16/06/2026
Missfire to Inspire
When i start to get that fuzzy feeling in my head, when a tremor starts, small, and polite
When it takes hold, my whole body can ir may struggle throughout the night
Spasms are like writing in Morse code all the way down my spine
Jerking, facial tics, head shakes, these symptoms- i did'nt design
They call it "functional" - signals that "missfire throughout my body, it's just not fair
Like a faulty piece of software tripping out my hardware
I used to think no pain, no gain
No particular pattern, symptoms that arrive at different times, all tests clear, even the Doctor, who struggles to explain
Yes my FND it's changed everything
My plans, my pace, the way i navigate and walk this world, oh boy what a sting
It's taught me that floors are hard and be unkind
That peoples stares hurt me more than the falls or so i find
But if anything FND has taught me is this:
***Strength*** isn't about how tough it is to deal with, its about acceptance, hitting back hard and don't miss
It's about trying to do your best to stand up to it anyway
To breathe through the pain and choosing to stay
These misfires they carved a different kind of brave in me and one that doesn"t feel any shame
The kind that needs rests without any blame
That i've learnt to ask for help, and call it my superpower
But still wakes up tired, in pain and exhausted and but says lets go again, i can climb that bit higher
So let's all be strong, as we are FND Warriors or so i say
What tried to break us, we will rebuild again, each and every day
Now our scars lead the path for others to follow upon
Still learning how to navigate, to glow, shine bright like we once shone
Yes, FND, it changed my life, in some ways for the better, but it wasnt by choice
But it cannot and will not take my burning fire
It found and gave me back my inner strength, my "Voice"
Maybe now that"s how i will go and inspire
