations to Leanna- Mae on graduating nursery!
Off to school in September with all your new skills!
Go get them! ❤️ 🧬 💪
We love celebrating TANGO2 milestones 🥳

17/07/2026

17/07/2026

Well done to Juliet Grimes!!!!
Congratulations on winning our hugely exciting raffle!!!
Pls send us pics of the event 💜

17/07/2026

🎉 We have a winner! 🎉

A huge thank you to everyone who entered the Tango2UK Summer Sounds Raffle in support of families living with TANGO2 deficiency.

Thanks to your incredible generosity, together we raised an amazing £1,590! 💙 Every pound will help us continue supporting families, raising awareness and driving research into this ultra-rare condition.

The raffle was drawn at random using our Zeffy entry list and witnessed by two members of the charity to ensure a fair and transparent process.

✨ Congratulations to our winner, Juliet Grimes! ✨

We have contacted the winner directly, and they’re now the lucky recipient of an unforgettable Olivia Rodrigo VIP experience at The O2 Arena! 🎤💜

While there could only be one winner, every single ticket purchased will make a lasting difference to the families we support. Your generosity helps us provide information, build connections, and give hope to those affected by TANGO2 deficiency.

From all of us at Tango2UK, thank you for your kindness, generosity and support. Together, we’re making a real difference.

💙 Thank you, and congratulations once again to our winner!