Tango2UK

12/04/2026

Huge well done to our Regency 10km runners today. All 4 survived 😂 -some found it easier than others!
They have raised over £1500 for Tango2UK which is phenomenal 🎉
Thank you.
If you would like to support Tango2UK running/ jumping/ eating/ cake sales or anything pls reach out!
#1 Mill Street local Leamington charity.

11/04/2026

In America today it’s siblings day…
We know our sibling carers have to go above and beyond when they have a sibling with TANGO2 Deficiency Disorder.
If you are in the UK your sibling child can be referred to the Young Carers to help them on their journey.
At the US TANGO2 Research Foundation Conference they will be hosting a Siblings session to help these amazing children and adults to connect.
Big thank you to all our amazing sibling carers today 🥰

30/03/2026

Two 15 year old boys are running for Tango2UK! How awesome is that! Good luck lads and Phoebe will be cheering you on!
🏃 💪🧬

Help Dylan Kerr raise money to support Tango2UK

30/03/2026

Happy 15th Birthday to Sebby one of our fabulous TANGO2 Warriors!
Sebby loves baking so we hope he enjoys his birthday cake! 🎂 🎉 🎈

26/03/2026

Thank you to Amanda Hull (Sebby’s mum) who has supported Tango2UK by presenting to her local WI and raising money for us whilst doing so! Well done Amanda!

22/03/2026

Thank you to all our fundraisers!
Spring is in the air and the season of running upon us!!!
Hannah and Hope are running 10km @ the Regency Run this April. They run to fund research to help Phoebe their family member who has TANGO2 Deficiency Disorder.

If you would like to fundraise for Tango2UK pls reach out as we are keen to help you do so!

Help Hannah Driffill raise money to support Tango2UK

20/03/2026

To all our families that celebrate.

15/03/2026

To all the wonderful mums out there who go above and beyond every day!
Thank you ❤️ 💐

28/02/2026

From Tango2 Warrior mum Hannah-

This is Phoebe age 9 on the slopes with an instructor!
Look at her go 🥰
3 years ago we had just recieved our T2 diagnosis and life felt pretty bleak. We went family skiing but Phoebe could not join in, she could barely sit up age 6. She kept falling over to one side, she wasn’t safe anywhere. She could barely speak.

A diagnosis although terrifying gives answers and our case treatment, not a cure but a vitamin which makes every day easier than it was before. And it makes Phoebe a little safer. Our T2 community and research has changed our outcome.
So enjoy this little video as it makes me very very proud ❤️
There are still many many hard days, frustrations, and challenges but let’s take this win! 🥇💪❤️🧬

28/02/2026

Happy rare disease day to this little warrior! 🧬💪🏻

From Carter’s Mum Codey- Lea…
Carter, you’re my whole heart and soul and everything in between. You show the world every day that you’ll never be defined by your diagnosis and in doing that, you’ve exposed me to a world of strength I never could have imagined existed for either of us.

In a world where you think nobody understands you, mummy does baby. Every single time.

Happy rare disease day to all of the tango2 warriors & angels and for anybody else trying to navigate the rough seas of living with a rare disease. We may do things differently, but we get the job done! ❤️🥰

28/02/2026

Otis has celebrated Rare disease day with a trip to beach with his brother! 🏖️ 🪣 🪏 🏰

02/01/2026

Happy New Year from all of us at Tango2UK! 🎉
New Year’s resolution? Why not make a real difference in 2026 and fundraise for a small rare disease charity?!
Please reach out and see how we can help you achieve something exciting!!!